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Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 10/6/2009 6:13 PM (GMT -7)   
OK.... my stoma hurts something awful. It is getting rock hard all around it....very painful.....I am pushing the bm out...looks like a little worm. playdough poop....ulcers on the stoma....bleeding.... what do you think? blockage? inflamation OMG it hurts..
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 10/6/2009 6:32 PM (GMT -7)   
your bowel is full and its attempting to evacuate. Sometimes I remove my bag and go into shower, when it gets that bad. alternatively you can get a laying position if this allows you to relax your bowel, this is hard when it hurts so, and let normal peristalsis take over to do the bm. It can be painful if you have alot of fluid or a some inflammed areas around stoma, or a piece of stool that is trying to pass. you can walk till it gets rid of the problem area, but I like the shower to get my mind off it. It mite take awhile if you feel the bowel area is hard and full, so removing the bag can help. you posted on the crohns forum. How long have you had the stoma?

Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 10/6/2009 6:37 PM (GMT -7)   

Posted here because I have crohns....reason for the stoma. I know peeps here and am just more comfortable postiong here. I have had it for 5 years.

I'm concerned about the burning, the small ulcers I can see.... and feels rather painful on the inside too.


Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 10/6/2009 6:47 PM (GMT -7)   
about the same for me. mabe its getting a bit of gut leak on bottom thats what i think is for me or small granuloma interior that is slowing it to different direction. I get this back up from food as well as for alot of fluid, so it seems yur on the harder stool side than the fluid but it happens for fluid too where the bowel kinda freezes up. Frankly, I eat something to force it. I also prepare a new bag with paste and do the shower thing,, because alot of times the swelling causes a leak in the adhesive when this happens anyways. Hope it passes. I have that burning issue too. I was looking for the creams because they don't give anything that works. Perhaps something like the glycerol trinitrate oitment but I never tried it. My surgeon says the exterior granulomas are part of healing but i feel interior pressure as well like you do with the pain. I tried a antihistamine too to dry things out a bit, but i'm sure you have your own lil remedies.

Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 10/7/2009 5:36 AM (GMT -7)   
Normally my output is pretty liquidy. It is still soft but I am having to push on my stomach and forse it out to relieve some ofthe pain from the pressure. It is a very thin stream coming out making me think that there is a strictue of some nature there.
 
It burns like fire. I have an appt. next week to see about reversing this thing. Not looking promising! Everytime I mentioned it a few years ago the surgeon would run around his office like that Robot saying "warning...warning". Says he thinks I should leave a good thing alone. I said "you aren't the one living with it".
 
I am on my way to the ER. My deductible is filled so I may as well take advantage of that fact! lol let you know what happens.. Thanks!!
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/7/2009 6:10 AM (GMT -7)   

Cleo I am so sorry to hear you are hurting so.  Please do keep us posted on what happens in the ER.

Big Hugs,

Gail*Nanners*


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 10/7/2009 7:54 AM (GMT -7)   
Hi Cleo, i feel for you, is it a permenant stoma or temp? i have had so many emotional and physical  issues with my stoma since day 1 so i know how you feel i hope you went to the hossy and got it sorted and that you are feeling alot better now Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)


Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 10/7/2009 1:39 PM (GMT -7)   
I'm back.... stoma is a little happier. Mega dose of pred to reduce the inflamation. By the time I got there the area around the stoma was so distended it looked like I had a softball under my shirt! They did some xrays.... said looks like a "narrowing", the inflamation was obvious, but they weren't real concerned because I don't have a fever "yet" and I'm not vomiting so take steroids to get me thru till I see the surgeon next week. I have a love hate relationship with that stuff. It works fast and very well for me. But we all knowthe long term may not be so pretty!
 
I feel like I'm on speed....got sooooo much done at home since I got back! He told me to not work till Mon. Ican't do that financially so I guess I will just grin and bear it. we all do what we gotta do. yeah
 
Crohnielass.. I am told it can be reversed but the surgeon made some noises about having to do 2 surgeries, one first to repair some damage to the rectum before the resection. HAve a consultation on Tues. Guess I'll see what his attitude is then. He just wasn't real receptive a couple years ago!
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/7/2009 1:53 PM (GMT -7)   
Cindy glad you are at least having a little relief from the pain. Sorry it has to be relieved with Pred though. We do definetly have a love/hate relationship with that med don't we. Hope the surgeon gets you feeling better soon. Big Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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