scd dieters can you help

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/4/2009 3:36 PM (GMT -7)   
Hi guys,
 
I am following a Paul nison/ david klien diet and it has really helped. i get no D nor do i get any pain. the only problem is i get a bit of mucus once a week, and sometimes a  bit of blood. Im still taking meds but im wondering, how long did it take on the scd diet to get rid of your symptoms.

______________________________

Just FYI the link in your sig must be approved by admin, until then it will be deleted.

Post Edited By Moderator (MMMNAVY) : 10/18/2009 7:42:00 AM (GMT-6)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/4/2009 4:30 PM (GMT -7)   
It varied. I got rid of the heartburn/reflux almost immediately, and my seasonal allergies improved really quickly as well. Constipation was on and off until about 4 months, and then things have been pretty normal since then. The fistulas also took about 4 months or so to heal. I quit having cramping at around month 5, I think, and that was also when my fissures healed. I very rarely have blood on the stool anymore. My eczema healed at around month 8.

The main thing that hasn't improved much is fatigue.

From what I've read, bleeding can be one of the last things to resolve. How do you feel otherwise?
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/4/2009 5:12 PM (GMT -7)   
The mucous usually means that there is something that the gut is trying to expel - usually bacteria. You could try probiotics as an addition to your diet. The idea is to reduce the undesirable bacteria by using friendly bacteria to consume the bad guy's food and occupy his favored hangouts. Friendly bacteria also reduce inflammation and in some cases, form a barrier between the gut lining and the gut's contents. Probiotics with a good reputation include Culturelle, Align and VSL#3.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/5/2009 4:59 AM (GMT -7)   

thanks guys, chones line is always a help, i don't think UC line likes these diets. but oh well.

 

I am taking a probiotic. Generally i feel really well. I have more engergy most of the time not all the time, I have no D and no pain. It is just a bit of blood sometimes and mucus. I have now been doing this for 3 months and 1 week. so im glad to hear that all is not perfect after 3 months.

 

Im also trying to find out if an irregal shaped colon can cause problems. I had a colonoscopy about 4 years ago. they said during the procedure i had a bit of a funny bend to my colon which other people tend to not have. I now think about, i know it would not be the cause but would it contribute to uc.

 

I also have constipation sometimes and sometimes not so im glad that is normal.

 

Thanks Chrones line, your guys are a big help. I sometimes find the uc line a bit negative towards me for this diet.


Post Edited By Moderator (MMMNAVY) : 10/18/2009 7:39:51 AM (GMT-6)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/5/2009 7:22 AM (GMT -7)   
Hellokitty, one other thought would be to consider your total carb intake. Is it possible it is high? Fruits and some veggies can be high. Do you consume grains on this diet? Honey? Any other sugars? In the book "Life Without Bread", the authors put forth the idea of *drastically* lowering total carb intake to control IBD. The SCD and your diet do this naturally, but the LWB authors would argue not quite enough for *some* people. ...just a thought! I'm happy you are having success! :-)
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/5/2009 3:54 PM (GMT -7)   
Thanks emom, yes i beleive my carbs are high as fruit is Hi in carb. I may switch to the scd diet if this does not work, but i will see how i go. the only reason i chose raw is that i rejected meat before i knew i had ibd, and i went vegi. then i found out, strage i did this. but with the scd diet it also allows chesse and i really am afraid of dairy.

I do not consume any grains, and i have not tried honey, i do not use sugar as fruit has its own sugar and that is enough.

I do conusme fish. How ever david klien says that meat causes inflammation, but still there are alot of people doing really well on the scd so im not really sure thats true.

thanks guys im having a scope tomorrow just to see if there is inflammtion seen.

Post Edited By Moderator (MMMNAVY) : 10/18/2009 7:37:12 AM (GMT-6)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/5/2009 5:20 PM (GMT -7)   
There wouldn't be anything wrong with fish being your only meat on SCD. You could try others, but it's certainly not mandatory. Same with cheese. If you're not comfortable trying it yet, don't. Lots of people do SCD dairy free. Can you eat eggs?

It sounds like you're pretty much doing SCD already, with the exception of starting out with raw foods (SCD starts you out with cooked veggies/fruit).

Good luck on your scope!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/7/2009 12:05 PM (GMT -7)   
i had a syndoscope , i cant spell that, but you know those short scopes, they did show a flare. i have to have a pred enema, and at least i know i do have sever proctitis, but they don't know if it is on the left side yet. i need to still have a colonoscopy which i will have in a couple of weeks.

spookyhurst i don't know about eggs, i was introducing foods really slowly to see which ones i will accept. I also see you take meds but still on the diet is that working thats what i am doing

i hate uc i feel that it controls my life at the present.

Post Edited By Moderator (MMMNAVY) : 10/18/2009 7:38:27 AM (GMT-6)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/7/2009 1:04 PM (GMT -7)   
No matter which diet you use, there will be foods that are on the safe list that you do not tolerate. You are the ultimate authority on your gut. It helps to keep a record of your diet and the reactions which can be a day or even two after eating something new. Other things also can cause problems - like alcohol, NSAIDs, stress and a few others - so you have to consider whether it is actually the food or the other problems.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/7/2009 8:05 PM (GMT -7)   
HK, I'm on just Pentasa right now. My surgeon said to quit taking the Humira at least until I see my GI next month, and I doubt I'll restart it. I'm looking at taking LDN in addition to Pentasa though. I will have to be symptom free for quite awhile before I consider stopping meds.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


par1230
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/13/2009 12:04 PM (GMT -7)   
I am eating pretty much SCD,but I eat Organic Stoneyfield plain low fat yougart,and all is well. Does anyone else eat store yougart?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/13/2009 12:52 PM (GMT -7)   
No, I make my own.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


par1230
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/13/2009 1:11 PM (GMT -7)   
I am eating pretty much SCD,but I eat Organic Stoneyfield plain low fat yougart,and all is well. Does anyone else eat store yougart?

Gary The Pilot
New Member


Date Joined Oct 2009
Total Posts : 14
   Posted 10/18/2009 12:55 AM (GMT -7)   
Hi HelloKitty. I read of your endeavor doing the David Klein vegan diet. I was diagnosed with Crohn's this Summer. After being unemployed for a while and without insurance to boot! Anyway, I am trying the raw fruit and vegetables. Struggling with staying full. I'm a big guy. I gave up meat a while ago as it never worked for me. I gave up dairy for the time being to see what happens. David Klein's book seems to make sense and cover all the bases. But it's almost too difficult to mesh with the real world. I have been eating raw fruits and vegetables and nuts (Well chewed) with oats usually in the morning. I went to a hockey game last night, had a chunk of a soft pretzel because I was starving, and I'm in a boat load of pain now. Or maybe it was the few drips of italian dressing that I tried on my salad.

My question to you is... did you ever consult directly or over the phone with David Klein? If so how did it go? I dont know if this is worth it? Vegan to me is like being a fish out of water. Enlighten me with your thoughts please. Thanks!

Gary

Post Edited (SoreButtMan) : 10/18/2009 1:59:31 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/18/2009 6:44 AM (GMT -7)   
Just a caution diet's do not work for everyone.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/18/2009 8:20 AM (GMT -7)   
Sorebuttman- if you want you can post what you were eating on the raw line, then we can help you. trasition to that is hard and takes months.

Post Edited By Moderator (MMMNAVY) : 10/18/2009 10:59:25 AM (GMT-6)


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 10/18/2009 10:03 AM (GMT -7)   
email me
 
Sorebuttman,
Hello kitty has her email in her profile it might help to email her.
Navy
P.S. Kitty I hope you got my email.

Post Edited By Moderator (MMMNAVY) : 10/18/2009 8:22:10 PM (GMT-6)


maregug
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/19/2009 9:53 AM (GMT -7)   
Hi Hellokitty,

My diarrhea cleared up by 90% within the first month on SCD, as did the mucous. I militantly adhere to the diet because it has been the one thing that has worked for me.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 1:12 AM (GMT -7)
There are a total of 2,733,393 posts in 301,111 threads.
View Active Threads


Who's Online
This forum has 151251 registered members. Please welcome our newest member, Danann.
209 Guest(s), 3 Registered Member(s) are currently online.  Details
rollout, bluelyme, Girlie


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer