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Harley Rider
New Member


Date Joined Oct 2009
Total Posts : 9
   Posted 10/7/2009 11:48 AM (GMT -7)   
Hi everyone. I'm new to this site even though I have had Crohns for the past 23 yrs. I am hoping to find some answers and some others experiances with Crohns.
I have never had to have surgery and have been some what lucky in being in remission for quite sometime until about a month ago. I started experiencing the classic abdominal pain and some mild diarrhea. I had been taking Pentasa (400 mg x 2), Nexium, Fish oil, low dose bayer aspirin for my heart. When I began this bout my Dr. put my on Bentyl 10 mg before meals and at bedtime as needed. Worked for a while. This last weekend things flared up and by noon Monday I was in the ER for severe pain.
Usual X-rays and than a CT which showed inflammation in the small bowel in the section where they cannot scope.
Today I went to the Dr. and she decided the Pentasa wasn't working and now I have to decide whether to do Remicade or Humira. She mentioned Imuran but I'm not so sure with the side effects. To make matters worse I may be getting laid off at work thus losing my insurance. Have to talk to them before deciding what to do.
 I know that there is no way to tell which will work best with out trying them, but what side effects bothered you the worse with what treatment?
 Sorry for the long story
 
Thanks
Diagnosed with Crohns in 1986. Have never had to have surgery yet.
Have the support of my lovely wife of 30 years who makes sure I stay on the right path.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 10/7/2009 1:01 PM (GMT -7)   
Quite a few people here -- including me -- have had very good long term results with the imuran/6mp family of immunosuppressants, with low side effect ratios. Before going on to biologic big guns, especially since you do not seem to be prone to fistulizing or obstrcutive disease after 23 years, I would sure investigate the imuran/6mp alternative. Worst case is that you have side effects or poor response, in which case you just discontinue the drug and move on to something else. I am also wondering if a short course of prednisone might not get you into immediate remission to let yuo move up to a next level maintenance drug. Overall your case sounds a lot like mine (mild to moderate CD without surgical complications, primarily in the temrinal ileum) and I have done very well on 6mp for some years now.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 10/7/2009 1:28 PM (GMT -7)   
I have been on Imuran since my diagnosis in 2007 and haven't had any issues with it. I have progressed to Remicade, although I am still on Imuran until Remicade fully kicks in.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/7/2009 1:55 PM (GMT -7)   
If you are laid off, you will probably be offered COBRA, continuing your health insurance, if you are based in the US.
 
So you would have the same coverage, but pay the entire premium yourself.
 
BUT if you are laid off between now and December 31, 2009, 65% of your COBRA premium WILL BE PAID for nine months after the layoff IF, married filing jointly, your adjusted gross income is under $250K.
 
More info at:
 
 

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/7/2009 2:58 PM (GMT -7)   
I have been on 6MP for over a decade, with some prednisone thrown in at various doses. But it does take a while for the 6MP to kick in so you would probably want to have some pred until it kicked in. Both 6MP and Prednisone are cheaper than Remicade or Humira, so If getting laid off and the cost of medication is a consideration, this might be your first choice since it would be cheaper and then if it doesn't work you could move on up the ladder.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 10/7/2009 9:34 PM (GMT -7)   
.....Would just like to extend a warm HW welcome to you........as you very well can see ppl here are very friendly and helpful.......stick around u will not regret it.... lyn
   
                                            DONATE ......HealingWell.com  
 
 
      WE have anxiety and panic.......................................Anxiety and panic do not have US
   Crohns.............Anxiety n  Panic...............Seizures...............Pyoderma Gangrenosum.....Fibro  
               
                   Fight the fight.............and then..............Keep on fighting
 
                                                   
                                                 LYN aka Howlyncat    .. ..........      
            Co Moderator.....Crohns..........Anxiety /Panic ..............Alzheimers                                                                                           


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/8/2009 6:28 AM (GMT -7)   
Hey Harley and welcome to Healingwell. One thing I wanted to comment on was the low dose aspirin. I tried that for a bit and it tore my stomach up. Maybe while in this flare you might want to stop it for awhile, as we are not supposed to take Ibruprofen or Aleve type products. They can cause bleeding in us.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 10/8/2009 12:44 PM (GMT -7)   
...Good info Nanners..that is so true and i was told exact same thing from Doc.....Thanks for the reminder...Lyn
   
                                            DONATE ......HealingWell.com  
 
 
      WE have anxiety and panic.......................................Anxiety and panic do not have US
   Crohns.............Anxiety n  Panic...............Seizures...............Pyoderma Gangrenosum.....Fibro  
               
                   Fight the fight.............and then..............Keep on fighting
 
                                                   
                                                 LYN aka Howlyncat    .. ..........      
            Co Moderator.....Crohns..........Anxiety /Panic ..............Alzheimers                                                                                           

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