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crohns flare, Albumin dropped to 1 and immune system crashed
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Date Joined Jun 2004
Total Posts : 199
Posted 10/4/2009 7:47 PM (GMT -6)
I haven't been online for so long. been very sick. albumin dopped to 1 and immune system crashed. it is so bad I can't even think about
going to the hospital, with my albumin so low I am another disease or illness waiting to happen.they are trying to get a mobile unit out here to take my blood. I lost 9 pounds in 4 days and about
60 pounds in just a few short months. I am not getting any nutrition at all. my feces have seperated, diareaeah no color and then a thick oil all over the top. I've never seen that before. I am full of fluid in the 3rd space about
30 pounds worth. now imagine being nearly being 6 feet tall and only weighing 110 pounds and losing faster and faster everyday. I have so many other illnesses to. to doctors have their hands tied. I can't have any surgery even though I need it. I m so tired and fatiquied. I have alot of pain in my joints and fluid I can not walk. I have a care giver she lifts me, I got a lift chair and hopefully today my husband is bringing home a scooter for me. so I will have the independence of having my legs back. I have kids and grandkidss. I keep telling my kids that I can't be around any of them right now as one bad cell gets to me it could be all over for me. but see I was supposed to die 4 years ago within 3 months and it didn't happen, now my daughter thinks I am crying wolf. I have doctors afraid that I will pass away from congenital heart failure. eapecially since I also have mitral valve prolaspe. running fever. have runs so bad, hemmeroids. you can only imagine. I also have a fungus in my lungs called aspergillosis and no cure for it either. I also have factor 5 laiden, blood clot disorder and much more. this is the lowest my albumin has ever been and to be honest I have alot of fear. even though God says to lay our problems and our sicknesses on him and he will help us. I do. I have a great care giver who prays over me every morning and every evening. needless to say I am scared to death and am looking for not sympathy but people that have made it through the fire so to speak. Pep talk. Ideas. Anyother docs I should see. I can't be treated for anything because it will only make things worse. the docs say there is nother they can do. is there anyone out thee that has heard of so much and was able to help. . the lasix don't work as fast as I wish my left arm is so tight and my legs are very full and tight. any advice, prayers. thoughts???I am desperate to hear from other crohnnies and people that have much what I have. I look forward to hearing from you. anxiety is something and depression I have been dealing with to. thanks for listening. sorry so long. its been so long since I've been on yahoo groups and I really need a support group who can give me advice and lift me up and give me hope. thanks, Donna - camey0777
2. No discussion of medical marijuana use.
Post Edited By Moderator (Nanners) : 10/5/2009 12:34:09 PM (GMT-6)
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Date Joined Apr 2005
Total Posts : 14995
Posted 10/5/2009 1:32 PM (GMT -6)
Welcome to Healingwell. I am so sorry to hear how sick you are. Sending healing prayers your way for sure. I wish I had some answers for you, but unfortunately I don't. But hopefully one of the other members might be of some assistance. I am sorry but I had to edit your post a little, because it is against forum rules to discuss illegal drugs on the forum. Stay with us, we do care.
Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles. We can take hold of it by the handle of anxiety, or by the handle of faith"*
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Date Joined Nov 2008
Total Posts : 392
Posted 10/5/2009 4:37 PM (GMT -6)
Hi, I am so sorry that you are this ill. I would like to suggest you to visit a naturopath or a holisitic doctor. Aspergillus is a yeast, yes?
Mycoplex is doing wonders for those with candida problems / yeast problems. You may have yeast when the diarrhea is increasing. Mycxoplex is to be ordered online from the US.
I hope it's ok that I put the link here where to order Mycoplex:
I so hope for your well being, best wishes, from I.
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Date Joined Oct 2009
Total Posts : 1
Posted 10/19/2009 10:12 PM (GMT -6)
this is bad news, okay this is imperative you have to go to ER over this, they'll stabilise the inflammation of crohns with steroids and anti inflammatorys, they'll IV you with fluids and gets nutrients back in to you, this has to be done, get whoever your with to take you to the hospital and tell them whats going on right away.
Secondly you need to take a liquid multivitamin when you come out, it has to be liquid i can not emphasis this enough, due to the damage in your intestinal tract caused by crohns you will hardly absorb nutrients, your immune system will be weakened and is failing in healing your body, thus all the aches and pains and extreme weakness. the best liquid vitamin in the world in my opinion is eniva vibe 2.0 this is from personal experience, best thing i've ever taken by far. It bypasses the digestive system completely and gives you the vitamins minerals and antioxidants your body needs to fight crohns directly at a cellular level. Take 3 ounces a day until you stabalise. Secondly you've got to take a liquid amino acid supplement to get that albumin level up that's equally imperative. Also last but not least i've heard a lot about
4life transfer factor tri factor plus formula, i know they boost the immune system nearly 500% and have cured stage 4 cancers and all sorts of things including crohns ulcerative colitis even hugely helped with AIDS. I'd consider trying them for at least 2 months see if you feel any change in your body, seeing that you have lots of conditions i've read so many testimonials for this product that have saved people that were literally days away from death, or where at the point of extreme illness. What i'd suggest is taking 3oz's of eniva vibe 2.0, a liquid amino acid supplement, 4life transfer factor tri factor (ask them how many you should take about
4-6 a day) possibly primal defence powder for the crohns disease (this works great for crohns in fact the owner of the company garden for life healed himself from crohns he went down to 106 pounds) I can only give you advise from personal experience i know vibe 2.0 will give you all the vitamins and minerals you need, the liquid amino supplment will give you the protein and increase your albumin levels, the tri factor plus will enhance your immune system nearly 500% so it can heal itself properly and the primal defence will defeat bad bacteria, yeast and parasites in the gut as well as increasing nutrient absorbtion and calming inflammation. Donna i wish you all the luck in the world with this, just have faith and avoid negative emotions no matter how difficult it is, trust me i've been there. I'll be praying for you, from daniel
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