So my last hideous day was on my anniversary in September, I had a very unfortunate accident (unable to find a loo) whilst out and about in Paris and had to cut our holiday short and come home early. I haven't felt great in the last 6 weeks, ok, but not great.
It's my birthday today, we were out and about, and there was that feeling again, managed to find a public loo (grim), but it was locked, and that was that.
I think the issue is that since I had the fistula surgery I can't hold on to my wind, that combined with the urgency means that buffer that others have when their tummy is upest that allows them to hold on is gone.
I'm tired of this, I want my life back, I want to be able to get up in the morning and say 'I want to do this today', without the first thought being about toilet access.
So I have eaten nothing since this morning (it's now 6.30pm) and I'm spending my birthday evening sitting on the sofa with a hot water bottle.
Hope everyone else is well.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (awating further tests to rule out Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp, Probiotics, zinc supplement.
Prenisolone restarted 8th sept, for urgency, tapering dose.
Low residue diet, under the supervision of a dietician.
Past meds: prednisolone, colifoam ememas.