Those with perianal crohn's skin tags (as well as perianal disease in general, fissures, ect)

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/11/2009 11:14 PM (GMT -7)   
 
 
I just had to post this link...for yrs of having the internet it's been impossible for me to find pics and clarifications regarding the anal skin tags in particular...I found the above link to be pretty good, although I find it hard to believe where it mentions some with UC can have these tags (unless I'm missing something and they mean UCers that have had hemmie issues can have them)...but all in all I thought I'd share this because this is the first time (and I've often googled) that I've found such indepth info...I will add I was a little concerned where it mentions getting them removed surgically as well cuz every doc I've ever discussed it with advised STRONGLY against it saying they'd never fully heal and I'd likely be left with an open wound which could in turn cause even more perianal issues.
 
I hope the link works when you click it, if not copy and paste into your search engine, I think it's well worth it...off to look at more links.
 
:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/11/2009 11:20 PM (GMT -7)   
Also, after reading the info from the above link I now have a better understanding as to why "holding it in" is such an issue...some of you know that my tags were misDX as being hemmies and they were banded while in a flare (large and hard, not soft like the ones in the pic from the link) which left them in a flared state, plus I've developed a few more (ince them getting banded) over the 18 yrs that I've had this DD....and another link to my situation is where is mentions that many (it gave a % but I forget now) patients CD actually start out with these anal skin tags as first symptoms before affecting the intestines.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/12/2009 9:22 AM (GMT -7)   
Hi,
I am having a skin tag removed on Oct 20th..during a primary fistulotomy..god willing..that its not too involved in the muscle...mine has shrunk down considerably..due to Remicade...i don't see why it would be as risky as you are stating...unless someone decided to remove it..while it was so inflammed..but its extra skin..its not part of the anus..it doesn't belong there..i know that Fallcolors had one removed and she said it was no big deal...not too mention...my surgeon is the director of colon rectal surgery..at Tufts...he said its simple..easy and not complicated...so i don't understand..why...you feel that it is risky..but i do understand..that it seems that yours were mistaken..for being...hemmys..so yours were addressed in a manner in which they shouldn't be...i just feel that your post..may scare others who have them..and are considering getting rid of them

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade

 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/12/2009 10:21 AM (GMT -7)   
Hi frog,

I was told that it's diseases tissue, mine come right from just inside the anus but because they are flared (large and hard) they appear on the outside of my anus...they're not actual tags around the anus from the outside skin but instead from just inside (the rim) of the anus.

I'm going by my experiance and what I've been told by 4 GI's and colon and rectom surgeon (over the last 18 yrs of me having them)....and they can be scary, I'd rather keep mine then have an unhealing wound down their for the rest of my life. It's happend to plenty of others and I bet they definitely would go out of their way to warn others...but getting them snipped off when they are not flaring (large and hard) is suppose to be safe according to what all my specialists told me, but that doesn't guarantee they won't grow back either.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/12/2009 12:22 PM (GMT -7)   
So I am not sure what exactly I had. Just before I was diagnosed I had what every doctor I saw told me were hemmies. I eventually found my way to a well respected proctologist, he practiced in Boston and New York City, he did laser surgery on hemorrhoids and had I the surgery. I have never heard of anyone else on here mentioning laser surgery. This was 21 years ago. At my follow up appointment, I mentioned that my Mother had CD and you could see the light bulb go off over the doctors head. "That's what this is". So I actually was diagnosed with CD then, I had fissures and fistulas and had had something removed by laser surgery. It had been immediate relief from the constant pain. Clearly I was flaring at the time but it was successful surgery as far as removing the inflamed tissue. I still had something going on that needed treatment, but I could finally go to the bathroom without screaming. The doctor has long since retired and passed away, but I'm still surprised that this type of surgery has not become more main stream. Or that I have never heard of anyone in fact ever having it at all.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/12/2009 12:35 PM (GMT -7)   
I asked if I could get them lazered off as well but was told no because of the condition mine are in (flaring..large and hard) I just keep being told to leave well enough alone, problem is they're not "well enough" but I guess in their opinions I could be much worse off if they're messed with.


:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/12/2009 3:36 PM (GMT -7)   
Thanks for the good info pb4! Skin tags were my first symptom...I thought it was a hemmie...I had a colorectal surgeon tell me I more than likely had crohn's disease when he saw my skin tags and he tld me that's what they were...but it took over a year for my gi to give me the crohn's diagnosis...he was an idiot, and I have since moved on to an awesome one. Remicade made them totally disappear!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/12/2009 3:44 PM (GMT -7)   
Hey chroniemomx2,

I know what you mean, I'm on GI #4 myself, but I had every GP I ever saw tell me mine were hemmies too and same with the colon and rectom surgeon that did the banding on them (and I even told her how my bowel habits were changing...how I was going more than once/day and normal for me was only one/day, but she sluffed it off and went ahead and banded them anyway)...I went through so much pain and discomfort with them about a yr after I had my first baby, they just stayed and never went away (when I was a teen they would come and go all on their own with absolutely no other issues) it was the yr after I had my baby that they became difficult, then a month after the banding my CD came out full blown internally (TI, colon and rectom), it was then that I saw my first GI and before he even put the scope in he told me I had perianal crohn's skin tags and was disgusted that a colon and rectom surgeon banded them as if they were hemmies.

For the longest time I would have to poop in my tub filled with water cuz the pain was excrutiating...I developed unbearable pubic bone pain too, all related to the horrid inflammation I had going on "down there" and the disease progressing for me internally...I'll never forget it, it was worse than natural child birth with no epidural.
 
I'm so glad for you that the remi cleared yours right up...I too was told if I hadn't had them banded while they were in a flare that cortifoam rectal meds would have more than likely shrunk them back down to nothing, very heartbreaking to here, now, and for the last 18 yrs I've been screwed with these tags.

:)


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Post Edited (pb4) : 10/12/2009 4:48:26 PM (GMT-6)

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