What does everyone do for a living? PART TWO

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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/17/2009 1:18 PM (GMT -7)   

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 10/17/2009 5:10 PM (GMT -7)   
Right now I am on disability and learning history at university(first year) hopefully I can continue that if my brain starts to work anytime soon.

Before I got sick I worked as a sale person for a phone company, Loved it but it is rather difficult running away from the customers to go to the toilet :)

I also have a license to be captain on a boat less then 30 tons and I finished homemaking school(you learn everything you have to do as a housewife. Cook, clean, sewing, knitting and so much more).

I feel like I cant do so many things right know. I want to work with my school like I have always done, but feel like nobody would hire me :(
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009
And now they think I have Lupus :S

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 10/17/2009 5:50 PM (GMT -7)   
Right now I am in school to be a social worker but before that I worked in a call center for an insurance company and before that I was an aircraft electrician in the Air Force.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 10/17/2009 6:19 PM (GMT -7)   
isergodur said...
Right now I am on disability and learning history at university(first year) hopefully I can continue that if my brain starts to work anytime soon.

Before I got sick I worked as a sale person for a phone company, Loved it but it is rather difficult running away from the customers to go to the toilet :)

I also have a license to be captain on a boat less then 30 tons and I finished homemaking school(you learn everything you have to do as a housewife. Cook, clean, sewing, knitting and so much more).

I feel like I cant do so many things right know. I want to work with my school like I have always done, but feel like nobody would hire me :(


How did you get the disability coverage? I applied, but I was denied.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/17/2009 6:34 PM (GMT -7)   
NostraHistoria - Isergodur lives in Iceland.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 10/17/2009 7:30 PM (GMT -7)   
NostraHistoria said...
isergodur said...
Right now I am on disability and learning history at university(first year) hopefully I can continue that if my brain starts to work anytime soon.

Before I got sick I worked as a sale person for a phone company, Loved it but it is rather difficult running away from the customers to go to the toilet :)

I also have a license to be captain on a boat less then 30 tons and I finished homemaking school(you learn everything you have to do as a housewife. Cook, clean, sewing, knitting and so much more).

I feel like I cant do so many things right know. I want to work with my school like I have always done, but feel like nobody would hire me :(


How did you get the disability coverage? I applied, but I was denied.


I live in Iceland and lets just say that the health care system in Iceland is a lot better for those who are sick, then the health care system in America :S

But when I got disability I had been sick for 6 months and in the hospital 3 times and lost 33 lbs had a lot of blood in my stool and was just very sick. So they put me on disability for 3 years. I also did not just have CD I had other things that helped me get the disability.

Good luck.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009
And now they think I have Lupus :S

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 10/17/2009 7:36 PM (GMT -7)   
I work part-time in the day at a daycare. Then I go to college part-time twice a week in the evenings studying Early Childhood Education... I would like to further my career and go into teachers college..but now I am thinking maybe just being a supply teacher. Shall see what happens....
20/f - Diagnosed with Crohn's for 6 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Currently on Remicade (First Infusion January 26th/09 - Next Infusion Oct 8/09)
Natural Medication - Probiotics
L-Glutamine
Chinese Herbs for Inflammation
Acupuncture


Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 10/17/2009 8:06 PM (GMT -7)   
I am a Home Manager and Prevocational Director for individuals with Mental disabilities. We try to teach them to be as independent as possible. Very stressfull sometimes but very rewarding and sometimes a hoot. We now have 40 individuals that come to Prevocation training and I have 13 people in the home I manage.
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 allergic to Asacol,    Colazal made Crohn's worse,      Prednisone 20mg X2 daily   (off Pred now) 
 Imuran 50mg X 2 daily,      Hyzaar 50-12.5,Toprol XL --  Hypertension
 Insulin   --   Diabetes,      vitamin...... 
 
First Remicade infusion 8-9-08
 Had allergic reaction on 5th infusion took benadryl got to finish
 Went for 6th took benadryl before infusion had reaction stopped
 Remicade.
 
 


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 10/17/2009 8:27 PM (GMT -7)   
isergodur said...
NostraHistoria said...
isergodur said...
Right now I am on disability and learning history at university(first year) hopefully I can continue that if my brain starts to work anytime soon.

Before I got sick I worked as a sale person for a phone company, Loved it but it is rather difficult running away from the customers to go to the toilet :)

I also have a license to be captain on a boat less then 30 tons and I finished homemaking school(you learn everything you have to do as a housewife. Cook, clean, sewing, knitting and so much more).

I feel like I cant do so many things right know. I want to work with my school like I have always done, but feel like nobody would hire me :(


How did you get the disability coverage? I applied, but I was denied.


I live in Iceland and lets just say that the health care system in Iceland is a lot better for those who are sick, then the health care system in America :S

But when I got disability I had been sick for 6 months and in the hospital 3 times and lost 33 lbs had a lot of blood in my stool and was just very sick. So they put me on disability for 3 years. I also did not just have CD I had other things that helped me get the disability.

Good luck.


I was 225 before I was diagnosed. I dropped all the way to 140 recently. When I was 225, I had big muscles.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3


dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 10/17/2009 9:14 PM (GMT -7)   
I am a Registered Nurse
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 
I live by faith and not by sight....


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 10/17/2009 9:32 PM (GMT -7)   
I have been fortunate enough to have gotten a job working for my father. I work at a large diesel engine company doing service/warranty admin work, which is a great stepping stone for me because I'm only 21 and it can really help me get a great job within the company in the future, and it also gives me the option of being able to move just about anywhere else in the world if I want to in the future (which I probably will.. lol!), I didn't finish college due to a lot of personal stuff that was going on, so I feel really lucky to have a great job at a young age regardless. On top of that, the people at my work are fantastic - they are REALLY understanding when it comes to my disease. They allowed me to work from home for a couple of months around the time of my diagnosis so I could focus on healing, and they have never given me a hard time when I've needed to miss work (which has been a lot), or when I've had to go to the doctor. It's kind of nice because a lot of other people there also have GI problems (none with Crohn's though), so I have a really great bunch of people who can relate to me at work and really try to help me out when I'm not feeling well.

goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 10/18/2009 8:57 AM (GMT -7)   
I'm a medical social worker...
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 10/18/2009 10:53 AM (GMT -7)   
I live in NYC and I'm on disability for my Crohn's.
I was also denied, I appealed and had to wait for a hearing to be approved. Wait was appr 18 months.
I did not use a lawyer and received back pay when I was approved.
You def need your Doc on board. I had documentation from him stating I was disabled and unabe to work.
I brought copies of my colonoscopies, Upper G.I exams and M.R.I to the hearing.
It can be done.
good luck
34 yr old Male from NYC, DX with Crohn's in oct of 1987
Resection in 1990
Switching to Remicade, Aug 6th. 2009
Entocort 3mg 3 pills each morning.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Anemic again, Start Iron infusions August 31.


chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 10/18/2009 10:57 AM (GMT -7)   
I'm a financial analyst with an MBA. I am provided a laptop so I can work from home. Lately, that's been every day, but my boss is cool with it. Makes it a lot easier for me!
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission from 11/2003 to 7/2009
omeprazole 40mg, zoloft 100mg, apriso 1500mg, dicyclomine 3/day
dx with bipolar II 8/2009, re-diagnosed with bipolar I 9/09
Apparently allergic to lamictal...waiting on next rx


onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 10/18/2009 11:18 AM (GMT -7)   
I'm a web-designer -- I'm supervisor of the design team for the company I work with. And also my boss's personal slave.

I have an unpaid position as an entertainment reviewer for my friend's online magazine, but it has the perks of being invited to Comic-Con and the Scream Awards (didn't get to go this time because of Crohn's flare, grrrr).
Diagnosed with Crohn's in 2008 at the age of 22.
Currently taking: Azathioprine, tramadol, welchol, promethazine
Surgeries: Cholecystectomy (2007)


PinkSkyCloud
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 10/18/2009 12:49 PM (GMT -7)   
I just graduated with my M.A. in Elementary Education 5 months ago. However, having kind of a difficult job finding a job between education funding cutbacks here and my crohn's disease.
Solanges: )


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/19/2009 7:13 AM (GMT -7)   
I assist 6 stockbrokers at a major wall street firm. Been with the same company almost 20 years.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 10/19/2009 7:21 AM (GMT -7)   
I am a Purchasing Agent for a 5 star hotel in NYC. I have been working in the food/beverage/hospitality industry for most of my life. I have worked in kitchens, on a cruise ship, in a hospital, etc.etc and have never let CD slow me down.
Crohn's Disease since '88
 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 10/19/2009 12:47 PM (GMT -7)   
hmmmm....I am amazed by the talent of the people here. Me? I dreamed/wanted to be a physician, but while trying to gain residency in that state, and I DID get accepted, I was also diagnosed with this DD. Liked teaching Science & Mathematics to JrHS & HS students (was a jack of all trades, taught most sciences and most math classes too...) I've been too sick for the last few years to go to work, but I want to so very bad. Haven't really applied to SS yet either cuz I don't want to admit defeat either. Messed Up?
"The earth laughs in flowers"


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 10/19/2009 2:13 PM (GMT -7)   
Nanners said...
I assist 6 stockbrokers at a major wall street firm. Been with the same company almost 20 years.


Hi. Remember me? We talked a few times before. Are you in Chicago? I am taking the year off from school. If I ever get into remission and I do not feel dizzy and syncopal, then I want to get a job trading. Can you help me?
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3


jamief
Regular Member


Date Joined Feb 2005
Total Posts : 200
   Posted 10/19/2009 5:43 PM (GMT -7)   
I am currently an unemployed stay at home mom.  Before that I was a machine technican at a fiber optics manufacturer.  That job wasn't bad until I hit another horrible flare and had alot of other problems due to the medications to treat it. Then it became impossible. I just started school for my associates in applied science for funeral services. Yep, going to become a mortician.

jmiller056
Regular Member


Date Joined Feb 2009
Total Posts : 57
   Posted 10/19/2009 8:12 PM (GMT -7)   
I am a full time engineering student, and a nearly full time fast food worker.
23 y/o Male; Dx Crohn's Disease in 2001 at age 14.
Lost 3 inches of colon and 7 inches of ileum in 2004 bowel resection.
CD returns in October 2008 in the Terminal Ileum.
Current meds: Humira; Fibercon: 2 pills 3x; Imodium: 2 pills 3x
Been on: Prednisone, Flagyl, Cipro, Imuran, Entocort, Pentasa, Remicade
Kyrie eleison!


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 10/19/2009 8:22 PM (GMT -7)   
I work at a hotel front desk part-time, and as a cashier part-time. I also homeschool my son which is like having another job on top of the others. I was a full-time homemaker when I got diagnosed though. Before cd, I was a travel agent.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prednisone, vancomycyn, prilosec, darvocet, bentyl
Currently in bad flare-up


dcham1
New Member


Date Joined Jul 2009
Total Posts : 11
   Posted 11/5/2009 3:27 PM (GMT -7)   
I graduated from College with a degree in IT. I worked first-tier technical support (phone lines) for HP until all the jobs got outsourced to India. I have always dealt with customers either in person or via telephone. Recently I was doing Marketing/IT and Sales. I have been sick while working and companies do not understand/sympathize when you have to 1) run to the bathroom, 2) you throw up in your waste basket at your desk, 3) you have gas so bad that others can smell it (and you do the best you can to run to the bathroom, but you don't make it). 4) Co-Workers ask you (when you go to lunch with them) "why are you not eating" or "Is rice all that you are getting to eat". 5) Co-Workers complain that you are not there to do your job. Here in the State of Georgia, they are a "at-will employment" state. People who don't understand this horrible disease (Employers and co-workers) can be cruel and you pay the price by losing your job.
Contact your senators and congressmen to support ANY IBD legislation. We need all the help we can get to combat this disease.


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/5/2009 3:55 PM (GMT -7)   
dcham1 said...
I graduated from College with a degree in IT. I worked first-tier technical support (phone lines) for HP until all the jobs got outsourced to India. I have always dealt with customers either in person or via telephone. Recently I was doing Marketing/IT and Sales. I have been sick while working and companies do not understand/sympathize when you have to 1) run to the bathroom, 2) you throw up in your waste basket at your desk, 3) you have gas so bad that others can smell it (and you do the best you can to run to the bathroom, but you don't make it). 4) Co-Workers ask you (when you go to lunch with them) "why are you not eating" or "Is rice all that you are getting to eat". 5) Co-Workers complain that you are not there to do your job. Here in the State of Georgia, they are a "at-will employment" state. People who don't understand this horrible disease (Employers and co-workers) can be cruel and you pay the price by losing your job.


"Chicken and rice...is that all you eat?" That could me the most repeated line in my house. My FAMILY, not other people, are the ones who keep complaining about me eating chicken and rice. How many times I have heard this just irritates me. I bet that I have probably heard it around 100-200 times from them.

I am with you, bud. Just ignore them and remember that people who are not well educated will never understand or learn.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3

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