Remicade: low blood pressure & gittery feeling

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Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 10/14/2009 5:40 AM (GMT -7)   
I just had my 5th rem. infusion a few wks. ago and during my infusion I had low blood pressure, nausea, and I also felt very gittery.
I was quite scared! I felt like a druggie.
the nurse said it may have been going thru me too fast so she slowed down the infusion but I still didn't feel well.
about 6 hrs later I was done my infusion.
I do take tylenol & gravol 1 hr before my infusion starts. [as directed by Dr.]

I had the same symptoms before during another infusion as well.

I am beginning to wonder if Remicade is the drug for me, as I haven't seen any REAL results yet. cry
My BM's have not reduced and I still have rectal pain.
CT's and medical exams have ruled out absesess.

Has anyone else taking remicade experienced this? Please share your stories/thoughts. Thanks! :o]
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 10/14/2009 1:33 PM (GMT -7)   
I get low blood pressure during my infusions (I don't know blood pressure numbers, but I know my goes down to 80 and they won't let me leave the office until it is back in the 90's). They make me drink water all during my infusion to keep blood pressure up and sometimes make me stand up and move around a bit.

I don't get the nausea.
want_2_be_well
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.
  
 


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/14/2009 2:29 PM (GMT -7)   
want_2_be_well said...
I get low blood pressure during my infusions (I don't know blood pressure numbers, but I know my goes down to 80 and they won't let me leave the office until it is back in the 90's). They make me drink water all during my infusion to keep blood pressure up and sometimes make me stand up and move around a bit.

I don't get the nausea.

I get low pressure when I've gotten iron infusions.  The extra water is a great tip, I never thought of that.  Thanks!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


aipgirl
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 10/15/2009 7:00 AM (GMT -7)   
Sofee,

I had the same BP problem with Remicade. I would also get tightness in my chest. They finally, after 4 infusions, had to discontinue the treatments.
It's a shame too, because I did feel better. (other than my immediate reaction to the infusions)
I also had nausea after the infusion.
40yo female 
 Crohn's dx: about 3 yrs but been sick for about 9 years.  No surgeries.
Have sister with crohn's dx 25+ years.
 
Currently on 100mg 6mp and miralax
tried remicade but could not tolerate

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