best supplements?

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poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 10/5/2009 7:43 AM (GMT -7)   
I am in a bad pattern of flaring, everytime I think I am healthy, I get sick again.
 
I eat well, exercise daily and take all my meds.  I am thinking I need to do more.
 
I have inconsitistanly tried different supplements and natural remedies, but i have a hard time figuring out what is working and deciding which ones to try. 
 
What supplements do you take that you feel make the most difference (i know it is prob different for everyone) 
 
I have tried ginger pills and aloe vera juice...any different suggestions???
 
Thank you so much...
 
 
Crohn's Disease - re-diagnosed June 2009
Ulcerative Colitis - diagnosed in 2000

26 years old/female
Asacol, Cymbalta, Nexium, Cimzia

Bad reactions to: remicade, lialda & 6mp


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/5/2009 1:39 PM (GMT -7)   
Probiotics are the single most useful supplement for your gut - if you use the right ones. Probiotics with a good record include Culturelle, Align and VSL#3. There are some newer food products that include probiotics. A Finnish dairy multinational called Valio (Unilever has some relationship) has started selling a spread that has the same bacteria as Culturelle. For a story about the bacteria, see: Science Daily
and for a blurb about Valio/Unilever and the new food, see: http://asiakaslehti.com/foodsandfunctionals/node/3

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 10/5/2009 2:16 PM (GMT -7)   
I agree with what Keeper says about probiotics. (Good links by the way, thanks.)  My daughter takes lots of them, but still she is currently flaring with lots of D, cramps in her sides, and tummy pain right in the center.  Wish I knew what to do to knock this flare out (other than putting her on SCD or enternal nutrition which she refuses to cooperate with.)  I have been reading posts on here about Metamucil, so we are "trying" this except that she links it's gross so we're having trouble with that here too. Argh.
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months

Then continued with:

  • Pentasa, 3 blue horse-sized capsules, 3 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega
  • Calcium
  • VSL#3, 2 x day
  • Custom Probiotics: 6-Strain Blend, 1 x day
  • Culturelle, 1 x day


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 10/5/2009 4:12 PM (GMT -7)   
I haven't found any supplements that make a noticeable difference, including probiotics. I'm only gonna be taking calcium because my GE says I should because of pred.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/5/2009 10:18 PM (GMT -7)   
Have youtried fresh ginger or just pills? I'd think fresh would have more of a beneficial impact so whenpossible try the closets to "real" as possible when it comes to things you can get in pill form like ginger, garlic, ect....

below in my sig is a list of all that I use, with some good results, not full remission for me but much better than before I started taking the supplements listed in my sig below.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/6/2009 7:04 AM (GMT -7)   
I am finding some success with taking extra Vitamin D. I am now taking 1400 i.u. a day, and I have noticed some relief with my joint pain, and fatigue.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 10/6/2009 7:15 AM (GMT -7)   
Nanners, That's great news. I just bumped up my daughter's D3 intake yesterday. How long before you noticed that it seems to help? Thanks.

___________________

please adjust your sig to 10 lines total.

Post Edited By Moderator (MMMNAVY) : 10/6/2009 8:59:50 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/6/2009 7:46 AM (GMT -7)   
Mooby, I take perscription vit d 50,000 units a week and it took several weeks.
 
pb can you share the brand names on those? and which ones need to be in the fridge?


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 10/6/2009 8:57:18 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/6/2009 8:31 AM (GMT -7)   
Mooby I have been taking it about 2 weeks now, and I am just starting to notice some relief. I am not constantly having to take as many naps as I was. Many times as soon as I got home from work, I would pass out on the couch. Don't feel quite as exhausted as I did. I won't lie I am still tired, but not quite as bad as I was.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 10/6/2009 10:46 AM (GMT -7)   
Poohbear...noticed you were taking nexium, a ppi...this can lead along with crohn's to a poor absorption of calcium...if you are interested...there are supplements that include calcium with vitamin D...I personally like viactiv, but there are others out there too...It seems to help, but then again, along with the long time use of ppi's I've also been on the steroids for a long period of time too...hope you find something that works :)
"The earth laughs in flowers"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/6/2009 10:59 AM (GMT -7)   
Sure MMM, the omegas, vitamins A and C-Calcium Ascorbate and bee propolis are all puritans pride brand (online store) and I use Prodiem stool bulker fibre supplements, and the probiotic I use now are Sangsters brand (from my local Sangsters store) called ProBio TX-11, I used to use Primadophilus Reuteri which was excellent but the price jumped so I switched and find the Sangsters brand to be equally beneficial but priced better(and I get more for the money).


:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/6/2009 2:09 PM (GMT -7)   
Along with some of the other things listed above I found a few years ago that a B6 supplement made a difference in my energy level. It took about a month or so, but I didn't NEED a nap every day. I try to find one that is at least 100mg, 200mg is better, but I can't always find it, brand doesn't seem to matter. I don't take it as a B complex, I take it as a straight B6. I also have B12 shots.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


tamsprote96
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 10/7/2009 7:42 AM (GMT -7)   
I was always afraid of taking too much vit d. I use to take my multi that was 400 iu then two more just d at 400 iu each but stopped because I didnt want to OD on it. I have an issue with standing for any period of time. Like in line at the store, I have to sit down. I also take super b complex with my multi, but now I wonder if the extra vit d would help with my endurance. Any suggestions?

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 10/7/2009 4:55 PM (GMT -7)   
Where are you all geting the Prodeium from? Is it in the U.S.?
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months.  Currently taking:
  • Pentasa, 3 blue horse-sized capsules, 2 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega and Omega capsule; Calcium
  • VSL#3;  Custom Probiotics; Culturelle; Align

  • momoftwo
    New Member


    Date Joined Jan 2003
    Total Posts : 14
       Posted 10/7/2009 5:38 PM (GMT -7)   

    Hi everyone,

     

    I take flax seed oil, I'm up to 5,000 iu of Vitamin D, as well as a multivitamin.  Probiotics are especially helpful, you may find this paper on DMSO and Melatonin helpful as well.  When I was flaring I used the Melatonin (at night) and would use the DMSO for pain relief:  http://www.krysalis.net/crohn.htm (it helped me quite a bit) and here is more info on vitamin D:  http://www.vitamindcouncil.org/

    I hope this helps you... God bless.

     

     

     

     

     


    dinkydee
    Regular Member


    Date Joined May 2009
    Total Posts : 201
       Posted 10/7/2009 7:45 PM (GMT -7)   
    I take antioxidant supplements in the form of a strip, you put it on the inside of your cheek and it dissolves and goes into your blood stream so it doesn't upset your stomach and you don't have to worry about it not being absorbed in the GI tract. 
    I am on the SCD diet and make yogurt.  Wondering if I need additional probiotics....
    Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
     Currently on Prednisone 40mg. Tapering down, now on 20mg.
    Colazal 3xday, Antioxidant strips
     
    I live by faith and not by sight....


    pb4
    Elite Member


    Date Joined Feb 2004
    Total Posts : 20576
       Posted 10/7/2009 7:56 PM (GMT -7)   
    dinkydee I'm a firm believer in probiotics daily and indefinitely (as well as all the other naturals I take and things listed in my sig).

    :)
    bee propolis caps 500mg one cap twice/day
    omegas 369 caps one cap twice/day
    probiotics 10 billion cfu once/day
    vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
    Prodiem fibre supplement one cap before bed
    I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
    I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
    ~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


    beave
    Veteran Member


    Date Joined Mar 2007
    Total Posts : 1091
       Posted 9/6/2014 8:12 PM (GMT -7)   
    Spam alert! Mods, please delete the two posts above.

    Dee, I'll give credit where credit is due: You were able to revive a thread that had been dead for nearly five years! It's a miracle!!!1!!!!11!
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