Women-Tell me if this is overreacting?

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LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 4:51 PM (GMT -7)   
I'm having a bladder 'flare up' yet again. It's so bad now that I have to pee 5 seconds after I've used the restroom. It's basically restroom->strand up->restroom immediately again.
I was in there for 4 hours (from 12 to 4 am) two nights ago. This is absolutely ridiculous. I'm taking cystex until I can get into a doctor, but I'm taking more than it advises (still barely helps).
I called every number for the hospital urologists, and not a single one picked up the phone. Apparently they have no call waiting anymore either. Tried multiple times, no answer...
I called the clinic where I got my recent procedure done and no answer there either.

Is this too small to go to the ER? I'm losing sleep, and I'm missing class to 'go' to the restroom. Half the time it's barely anything. Until the cystex kicks in it's basically walking around with the perpetual feeling that you have had to go for the past 45 minutes and still can't. Wonderful burning sensation :/

I tried cranberry juice...worked for about an hour, cystex works for about 2 but says take two tablets three times a day, etc. etc.

I have midterms coming up and papers to write. I cannot be sitting in the restroom waiting for nothing!
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 10/14/2009 5:04 PM (GMT -7)   
I had a UTI/Kidney infection a few months ago and things are not back to normal yet. When I was at the urologists office for the follow up appointment right after treatment, I asked why I was still going ALL the time if the infection was clear. She explained that things are all raw inside and it takes time for it to calm down, so even if the infection is gone you may still have symptoms for a while. How long that while is I don't know. But there are some medicines that you can take that make things calm down temporarily. I don't know what she gave me, cause the script was abrev. and all that is on it is bits of initials. I'm sure if you got in to see a doctor, you could get a script to calm things down. What ever I have does help for a few hours, then I have to take it again. It turns my pee a hideous shade of green, but at least I'm not up 7 times a night.

Of course, you might have an infection. You have been through the wringer this week and those body parts have all been poked and prodded, which aggravates those delicate areas. If you have access to a school clinic, you might want to go for a quick UA, then ask for something to slow things down.

Hope you get things under control soon, you really are due for a break soon. ((((HUGS)))))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 10/14/2009 5:37 PM (GMT -7)   
What about student health?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 6:02 PM (GMT -7)   
Our school clinics are currently turning most people away since most patients have the flu so they are overloaded in the first place (women's health and student health are in the same small building) :/ Plus, I really want to see a specialist in this case...It could be any number of things, and it's been like this on and off for a couple of months. It's been bad before, but it's never been like this. I took cystex again an hour and half ago, am having to go every 5 second again grrrr. I really hope this calms down soon. I am exhausted! I almost prefer Crohn's because with that I can at least lie down and sleep for two hours at a time.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 10/14/2009 6:17 PM (GMT -7)   
I went to the er once with a similar problem over a holiday weekend when I didn't have a primary doc either. They treated me fine, but made me wait forever because it wasn't an emergency.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 6:24 PM (GMT -7)   
Waiting three hours is better than waiting 24 :( I just don't want to go for a silly problem. I know there are other people who need that care much more than I do. It could be a good way to get an earlier checkup on what just happened though. I'm a little worried (abdominal pain, D came back, etc.), but then that could just be post flu symptoms too. Too many possibilities! Not wanting to go for nothing though. I just hate having that burning sensation 24/7, and I don't actually know how much cystex you're allowed to take in a day. I'm already taking over double hah..

inflamed-what kind of medicine did they give you, and what kind of tests did they do??
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 10/14/2009 6:37 PM (GMT -7)   
I had a UTI earlier this year and had a short course of antibiotics (cypro) that cleared it up. I was in the final couple of months of a long flare and still picking up infections left right and centre. I just asked my GI to give me a lab form to pee in a cup! I think anyone will do it for you, so keep trying all the numbers but you may have to do the ER if you have no luck.

Apparently it was e-coli that caused my infection, so I think that you should have yourself checked out. You are taking prednisone and that reduces your immune system.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Prednisone 0 mg (as of this week!!), Salofalk 2000 mg, Nexium 40 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 6:48 PM (GMT -7)   
Well, here is the thing! I've done the urine test for my GI already (twice?), he gives me antibiotics, they work for a little while, and then it comes back. I'll get an infection (yeast and and/or bacterial), it gets really bad, I either go in or treat it at home, and then it goes away for a while. It always seems to come back though. It's just that this time it's with a vengeance. I'm just wondering if there is another problem being overlooked. I've been dealing with this one for almost a week now, but I have some pretty heavy schoolwork to do. I mean I suppose I could research the Ottoman empire from my bathroom, but I prefer being at a desk...
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 10/14/2009 7:01 PM (GMT -7)   
What is your prednisone level? I had ear infections reoccur twice as well as a viral infection reoccur 4 times. Luckily the UTI was only once. Now that I am off the prednisone it has settled down.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Prednisone 0 mg (as of this week!!), Salofalk 2000 mg, Nexium 40 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 7:03 PM (GMT -7)   
I am actually at 0. I need to update my signature...I've been off for about a week. Kind of nice, BUT! it might help with any inflammation affecting this. Who wants to go back on pred when they are off though?
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/14/2009 7:37 PM (GMT -7)   
Hey Bonnie, I know you're looking for women to help, but I went through a horrible time with UTI/prostate issues about 10 years ago so I know how you feel.

Have they definitely said you have infection? With me there was no evidence of infection, yet I had UTI symptoms. Eventually I was dx'ed with 'chronic' prostatitis. I found that a supplement called quercetin really helped and made me symptom free when I found that ABX were useless.

Has anyone mentioned interstitial cystitis?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/14/2009 7:40 PM (GMT -7)   
I've looked into the possibility of IC, but everyone always says something along the lines of 'well, you have bacteria in your urine so we'll give you some antibiotics.' That's about the extent of it in spite of constant recurrence.

How do you deal with chronic prostatitis? And is quercetin something you can get easily?***Scratch this one. I just checked every store, and all say it would have to be ordered online. They don't carry much in the way of women problems!

Sorry for the questions, but I really, really appreciate the input and am super curious.
I know my grandmother has problems similar to mine so I'm wondering if it's genes or something as well haha..
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Post Edited (LMills) : 10/14/2009 8:49:31 PM (GMT-6)


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 10/15/2009 7:07 AM (GMT -7)   
You should get checked out as soon as you can, even if it's the ER. UTI's can lead to kidney infections and that can be really serious. You may need to stay on low level antibiotics for a few months. I have a friend that has to take antibiotics every time she has sex otherwise she gets a UTI.

Get some relief then look for a specialist. Since it usually takes forever to see a specialist, make an appointment now. If this UTI clears up and doesn't return, then you can always cancel the appointment. Since this has been an ongoing problem, you may want to see the specialist anyway.

Good luck

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/15/2009 10:23 AM (GMT -7)   
LMills said...
I've looked into the possibility of IC, but everyone always says something along the lines of 'well, you have bacteria in your urine so we'll give you some antibiotics.' That's about the extent of it in spite of constant recurrence.

How do you deal with chronic prostatitis? And is quercetin something you can get easily?***Scratch this one. I just checked every store, and all say it would have to be ordered online. They don't carry much in the way of women problems!

Sorry for the questions, but I really, really appreciate the input and am super curious.
I know my grandmother has problems similar to mine so I'm wondering if it's genes or something as well haha..

Well, the quercetin pretty much cleared things up for me.  When I feel problems starting up again down there I take the quercetin for a couple weeks and I'm better, so it's not really 'chronic' for me, it's just something the uro's dx guys with because they don't know what else to do with them.  There is a physician at the Cleveland Clinic who's done some great research on IC and chronic prostatitis, Dr. Shoskes.  He's found that quercetin helps both conditions.
 
So, I can't really say if this is your problem or not, but you might want to ask your OB about the possibility of IC - or bring it up again.  What really jumped out at me is that you say the abx help for a while and then the problem comes right back, at this is exactly what men go through with CP.  My uro told me he doesn't know what to do about CP so he just puts his patients on abx indefinitely!
 
Mike


33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 10/15/2009 1:57 PM (GMT -7)   
Having dealt with a couple of UTIs myself, I know how annoying they are and honestly, if I couldn't get in to a doctor, I'd try a walk-in clinic next, then if I STILL couldn't find anywhere, I'd definitely go to the ER. When I've had them, I've been literally in tears and unable to do anything, because I could NOT get off the toilet! I don't think it's a small problem at all, they may be common, but they are debilitating at the same time. As others have said, if they're recurring, I would make sure that you get the appropriate tests done to find the underlying cause. A lot of women have them reoccur, but if it keeps coming back really quickly after, there's most likely something that is causing this to happen.

Good luck!

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/16/2009 6:54 PM (GMT -7)   
Dagger, my friend has to do the same thing. Lmills, feel better!
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 10/16/2009 7:08 PM (GMT -7)   
Even if it's not life threatening, ER's are used to seeing patients over the weekend for issues that can't wait until Monday....that's why so many ER's are busy on weekends, and have long waits...the good thing is that because ER's are used to it, they usually have a section of the ER for non-emergent care and people with less urgent problems are seen there and discharged quicker.

If you can't get any sleep, I'd head to the ER. At least you know they'll give you something that will start to relieve your symptoms. I've gone to the ER with a bladder infection over a holiday weekend because I've had kidney infections, and that's just the icing on a bladder infection cake...yuk!

Also...who cares what the ER thinks? They are there to treat patients. That's their job...and people have gone to ERs for far sillier things, like tooth pain and STD's...which an ER can't do much about but refer you to another doctor.

I hope you get some relief soon. I've been there...and to me it's far worse than CD symptoms. Good luck!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin

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