cant catch a break

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Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 9/28/2009 9:46 PM (GMT -6)   
 well it was off to the dr this morning.. temp 104.3.  felt like crap that was run over by a lawnmower , then scraped off the wheels with a stick. temp went down to 100 then back up to 103 earlier. almost normal now after much tylenol, excedrin and prednisone.. they did blood cultures again. waste of time if ya ask me.  got a call into the Gastro dr. someting just aint right. something is being missed. now will say they have checked dang near everything to no avail over the last 3 years trying to figure this out.  i done, finito, cooked, stick a fork in me, my elevator is at the top with no where left to go. shocked

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 9/28/2009 10:13 PM (GMT -6)   
(((HUGS))) Randy,
Its not F-head causing all this is it?
And those arent quitting words coming from the bravest CD survivor I know? Done, Finito - I dont think so!
You'll beat this beast yet.
Keep fighting!
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 9/28/2009 10:25 PM (GMT -6)   

Hey Randy,

I do understand how u are feeling like there is no where else to go, I also am going down that road right now but for different reasons but still related to this darn crohns/colitis. But I agree with sydneyjo that you will beat this cause u are strong as we all are, living with this chronic illness, we have to hang in there and hope there will be a cure one day. Wish I had the answers for u. Hope u feel better soon, take care

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 9/28/2009 10:27 PM (GMT -6)   
Geeeeezzz Randy, whats it going to take to find that little SOB thats causing all this ???Somebody has to know a way.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 9/28/2009 10:42 PM (GMT -6) are one of the ppl I thought of while I lay in a hospital bed wanting to give up ...this is not the way man n you wiill get out of this ......all my thoughts n healing energy coming your way .......YOU are not a quitter.......Luvs lyn n Cait
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at
              CO Moderator @ Anxiety and Moderator Crohns
                            Keep The Fight Going..Or You Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         

Regular Member

Date Joined Jun 2003
Total Posts : 280
   Posted 9/28/2009 11:00 PM (GMT -6)   
Randy, that is so unfair, from the disease that is so unfair. I really hope that this time they will finally find out the cause and the treatment for these darn fevers. Someone has to have experience in treating fevers of unknown causes. Best Wishes, Bets

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 9/28/2009 11:02 PM (GMT -6)   
This disease is never ending horrible..makes a person have an extreme case Randy..but you are a tough cookie!

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade


Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 9/28/2009 11:16 PM (GMT -6)   
Maybe see if you can book an appointment with Dr. Gregory House???? Might be you're only shot at finding out what in the heck is going on...seriously though, I hope you don't have a "bug" or something...actually maybe it's better if you did and then they could treat it and put you out of this misery.

Hang in there, hope you find relief soon.

bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 9/29/2009 12:30 AM (GMT -6)   
While Crohn's can cause fevers as a result of hidden fistulas (entirely from one cavity to another) which are hard to find, there are several syndromes that have similar symptoms. Here's a link to an abstract that mentions a few unusual causes of fevers that resemble Crohn's:

Maybe you could ask about those - just to keep your GI on his toes.

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 9/29/2009 6:49 AM (GMT -6)   
Randy...I don't know how you do it. My husband had fevers for a week straight (spike up then down up then down reaching 104.6 at one time). He lost patience around day two. You have been so strong through these....I know that you can beat this.

I keep thinking two things when i think of your fevers. One is the usual viral thought. The other is could a parasite be involved? With the coming and going of symptoms it just makes me wonder.

I hope they find a solution the meantime I'll sing a little Talking Heads song for you...Randy is burning down the house.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/29/2009 8:36 AM (GMT -6)   
(((Randynoguts))) Hope they get this figured out for you soon.

Big Hugs,
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 9/29/2009 10:29 AM (GMT -6)   
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 9/29/2009 12:33 PM (GMT -6)   
Hi Randy, how frustrating for you, keep your chin up your one strong person hope you get it sorted real soon Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 9/29/2009 12:53 PM (GMT -6)   

I am so sorry you are so hot.  mad    I wonder too about a persistent infection.  When tissue is damaged, it is hard for the body to totally clear infection.  And you have seen an infectious disease doc?  They tend to be better detectives.

Also, I am wondering if this is a general inflammatory response by the body to CD.  This link is mostly about joints, but it does attribute flu-like symptoms to inflammation from autoimmune disease.

Cool down soon, you man of mystery!

Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 9/29/2009 10:59 PM (GMT -6)   
cait n i sending our love
n very strong healing energy...good point imho about parasites....keep us posted when able plz...
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at
              CO Moderator @ Anxiety and Moderator Crohns
                            Keep The Fight Going..Or You Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         

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