Down in the dumps - first flare, abscess, fistula and seton surgery - HELP!

New Topic Post Reply Printable Version
32 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/6/2009 8:26 PM (GMT -7)   
So... here I am hoping to gain some positive energy from those of you who are dealing with this disease.

A little about me.

I'm 27 - diagnosed with crohn's colitis in November of last year, but have been suffering from symptoms since I was 15 - put on Salofalk 8 pills a day immediately after diagnoses via colonoscopy. This medication caused me more pain an suffering than the 12 years I went undiagnosed. Constant abdominal cramping, urgency (more than I had ever had previous to medication) and severe diarrhea. Middle of August, I entered into the first "flare" and this went on for weeks. I contacted my GI doctor and he took me off of the meds - but because he was in a hurry didn't have time to talk to me about the tenderness I was having in my buttocks/perianal area. I endured the pain for another week and called again requesting he see me. His receptionist stated that it was probably a hemorrhoid and suggest I see a general surgeon - my GP referred me to a general surgeon. Two weeks ago I could not take the agony anymore and sat in my emergency dept for 4 hours only for the doctor on call to tell me he didn't know what it was, prescribed some cream and sent me on my way. Well... needless to say I was back at the emergency dept the next day and was forced to sit (YES sit) in the emergency dept for 5 hours before they gave me a gurney to lay down on. After waiting an additional two hours the doctor finally sees me and says "Oh my goodness, that is one of the largest abscesses I have ever seen. Unfortunately, I'm going to have to lance it to let it drain" WOW - the most painful experience I have EVER had. On a good note - I have had normal bowel movements only twice a day that are formed and very little mucous. If only I could just get rid of this darned abscess and fistula.

So here I am two weeks later and have been told by the general surgeon I am seeing that I have to have the abscess surgically drained and a seton ring put in place due to a fistula (that caused the abscess in the first place). I know many recommend not having a general surgeon perform this procedure but she has given me more understanding about this disease and how it works than my GI did. Needless to say I have requested to be referred to another GI doctor - the same doctor that saved my cousins life from crohns. I hate waiting in limbo for referrals and not knowing what it going on. Essentially, I am on no meds to help prevent this from happening again.

I'm nervous about this procedure - I know my quality of life right now isn't the greatest (laying in bed to prevent pressure from building up again) and I'm off work because I have a desk job. I really want to have a normal life again. How much will this seton restrict me? I love to travel and plan on heading south in early spring - will I still be able to go? Will this seton be in my body for the rest of my life? I wake board in the summer and kickbox - I want to be able to do all of the same things I used to do before this abscess including the ability to go back to work.

I'm really down in the dumps - emotionally distressed. I'm single and afraid I will never date again. My friends have bailed and I spend a lot of my time in bed alone.

I would love to hear from anyone that could provide me with information about their experiences.

PS - I have done a search on Setons within the forum, would just like to talk to others about their experiences.

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 10/6/2009 8:43 PM (GMT -7)   
Hi. (((Hugs))). I don't have much experience with setons or abscesses or fistulas, but I have experience with Crohn's making life hell. When crohn's flare ups happen, we really can't expect life to be normal until things calm down again - and a big part of this is having a good team behind you - a good GI and a good colo-rectal surgeon who has a lot of experience with crohn's.

So, your first step is not just to deal with the abscess, but also to get into the care of a good caring GI and colo-rectal surgeon. You have a lot of medication options that you haven't tried yet. Salofalk is considered a maintenance medication I think, and isn't the best at inducing remission. Also, if you have a lot of urgency, you probably have some inflammation in the rectum, which can cause all the feelings of urgency and tenesmus - so you probably need an enema or suppository like Canasa (don't know what it's called in Canada if that's where you are).

Also, normally to get a flare under control, doctors usually use a tapering course of steroids. And if you Salofalk, and mesalamine enemas don't keep you in remission, the doctors may try an immune suppressant like Imuran or 6-mp or methotrexate. If all those fail, they'll try Remicade, Humira, Cimzia etc (anti-tnf agents). Or a combination of the above. Also, there are steroid foam enemas that can help heal the inflammation in the lower end of the colon without the systemic side effects of steroids (as much). So, you have to work with your GI to figure out the right mix of medications to help you into remission and keep you in remission for long periods of time.

As far as the abscess goes, you probably need some antibiotics, in addition to the seton and drain.

Don't give up hope - there's still a lot of treatments that you haven't tried to keep this disease from ruining your plans. So, hang in there, and I hope you get to see a good doc soon, and get the help you need.

((Hugs))
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/6/2009 9:03 PM (GMT -7)   
Hi....i just have to give you some hope because you really need it...you do not have to keep a seton in forever..because once they are in long enough..usually the fistula drys up and the body..will naturally push out the seton...and you will cope if you need one...and find a way to do all the things you used to do..and its only temporary...just remember to ask the surgeon.what their plan will be for you...and how much muscle is involved in your fistula...write down all your questions and just breath it will truly be okay...you will find a way..to get back to doing the things you used to do..and you can still date...because you don't even have to tell someone you have it not too mention..any person..who is going to be judgemental..because you have a health problem..is just a jerk anyway..and you don't need them...just remember keep soaking..take all your meds...get a shower sprayer...and baby wipes..some ointment...keep the are dry..and report anything bothering you to your doctor...and try to see if you can get on Remicade..its AmAzing....!!!!!! Just keep telling yourself..it will really be okay...hugs*

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade

 


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/6/2009 9:35 PM (GMT -7)   
Thanks for your responses so far.

I think I need to re-explain a few things. Before I was on medication I never had any flare ups for 12 years and no serious urgency. I really only had diarrhea that caused some cramping - this came on after eating certain foods and during stressful situations (long car rides etc).

After diagnoses, I was put on meds (Salofalk) and that is when things got bad - the flare up caused this abscess. The straining from being in the washroom caused the fistula that ultimately caused my abscess. This all happened before my GI took me off of my meds - and NO he didn't put me on any meds to replace the ones he took me off of. As I mentioned - I am currently having no issues with my bowels. Normal movements 3 times a day - just this stupid abscess and fistula. From what I have been reading I most certainly need to be on some sort of medication to prevent this from happening again.

I am currently on disability leave through work - my benefits are covering everything. I just have to hope and pray I don't lose my job because if I do, my treatment options will be limited. For anyone in Canada - do you know of financial options available to ensure I get the best course of medication available?

Also, my surgery is scheduled for next Wednesday (I just hope I don't have to go to the ER and have this abscess lanced again to release pressure until the surgery) - If I don't see the surgeon before the surgery how can I ask all the questions I have?

how do you all cope emotionally with this?

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/6/2009 10:10 PM (GMT -7)   
If you still have questions that need to be answered, I would advise you to refuse to consent to the surgery until you get to speak with the surgeon. This might just involve a five minute chat before they put you to sleep, instead of anything too major. Please don't be afraid to speak up! This is your body, and it's important that you feel informed and at peace with what's happening.

Yes, it is tough emotionally. Talking to the people here at HealingWell has made me feel a bit better about my fistula and seton: I hope we will be able to help you too.

Ivy.

ps. Have you checked out the fistulae link in my sig?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/6/2009 10:18 PM (GMT -7)   
I haven't but I will now.

I was laying in bed wondering to myself whether I should go to the ER tomorrow and have some of this pressure released. If I do, I will endure some of the worst pain ever being forced to sit in a waiting room for hours and then have them inject local freezing that may not take to lance the abscess and open it up more again. Thanksgiving is Sunday and I'd like to be able to have a semi pain free dinner. I know that if they lance it tomorrow almost all of the pain I am enduring now will be gone. What would you guys do? Lance it to get through until surgery or grimace through the pain until next Wednesday to avoid the pain endured at the ER? The lancing itself takes maybe 15 minutes - I'm not sure I could do it awake again.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/6/2009 11:28 PM (GMT -7)   
Do you have any pain meds that you can take at home?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/7/2009 4:58 AM (GMT -7)   
no pain meds - I'm allergic to almost everything out there but morphine. They always balk at giving me that outside of the hospital. I think I've decided I would much rather go have it lanced again and have a week free of pain before the seton is put in. It may help the final healing process as well.

bella_sky
Regular Member


Date Joined Aug 2009
Total Posts : 90
   Posted 10/7/2009 1:40 PM (GMT -7)   
I agree that trying Remicade as soon as you can sounds great, it gave me so much hope. I also had friends bail, it sucks. But this community is very caring and its good to hear that you are finding another doctor and getting seton lanced to help with pain. Best of luck to you hun!
dx w/CD finally in July 2009, currently taking pentasa, entocort, cipro, flagyl, probiotics, celexa, bentyl, biofeedback.
 
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change" Charles Darwin


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/7/2009 1:56 PM (GMT -7)   
Well, I went to the ER this morning and had this stupid thing lanced again. The only thing I find odd is, nothing is draining out of it - even after having it lanced... it's almost as if there is too much pressure built up for it to release. I guess I don't have too much to worry about. Pressure can only build up so much before it lets go on its own right? The opening is there to allow that. I'm confused.

Also, if I'm experiencing this complication so soon after diagnoses (yet the doctor says I have mild to moderate CD) how fast is this going to progress for me? I know everyone is different - but if I go for the big guns for help (Humira or Remicade) what will my options be later on in life if they stop working?

Also, on a side note for those of you who have had a seton put in, what is intercourse like? For those who have returned to work with it, how do you keep it clean while out and about?

Post Edited (farfrmnormal) : 10/7/2009 3:11:36 PM (GMT-6)


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/7/2009 3:06 PM (GMT -7)   
Reading about daily living with these setons isn't making me feel any better about getting this thing put in. All of the crap you have to have with you even when you go to the corner store just in case you have to make a bathroom stop. ***... I can't go south with this thing in there!

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/7/2009 6:04 PM (GMT -7)   
Whoa now! Hold on! I have had my seton in for 3 years and I love it! I have not had an abscess since. I do whatever I want whenever with it! I started working out 1 week after it was put in. I have no pain with mine. I do have some drainage, but I buy 4x4 gauze sponges from a medical supply store. I fold 2 of them in half,and tuck them up against the fistula opening in my butt crack. It is held in place by my cheeks, and I just change it whenever I go to the bathroom.

When I first got mine I asked my surgeon about cleaning it, and I told him what I was doing (getting in the shower after every bowel movement and cleaning it with a handheld shower and so on). He told me to quit being so anal! lol And when you really think about it, the drainage comes from your bowel anyway, so I just wipe as any normal person without a fistula/seton wipes, and it works great!

After I first had it inserted I would soak in the hottest water possible as many times a day as I could for the first few weeks. This helps promote healing.

Once again, there isn't anything I don't do...I went jet skiing this summer, tubing, swimming, and I have an active sex life! Sex is just like before the seton. So don't worry about something that hasn't happened yet. More than likely you will tolerate it well! Keep us posted.

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/7/2009 8:56 PM (GMT -7)   
Well that is certainly good to know - I have not read much around here about people finding good in these things other than they prevent abscesses in the future. Most complain about complications and pain. I'm glad that there is a good story to come from this. May I ask why it has been in so long? Do you think yours will be in for life?

I was reading over my documents and they say EUA + seton and abscess drainage. I read that EUA stands for Exploration Under Anesthetic - so I'm guessing this is how she will determine whether there is a fistula etc. I am crossing my fingers that I simply have an abscess without a fistula. This would be best. Or if there is a fistula it is small and that she feels it can heal on its own.

Have your procedures been out patient?

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 10/8/2009 6:35 AM (GMT -7)   
Hi Farfrmnormal!

I was quite sick before I got my setons. I started improving immediately once I got them! My first abscess sounds similar to yours. I had a lot of cellulitis because I had ignored the abscess for too long. Cellulitis is deep tissue infection. A fistula formed and the abscess drained, but the whole area was still very infected. When the doctor tried to drain the abscess, there really wasn't any fluid there. It took several months on flagyl and levaquin before the cellulits was healed. I also had a lot of edema (fluid and inflammation), which took quite a while to get rid of.

Now I am doing great!! I love my setons and have learned to live with them just fine. It may sound weird, but I consider myself blessed to have them. I can't imagine what it is like for people who struggle with abscessess but live in parts of the world without this type of medical treatment! Please take heart that it will get better for you. I learned from others on this forum that the first year or two are the worst. Your quality of life will improve once you get properly treated and get on meds, and things have a chance to heal. Unfortunately, it does take a long, long time to heal down there. But it will heal. Please also remember that people who frequent this site are often the most sick. Many people never are severe, or have one problem and then never another one. So please don't be pesimistic about the future!

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/8/2009 7:04 AM (GMT -7)   
Yes a EUA is an exam under anesthetic. Basically they will insert an anoscope and look around. Locate the abscesss, open it up, drain it, clean it out, and leave it open to heal from the inside out. Then dye will be injected into the abscess, and your surgeon will look in the anoscope to see if he sees the dye inside. If he does, then he has found the fistula opening and will more than likely put a seton in. This is what is done when I have my abscesses.

As far as why mine has been in so long...the course of my disease is fistulas, unfortunately...I'm really prone to them. It is totally my decision to leave it alone. I have so enjoyed being pain/abscess free. I'm afraid if I take it out, it won't close and I'll be back to the abscesses, pain, and surgery again to put a seton back in. And I don't like the unpredictability of waking up one morning with "the pain", and having to rearrange my life for the next week. My surgeries have been outpatient. And I always ask for a drug mix to put me out instead of general ansth. The first couple times I had general...I just don't like the breathing tube, and waking up from it, so since the surgery isn't long or complicated my surgeon is fine with the drug mix to put me out.

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/8/2009 7:18 AM (GMT -7)   
thanks for all of the replies.

So I was woken up at 445am with throbbing from this abscess - it keeps growing. The lancing yesterday didn't work and my surgery isn't until next Wednesday. Can my body handle this thing until then? It is draining, but not enough to provide relief. They obviously can't cut any deeper than they have in the ER or else they would have. I have some oxycodone here that I can take. Will it get me through until then? I'm afraid of this thing growing so much that it spreads more. I was prescribed flagyl again but it has given me such bad diareha that its keeping me on the toilet and its excruciatingly painful. What can I do to avoid this diarrhea? This is the second time I have been on it in the last two weeks and I'm not sure my body can take it anymore in combination with this abscess.

Fall - you mentioned cellulitis - how long did you leave your abscess before you had it looked at to get this cellulitis? I only had mine a week before I had it lanced the first time. It drained almost completely the first time and then the flagyl ended and it started to fill again. So here I am 5 days after the first flagyl ended and being prescribed it again. I'm afraid of what its doing to all that good bacteria. Should I be taking a probiotic too?

I really don't know what to do between now and next Wednesday - could I die?

Post Edited (farfrmnormal) : 10/8/2009 9:02:19 AM (GMT-6)


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/8/2009 8:16 AM (GMT -7)   
If she knows you have an abscess why is she making you wait?! My surgeon's crohns patients get immediate attention. You don't want that abscess bursting in you...if it does it could cause sepsis, and yes you could die. I am NOT trying to scare you, but you need to be aware of that. Have you tried calling your surgeon and letting her know what is going on?

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/8/2009 8:19 AM (GMT -7)   
yes - I called this morning and she is not on call and has no OR dates booked between now and next week.

I'm really scared because I don't know what else to do.

The area is extremely hard. There is an opening for it to come out since I had it lanced yesterday, its just not coming out.

Post Edited (farfrmnormal) : 10/8/2009 9:24:36 AM (GMT-6)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 10/8/2009 1:37 PM (GMT -7)   
The cellutitis can form at the same time as the abscess -- it is just tissue that is infected. It can go septic too, unfortunately. Regardless of whether it is cellulitis or an undrained abscess, I really think you need to call your doctor's office back and press them for help. I know it is hard to be assertive when you feel so helpless and miserable! But you need to let them know in no uncertain terms that you need help. NOW. Wednesday is a long way off if you are in that much discomfort! She should have a back-up doctor or she needs to make arrangements for you to get in with a colo-rectal surgeon immediately. The office can all her!! Who cares if she isn't on call! If she wants you as a patient she will help you when you are in distress. Or call the ER and ask them if they can get you in to see a colo-rectal surgeon immediately -- hopefully one with experience in CD!

Please let us know what happens! Praying that you can see the right doctor who can take of this now!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/8/2009 1:48 PM (GMT -7)   
Well - there aren't any colo-rectal surgeons in my area. The closest one is over an hour away and a referral needs to be sent out before I can see one.

If I have to I will go back to the emergency room and have them admit me. I am checking my temperature regularly and checking the area for redness etc.

Unfortunately the way things operate here in Canada aren't always the best. It may be free, but a lot of times you get what you pay for :) Which is often nothing. I do feel fortunate to have a doctor, surgeon and specialist as there are almost 25,000 people in my city that don't even have a doctor. There are no back up doctors - let alone back up surgeons to cover for a doctor when they take some time off.

I finally got the call from the office of the new GI I was referred to. I'm hoping he can point me in the right direction with regards to a colo-rectal surgeon.

I have broken down and taken half of a percocet - the pain is virtually gone and the discomfort is as well. I am continuing my sitz baths as often as I am able to. I have had 4 already today with plans of more later today.

I am on flagyl so I'm hoping it will ward off sepsis until next Wednesday. But again, if I get too uncomfortable I will head back to the ER and let them keep me comfortable until Wednesday. Will the flagyl help prevent sepsis?

Its amazing how much pain relief can help with positive thought.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 10/8/2009 3:12 PM (GMT -7)   
Flagyl is excellent for killing the types of bacteria that live in the colon and rectum. I believe flagyl and levaquin saved my life. It really is excellent, but it can have nasty side effects. One is the diareha you mentioned you are having. Others are really bad taste, hyper-emotionalism, and strong anxiety. I just sat there weeping at one point. Once I realized it was the drug, I could handle it better! Here is a website where people talk about their experiences with flagyl:

http://www.askapatient.com/viewrating.asp?drug=12623&name=FLAGYL

It is a "big gun" antibiotic used for very difficult infections like yours. Sometimes you just have to live with the side effects. I did really like one side effect-- complete loss of appetite. In fact, I got nauseous just thinking about eating. I lost weight which for me was a good thing!

You are doing the right things - flagyl, sitz baths, monitoring your temperature. I suggest if the pain really increases or you get a temperature, go to the ER. And no shame for taking pain meds. This is the type of situation they are there for! And this stuff really hurts! So don't feel badly at all.

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/8/2009 3:30 PM (GMT -7)   
I suppose I am lucky then. I don't have a bad taste in my mouth, nor do I have nausea. I do have the emotional problem you mention. I laid in the tub at 4am this morning just crying and wondering what the heck I was going to do. I didn't know that was a side effect. Now that I know I will be more aware of this side effect. The first time I took the medication I didn't have any diarrhea. This time I do - but, my surgeon said I could take Imodium to stop that from happening. Which is nice, considering diarrhea right now is not something I want to deal with as it makes the abscess hurt more. Sometimes I can't tell if its the antibiotics or something I ate that caused the diarrhea. One side effect of the pain killers is constipation so perhaps that will balance out the two? *lol*

I looked up the symptoms of sepsis and I'm pretty sure I will be able to tell if I am encountering this problem.

I had never taken pain killers before - I was afraid of the side effects the could cause (I'm allergic to so many meds that I feared I would swell up and get hives like I did with codeine). It is also comforting that I only had to take half to numb the pain.

So like you said, I will continue to do what I am doing until the day of surgery and will keep you all posted.

On a good note, I got a call from the new GI's office today. I have an appointment at the end of next month. I know it's quite far away, but I am at least one of his patients now and could insist on seeing him sooner if something came up. One great thing about this doctor is he used to be the head GI doctor at Mount Sinai in Toronto but stepped down to help work in the Inflammatory Bowel Disease Group. This group is a group of doctors that focus specifically on IBD. My cousin was on deaths door and this doctor saved her life. She has had two resections and since seeing him she has been flare free and med free since 2003 with no progression of her disease. No new lesions and/or inflammation. There is also another doctor in the group that is a GI and colo-rectal surgeon. I feel comfort knowing that my doctor is part of this group. It will take me about 1.5 hours to get to Toronto for my appointment but it will be worth it. I really learned how bad my previous GI is today. When my new GI's office called she told me that his notes were vague and nowhere indicated I even had crohns. A not so great thing is, I may have to have another biopsy and colonoscopy done because my previous GI was so inefficient and vague! I am appalled that this doctor even has his license still considering he is the doctor that almost killed my cousin because he refused to do surgery.

Anyhow, thanks for keeping my mind at ease all. I'm glad I found this forum.

On a side note - my surgeon has given a back to work note to my place of employment for November 11th, which is 4 weeks after the surgery. Is this a reasonable amount of time given I have a desk job and sit most of my day?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- Put on Salofalk, UGH caused more bad than good.
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA & possible Seton surgery Oct 14-09 - WISH ME LUCK

Post Edited (farfrmnormal) : 10/8/2009 4:53:31 PM (GMT-6)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 10/8/2009 4:29 PM (GMT -7)   
Well maybe that bad doc did your cousin a favor by not operating. If he was that bad, who knows what damage he would have done! My first surgeon was an idiot. I ended up with two incisions I didn't need! Terrible!!

As for the time for returning to work, it all depends on how bad the abscess is. Four weeks is probably average, and I'm thinking your doctor can extend it if necessary. The typical treatment is to open up the abscess, scrape it out, and leave it open to heal from the inside out (no stitches that can trap infection). Drains are not used (they also can trap infection) unless the abscess is very deep. I must warn you the incision may be deep and nasty looking. Mine were huge, but amazingly they didn't hurt much after the first week.

After surgery, you may be worried about how you can keep it all clean. Be assured that the body knows how to deal with the "stuff" that drains out down there. It is amazing we don't get more infections down there! The best advice I can give you is to get a hand-held shower sprayer. I sit on the side of the tub (one foot in the tub and one foot outside) and gently spray it all clean (they don't recommend using soap). I can't recommend it highly enough! Worth the price of a plumber, if you can't install one yourself.

The other thing I suggest is to spend your time now preparing for after the surgery -- once you come home. Get all your shopping done now. You will need sterile guaze pads (I use 4x4") and plenty of them. You could use half a dozen or more a day between covering the wound and wrapping the seton (if you get one). Freeze up some meals, buy/make plenty of soup, get all the laundry done, and get movies books and magaines from the library or rental store. I suggest happy comedies rather than dramas -- and no gory medical shows! Check out some older threads about caring for wounds after abscess surgery. Doing this prep now will help you feel prepared and more in control of things. Then just keep focusing on how with each day that with goes by, you are one closer to being well! We are here for you!

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/8/2009 4:42 PM (GMT -7)   
Thanks for the advice - I had home care for a bit after I first had the abscess lanced. I have some left over supplies from that - I have been using 4x4's as well. I'm guessing I will also have home care after this surgery as well - I think I will stock up on some 4x4's before though like you recommended. I am fortunate to be living at home and my mom will be able to do all the stuff for me around the house and we have a shower head that does come off. Won't the warm water in the wound sting? I suppose I should stock up on the epsom salts as well right?

With the 4x4's do you tape them in place or just let your butt cheeks hold them in there? Did the gauze stick to the wounds at all?

I've found underwear too restrictive and it gets in the way. One less garment to take down when you need to get your bottoms off as well.

As for extending my time off. I've already been off for 3 weeks and am on short term disability with my health insurance company to ensure I get paid. Its a pain in the butt trying to get them to extend my leave and actually pay me. So I will only hope that I will heal quickly and be able to head back to work.

Also, I have an acupuncture appointment scheduled for the Saturday following my surgery. Should I cancel that, or could it be helpful? How long will I be in bed for after the surgery? Days?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- Put on Salofalk, UGH caused more bad than good.
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA & possible Seton surgery Oct 14-09 - WISH ME LUCK
- No meds currently except flagyl and percs for pain


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/8/2009 5:48 PM (GMT -7)   
I don't tape my 4x4s in place...my cheeks hold them in nicely. :) Sounds like you are on the right track. You don't need epsom salts...just plain old hot water. The water never stung my wound..feels good actually. Soak as much as possible.
New Topic Post Reply Printable Version
32 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, December 08, 2016 9:09 AM (GMT -7)
There are a total of 2,734,676 posts in 301,233 threads.
View Active Threads


Who's Online
This forum has 151347 registered members. Please welcome our newest member, Marie34.
341 Guest(s), 16 Registered Member(s) are currently online.  Details
sheepguy, Bololidat, BnotAfraid, Chanymom, mikeb2308, Mouche, Serenity Now, Loutucky, Tudpock18, iho, Healing98, Sallyyy, joavila92, houseboy, Mustard Seed, YiyiBoo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer