No More Pentasa

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rose481
Regular Member


Date Joined Oct 2009
Total Posts : 66
   Posted 10/14/2009 5:25 PM (GMT -7)   
Hi, DH has had Crohn's for 40+ years and has taken Pentasa for...well nearly "forever".  We found out today, it will no longer be covered under his insurance.  Have any of you changed from Pentasa to another drug successfully?  I know there are lots of other brand names, just afraid to "rock the boat"!  DAMx insurance companies! 

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 10/15/2009 3:31 AM (GMT -7)   
Have you tried Asacol. It is the same drug just released differently.
Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 10/15/2009 11:09 AM (GMT -7)   
You can try to fill out an application for assistance.

www.needymeds.org/papforms/shipen0141.pdf Pentasa
www.needymeds.org/papforms/shilia0141.pdf Lialda

I am liking lialda, but can't afford it. I hope to get a decision soon, they told me it takes about 2 weeks.

Also you could try to appeal the insurance company's decision, support from your doctor in the form of a letter can help.

Good Luck
Humira 2 times a month.
Prednisone 2.5mg every other day(10/3/09)
Lialda 2 X day
Imuran 150mg day
Phenergen PRN
Remeron 30mg day
Pain Meds


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/15/2009 11:26 AM (GMT -7)   
My insurance company tried to do the same thing, but my doctor sent an appeal and helped me stay on the medicine I am on now.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Good Days
Regular Member


Date Joined Oct 2008
Total Posts : 146
   Posted 10/15/2009 12:00 PM (GMT -7)   

Yes, my insurance company would pay for the pentasa but it was $60. 

I called the insurance company and ask for a list of the meds for chrons that they would pay for.  They said just have the doctor make a recommendation and we will tell you if it is covered or not and the price.

I told them no, they could give me a list of some meds they were suggesting and he could choose from them.

They finally did and my dr picked one.  He did say pentasa is the best med for small intestine chrons.  But I have had not problems on the new med.

if you have a flare-up on the new med then contact pentas company and you might be able to get it free.

Good luck.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 10/15/2009 1:57 PM (GMT -7)   
Our insurance just dropped coverage for ALL of the proton pump inhibitors AND for Viagra and its competition.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/16/2009 6:56 PM (GMT -7)   
I'm currently in the appeals process for my PPI. I have a family history of barretts and have had two doctors tell me if I didn't have crohns they would have done surgery already. It is ridiculous.
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/16/2009 6:57 PM (GMT -7)   
Rose - you have me freaked out now. What kind of insurance do you have if you don't mind me asking?
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


rose481
Regular Member


Date Joined Oct 2009
Total Posts : 66
   Posted 10/18/2009 1:04 PM (GMT -7)   
Hi FritzyK23, didn't mean to freak anyone out! My husband is covered under Medicare Part D. We have had coverage with Humana since Part D was implemented. I called them and the rep told me the drug is covered, but when I enter it as part of my drug list on their web site, it comes up as not covered. The rep said she had another call about this and her suggestion was to wait awhile and try again, as the web site might not be up to date. Oh I can't wait until everyone has the government/insurance companies running their lives! Sorry, sarcasam on my part!
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