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Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 10/12/2009 7:41 PM (GMT -7)   
 
 Hey everyone,
    I have not been on a long time but have read forum off and on. I have struggled to work and live some what normal raising 3 teens on my own, 1 who graduated last may. I have not got any help from dr.s but from myself. I have recently tested x2 very high for the "Brewers Yeast" panel. But last GI doc says it's bull and said all this could be mentally triggered. I wont repeat what I told him!! I work with dr's everyday I know a push off. Anyways my reg. M.D. has given me darvocet for bad stomach flare ups and 1 ativan at night. I took prednisone for a while and a GI dr said it was bad if im not offically diagnosed. I did get off them, sometimes I felt better and then they made me feel worse. I have a Nov. appt. with a Chrons specialist.
 
I live on crackers, water, creamy peanut butter on bread, boiled chicken, mash potatoes, and maybe peas, and green beans. I have joint pain now, my teeth are cracking, gums bleeding and sores on gums, lw back pain constant, and left side pain constant with burning and gassy feeling pretty much 24/7 . I want to have pill cam done that what Im gonna ask for. From my past notes I do work for a ob/gyn dr. Last year I was on 2 month leave and was put on liquid diet for 3 wks I thought I was gonna die. I vomited nothing but bile for weeks and self healed my self and quit all meds. My reg MD no's somthings wrong I just cant get the right doc. Basically Im so tired and weak from not eating, blood sugar drops always, I also have left arm weaknes and dexterty problems for months. This has been going on 3 1/2 yrs and still no help(hopefully in Nov.) with blood test to help. It has destroyed my life and my relationships. I cant hardly go anywhere out of my town or just to work and home. I do best if I dont eat all day. And finally I think the depression of this is finally taken a tole on me. I just want to know if anyone else feels this way and has had simular problems. Thank you all for what you say on this site, it helps people like me.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/12/2009 8:59 PM (GMT -7)   
Whatever was in that liquid diet plainly is bad for you. You need to find foods that you can eat. The teeth cracking could be a calcium deficiency or it could be stress cracking from grinding your teeth - or both. The left side pain and the gas and acid reflux all sound like small bowel Crohn's. Your reaction to the liquid diet is a possible partial/full obstruction likely due to inflammation - I'd guess due to a bad reaction to something in the liquid diet. Looking at your diet, there are several possible foods that can promote bacterial overgrowth. Have you tried looking at the SCD plan? If it works for you, at least you will have an idea of what is safe to eat. For more, see: http://www.scdiet.org/ or http://www.pecanbread.com/

The second one is aimed at parents of kids who are sick, but it has a lot of good info on its pages.

Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 10/13/2009 3:25 AM (GMT -7)   
Thank you for responding. Ive had tons of test of the last 3 yrs, colon, and endoscopy 1st one 3yrs ago showed only blood splatter in stomach and petica around fundus with neg biopsy. Last endo was 2 yrs ago finding nothing. My previous test in past were postive at 1 time for H pylori but gone there was inflammation but not at time of last endo. Recent blood test for AGG and AGI (Anca Panel was elevated and saccharomyces cervisiae was out the roof, 2nd test 6 months later(recent) was neg for Anaca Panel and out the roof for saccharomyces cervisiae still extremely high, thats why there sending me to new Dr. I was a normal 136 pds at 5,2 inches and now for a year I cant get above 114 pds. Also this year became lactose intolerant.
 
I found chicken is the only thing I can some what tolerate. I cant even eat hamb. meat anymore. Tried again, was sick for 2 days. IGG is 70.3 and IGA 39.7, normal is 0.0-24.9.Everything feels in the stomach and this last 6 months always have left side pain and bloating gassy, like I can feel gas and food try to push through, thats why I want pill cam done.I can still handle a few pieces of sm. choclate once in a while, but if to much Im sick for a day or 2. I dont know! Im neg for Candidia and celeiac's. My aunt had celeaicas disease and just died of pancreatic cancer in June, also my mom and her other sister both have auto-immune disease, mom had guillian barre and aunt has psroiasis. I told the dr.s I have alot of auto immune problems in close family relatives but they didnt care. Its so hard to work in the medical field and care for sick people when you can get anyone to listen to you.. I also cant handle hardly any caffenine, drink de-caffe coffe in morning so I can go to bathroom everyday or im just sick and miserable if i dont go to bathroom.
 
Thank you so much for your info. Its most appreciated that you took the time for me. idea

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/13/2009 12:25 PM (GMT -7)   
I'm so sorry that you're having such issues...you definitely need to experament with more foods, try cutting as much refined sugar, animal fat, caffeine, processed foods/beverages and fast foods completely out of your diet (if you have any of them), you definitely need to see your dentist and your GI...

Maybe see if you can try some of the things I have listed in my sig....or at least the fibre supplements and probiotics daily if nothing else.


Feel better soon and keep posting, you don't need the depression to over-rule you too...been there, done that and it was no fun.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/13/2009 1:50 PM (GMT -7)   
The S cervisiae is common bread yeast - as you may already know. From that, you need to eliminate bread and most store-bought crackers, cookies and so on, since most have yeast in them. Sugar is another one to eliminate. You should use only honey (and use it sparingly). Eliminating sugar will be extremely hard because the yeast will consume any sugar you eat and so you will be low on blood sugar until you adapt. Carbs also feed the yeast, so bread, rice and potato are out and you will need to count your grams of carbs. Look for some background on the Atkins diet or the Specific Carbohydrate Diet (the library usually has books on these diets). Eating a very low carb diet for a period should help and you will convert to getting your blood sugar from proteins and fats after a short (but testing) time. You might also try taking S boulardi - another yeast - but it helps to eliminate the problem yeast.

Usually, the only way that such a yeast problem occurs is an immune deficiency. The most common cause of immune faults is a deficiency of vitamin D. You might try taking 2000 IU of vitamin D a day and also add a multivitamin, since zinc is another immune system requirement. You are very likely deficient in multiple vitamins/minerals because of your condition, so a good supplement plan should be a part of your recovery. You might try looking for a doctor that is willing to help you with dealing with vitamin and mineral deficiencies, since testing is very valuable.

Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 10/13/2009 5:12 PM (GMT -7)   
Thank you for your responses. It seems until I see this new GI dr that the Specfic Carb diet is the one everyone finds useful. I have just tried to research and manage on my own so I can get through work everyday. Its true, I live on peanut butter crackers, wheat bread with peanut butter, sugar substitue in coffee, chicken, rice and peas and green beans. Sometimes a turkey sandwich plain. I will slide some sweets in once in a while. But I dont eat a (MEAL) until im at home at night. Which always follows no matter what it is with bloating, gassy, stomach pain and left side pain always.
Im not sure whats up with the left side the last 6 months, but it always hurts and feels like gas bubbles are filling up and moving around. I have medicaded myself to function to take care of 3 kids alone and work, but I can tell my body is slowly starting to give up. Every couple of months new symptoms start to arise. Honestly Im getting really scared and not telling anyone. But I know my body has been fighting this for 3 yrs and its taken its tole. For over 8 months I cant weigh over 114, I might gain2- 3 pds in a week, but always lose it by the next week. Im just praying that once again this dr. might be able to help me. Does this to anyone else with my problems, symptoms and blood test sound like I have Chrons. Like I said my mother and both her sisters(AuntS) all have auto-immune diseases. I just know I dont remember anymore what it feels like to wake up with a normal feeling stomach, and I hate the fact I want to cry so bad just watching people eat or things on t.v. and wish I could do that again.I defentily in going to get the diet info and start on that and see what happens. I realize it seems like Ive been feeding the problem. THANK YOU ALL!!! idea smhair
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