Inflammation of the Small Bowel & Mesentery?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 10/8/2009 8:01 PM (GMT -7)   
Ok, here's the scenario..

Dx with CD 4 years ago. Failed all the lovely drugs (I think in my siggy), including Remicade, Aisle 12, Humira, and refused Tsyabri (No Cimzia because of reaction to Humira). Decided enough was enough. I have Crohn's Colitis, so my disease is in my rectum and sigmoid. Had the surgery. FULLY expected to lose my whole colon and came out with just losing 1/2 my rectum and my sigmoid. I now have a colostomy (likely irreversable, but anything is possible these days!) Took me a few months to get into the swing of it all. Finally adjusted about 2 months ago very well. Started Flagyl & Cipro daily for maintenance therapy (helps prevent constipation too!)

Ok, so last Friday, I went to ER with stabbing lower right quadrant pain. Something felt VERY off. Everytime I pee'd, I would feel like I just had surgery in my abdomen. They would push my left side and my right side hurt. They ALL thought it was appendicitis. Run CT, they can't even find the appendix because my SMALL BOWEL AND MESENTARY are swollen around it! WHAT?!??!?!

I was admitted for 5 days (still not sure why), jacked up on steroids (which my surgeon promptly dropped - not without doing some lovely damage - I've had few dizzy awful spells, cravings, greasy, etc). They cannot find a REASON for the inflammation? ALL my blood work is NORMAL. But, I still have this pain every so often. He wants me to follow with the GI and get scoped and possibly a barium enema.

I guess I have a few questions..
1) Could a stomach flu cause THAT kind of pain (I needed dilaudid to break through!) AND have a CT show inflammation?
2) Is there a link with inflammation of the mesentery and using Remicade/Aisle 12/Humira??

I'm quite confused...very worried as my surgeon led on that SOMETHING was up? But, I don't know what!

HELP!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/9/2009 5:49 AM (GMT -7)   
Sounds like your Crohns may be flaring. I doubt the Remicade or other meds would cause this, if anything they would have made it somewhat better. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 10/9/2009 7:45 AM (GMT -7)   
Nanners said...
Sounds like your Crohns may be flaring. I doubt the Remicade or other meds would cause this, if anything they would have made it somewhat better. Good luck!

The surgeon swears it's not though because all my blood work is normal?  Can your bloodwork be normal and you are still flaring?  I'm just at a complete loss.
 
And, what I meant by Remicade causing this.. is...the long-term side effects?  I know Lymphoma and RA are known issues...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 10/9/2009 5:16 PM (GMT -7)   
I had a similar incident and my doctor told me that our intestines move around in our bodies and he said mine was having spasms. I have not had anymore problems since. They just went away alone.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 10/10/2009 3:03 PM (GMT -7)   
Kaycie, yes, it's definitely possible to be flaring yet have completely normal bloodwork.  That's happened to several people on here, including me.  Doctors *should* know this, but not all do.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 10/11/2009 1:05 PM (GMT -7)   
Wolfie40 said...
I had a similar incident and my doctor told me that our intestines move around in our bodies and he said mine was having spasms. I have not had anymore problems since. They just went away alone.


I sure hope so!

I do have to get scoped, but this reassures me this may of just been an "incident" I'm now on Asacol as a preventative too, so maybe I just needed a little extra since all I was on was Flagyl & Cipro daily.

Here's hoping nothing more pops up...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old

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