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Sore Tum
Regular Member

Date Joined Jun 2009
Total Posts : 144
   Posted 10/17/2009 12:28 PM (GMT -6)   
So my last hideous day was on my anniversary in September, I had a very unfortunate accident (unable to find a loo) whilst out and about in Paris and had to cut our holiday short and come home early. I haven't felt great in the last 6 weeks, ok, but not great.
It's my birthday today, we were out and about, and there was that feeling again, managed to find a public loo (grim), but it was locked, and that was that.
I think the issue is that since I had the fistula surgery I can't hold on to my wind, that combined with the urgency means that buffer that others have when their tummy is upest that allows them to hold on is gone.
I'm tired of this, I want my life back, I want to be able to get up in the morning and say 'I want to do this today', without the first thought being about toilet access.
So I have eaten nothing since this morning (it's now 6.30pm) and I'm spending my birthday evening sitting on the sofa with a hot water bottle.
This sucks.
Rant over
Hope everyone else is well.

Debbie x
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (awating further tests to rule out Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp, Probiotics, zinc supplement.
Prenisolone restarted 8th sept, for urgency, tapering dose.
Low residue diet, under the supervision of a dietician.
Past meds: prednisolone, colifoam ememas.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 10/17/2009 1:20 PM (GMT -6)   
I really sorry to hear that's how your day went...Sending love your way.
I couldn't leave the house for a while because of it, even on immodium, but it started working eventually in combination with prednisone.
I hope you feel better soon.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Jun 2005
Total Posts : 58
   Posted 10/17/2009 7:00 PM (GMT -6)   
Aw Debbie, that's the worst. I have been there. I have been crying in my car, praying to make it somewhere without soiling myself. It's so humiliating, on top of painful.

I'm sending prayers your way, and hopes that your drs. will find the right treatment to get you back on track soon.

God bless.
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