New (For Me) CTE Experience

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CrohnieToo
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Date Joined May 2003
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   Posted 10/15/2009 2:08 PM (GMT -7)   
Keep in mind I am one of those crohnies tending to constipation. And that I DETEST the smell much less the taste of bananas.
 
I drank my first bottle of VoLumen at 8:30 AM, drank the second bottle of VoLumen at 8:50 during the drive to the imaging facility, They greeted me at the door w/my glass of water at 9:10.
 
JUST before they came to get me to set the IV, etc. the first bottle of VoLumen was persistent in demanding that it make its exit NOW! Permission granted and it was allowed to exit.
 
The scan finished and heading toward the door the second bottle of VoLumen insisted it WAS going to make its exit so I hurriedly used the restroom back in the imaging area. I should have been watching the clock for the exit times. It might have been interesting.
 
As I pulled in my driveway my bladder insisted it WAS going to empty and I'd better hustle my bustle to the house. Misssion accomplished! Ahhhhh! I take it it was either the water (??) or the IV that picked on my bladder - or both.
 
The VoLumen has never caused such "symptoms" before.
 
I have never had urgency issues w/VoLumen before!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 10/15/2009 10:12 PM (GMT -7)   
lol C2 - lucky for you that you had access to toilets - my luck I would have been out of range of one and a pot plant might have started looking good to go in :)
I would blame the IV for the bladder - that gets me going all day.
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 10/16/2009 7:00 AM (GMT -7)   
Well, the experience certainly made me even more empathic and sympathetic for those who live w/diarreah, urgency and even frequency!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 10/18/2009 7:34 PM (GMT -7)   
Fudge! It it isn't one thing it is another!!! Went to the doctor for a flu shot, didn't get the flu shot, got shipped off to the imaging facility for a soft tissue CT scan of the neck and thyroid blood draw. *sigh*

Next thing I know I have an appointment 12 November w/a general surgeor for a fine needle aspiration biopsy. The very next day I received paperwork to fill out from the surgeon's office. Rather than misplace it between now and the 12th I filled it out and FAXed it to him. Low and behold the very next day, late Friday afternoon I get a call from the surgeon's office, they received my films on CD and dictated report and called to find a convenient date to schedule the FNAB. Then the clincher! They want to schedule the FNAB "before" my appointment on the 12th! That will be my consultation w/the results.

Whoa!!! Does he use guided ultrasound? Does he use local anestheic or topical anesthetic. I'm inclined to prefer the topical but want to hear his recommendation and why. Which local lab is best w/the best cytopathologist. Do we HAVE a GOOD cytopathologist at either of our hospitals. Does he have a cytopathologist on hand during the FNAB. How many of these procedures does he do each month. What is his "unsatisfactory" or "inconclusive" specimens rate. I have COPD and am worried about what happens if I HAVE to cough and can't control it. How many times has he nicked a larynx muscle or nerve. How many of his patients have had voice problems after the FNAB. For how long. Or permanently. These are all questions I assumed I would ask during our initial office consultation NOT 5 minutes before the procedure!!!!

I was pretty cool about all this - until this phone call to schedule the FNAB "before" the initial consultation. Who ever heard of a surgeon getting anyone in for a surgical procedure this fast. And WHY this fast.

I'm thinking of bolting for Mayo or at least for U of M! SOME place I KNOW they have a good cytopathologist on staff and availablel DURING the FNAB.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 10/18/2009 8:37:51 PM (GMT-6)


Squattie
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Date Joined Jul 2005
Total Posts : 669
   Posted 10/18/2009 8:34 PM (GMT -7)   
Hi CT,

I had a needle biopsy done a while back...on a thyroid nodule. They did a local anesthetic and the only thing I felt, besides a prick of the numbing needle, was just some pressure when they inserted the biopsy needle/syringe.

When they were finished there was basically all liquid in the syringe. I no longer had the nodule, and it stayed away for years...until I got diagnosed with CD in 2002. Then I developed several more...which I haven't done anything about yet. But the one they biopsied didn't show anything nasty or malignant.

Do you have nodules? My doctors always put a strangle hold on my throat and tell me to swallow. If the lumps go up and down with swallowing they don't care. I guess if the lumps don't go up and down when you swallow, it's of more concern.

My dentist just checked mine again last Monday before taking x-rays.

I hope all goes well with your biopsy. It is a little disturbing re the rush they seem to be putting you through. But who knows...maybe the doctor decided to take a vacation on the initial date they had set up for you. Or maybe they just want to get it out of the way since you sent the paperwork in early. Could be any number of reasons. I'll be thinking of you.

Waiting for test results is what drives me nuts.
.....Squattie


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 10/19/2009 2:54 AM (GMT -7)   
Yep, and that is the main reason I HATE the local hospital w/the supposedly best lab and pathologists. They dink around providing the reports to the patients until they are sure the doctor has provided the results to the patients.

Thank you for relating your experience. I can't say that I am worried about the procedure or discomfort except for the problem I have w/the COPD and coughing. Well, that and a good pathologist. I'm thinking that MAYBE the local anesthetic eliminates the coughing/swallowing problem but I'd like to know for sure if it does.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 10/19/2009 4:55 AM (GMT -7)   
My OB/GYN found a thyroid nodule 2 years ago. I followed up with an endocrinologist. The morning of my appointment, I had an exam, a thryoid scan and a biopsy. There was some leakage or something because I had a lot of neck pain over the next several days, so he withdrew some more fluid and did a biopsy. Both were negative. He told me that the standard is to do a biopsy for three years in a row. With three negative biopsies, it's ~ 95% certain (I forgot the exact percentage) it's a benign nodule. Since I already had 2 biopsies, I will have one more in a couple of weeks. I'm glad he did everything during that one appointment - no time to worry. I hope all goes well with your FNAB.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 10/19/2009 6:25 AM (GMT -7)   
C2,

Luckily, it really doesn't take that long for the procedure. I cough a LOT and clear my throat a lot.
I seem to cough more when I'm in a really reclined position or lying down. Have them keep you sitting as upright as possible.

And don't be thinking about coughing. I'll bet you don't cough at all. The procedure shouldn't make you cough, and I'm sure that even if you did cough...they have had others who do cough. As long as you're not thrashing around it shouldn't interfere with the needle thing. Good luck! You will do just great!
.....Squattie


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 10/19/2009 10:50 AM (GMT -7)   
Thanks, Squattie and SkiBum. My Mayo Clinic Endo called me right away first thing this morning. Bless her heart, I REALLY liked her and like her even more now! She suggested first off that the soft tissue CT scan is NOT as good as an ultrasound for thyroid nodules and suggested that I have an ultrasound done BEFORE the FNAB. I can send the images CD to her for evaluation AND when they do the FNAB to ask beforehand that extra specimens be taken to be sent to Mayo's laboratory. I feel MUCH more comfortable doing things this way.

The local hospital called already this morning too. But AFTER my Mayo Endo called, thank goodness. They had me scheduled for this Wednesday at 10 AM!!! I had them cancel that until we can get the ultrasound done. So I called the general surgeon's office to tell them and ask them to order the ultrasound (I'm pretty sure my family doctor will if the sugeon's office drags their feet). So I am feeling MUCH better about this now.

And I'm thinking, with no one to ask, that if they use the local anesthetic the anesthetic might well quell any urges to cough. You think??
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 10/19/2009 12:33 PM (GMT -7)   
C2,

They're probably just going to numb the area around the nodule. If they numbed your throat, you couldn't swallow at all and you definitely would be uncomfortable. One time I swallowed a glob of that numbing stuff the dentist swabs on your gums before giving you the needle. God, it was torture. I couldn't feel a thing, couldn't swallow and went into panic mode. He said "oops." So, they aren't going to want to numb your actual throat.

I have smoked for more than 40 years, have gerd at times and cough and clear my throat most of the time. For all I know I could have COPD. Just was never tested for it. I get breathless just thinking about exercise. Actually, just this morning I was at the dentist having my teeth cleaned. I was in the chair an hour and didn't cough once. I think I was sufficiently distracted enough not to. Never even felt the urge.

You might try a slippery elm lozenge before you go in, or if you are allowed, have your doctor give you a small dose of Ativan to take about half an hour before the procedure. It's great for getting you all relaxed so you won't think about coughing.

I really, really, really, really think you won't have any trouble with coughing. The procedure goes pretty quickly. Most of your time will be spent getting checked in and prepped.
.....Squattie


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 10/23/2009 1:32 PM (GMT -7)   
Thanks, Squattie. We'll be doing twice as many aspirations as he would normally do as he wants the pathology done locally for fastest results and I want Mayo doing the pathology for the sake of confidence.

This general surgeon's office has been great. I don't know how frustrated they are w/me but they have scheduled me for an office consultation, then the FNAB and then another consultation for the results and explained that this was the way they usually scheduled but that they thought they were doing me a favor scheduling the FNAB so quickly. Whatever. I am more comfortable doing things this way. I'm not one to panic just because they found "something" that may or may not (and most likely NOT) be a problem. Like most prostate cancers, most thyroid cancers are very slow growing so even if I'm not happy w/the "news" ......
 
I forget now w/o looking at the CT scan report but there is one 2.6 cm nodule and then 3-4 smaller nodules. I haven't seen the ultrasound report yet. Too lazy and cheap to drive back into town today to pick up the report. They will mail it to me so I should have it Monday or Tuesday. I do have the CD. They made two copies for me. I sent one to Mayo overnight and the other is for my own records.
 
The left ovarian cyst has grown some more but not drastically (we did both ultrasounds one right after the other). I'm wondering if the thyroid nodules could account for the ovarian cysts on post-menopausal ovaries AND the sudden accumulation of fat in just the abdomen. Like 19 lbs in 11 months. I DETEST that abdominal fat, it is so REPULSIVE and so foreign to me!!! It would seem to me that if it were "just" age related fat distribution it should have occurred BEFORE 67 years of age when menopause occurred at 50.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 10/23/2009 2:43:22 PM (GMT-6)

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