Post Edited (Catasmom) : 10/9/2009 7:42:37 PM (GMT-6)
Tried the first can of Peptamen Vanilla. Out of the can she did not like it, but GI told me I could make a smoothie with some ice. It was much better. BUT it gave her cramps... any idea why?
Moobydoo, thanks for the empathy!
Cata is not loosing weight now. In the past flare she lost about 15% of her weight. She responded positively to Prednisone and 6MP, but they are not working now. She has been flaring since June, and it has been a big struggle to keep her eating and growing. Her diet is not balanced, for she has to be on a low fiber, bland diet. The GI accepted my suggestion of enteral nutrition (by mouth or tube, depending if she can handle the 7 cans she needs a day), so we are tasting this weekend. I am hoping this works, because the next thing is Remicade (minus 6MP, and prednisone), and I don't want to go that way.
So I just ordered the same formula you suggested, Cata seemed to like the comment of a 16 year old about the product on the site, so she might be more willing to go with this one. We'll see. I am crossing my fingers.
What about your child?
Nice to hear form you. did you get the samples yet?
Cata is tolerating the Peptamen, vanilla!!!!
Post Edited (Catasmom) : 10/10/2009 4:06:48 PM (GMT-6)