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Wendyshu
Regular Member


Date Joined Jun 2005
Total Posts : 58
   Posted 10/17/2009 4:50 PM (GMT -7)   
Hi All,
 
My CD is under pretty good control, but my worst time of year is fall...specifically October. Sure enough, I have joint pain and more abdominal pain now, though my bowel symptoms are not that bad.
 
But I'm SO tired. I can usually get by on five hours of sleep, but not these days. I need eight hours, plus naps! And even when I'm awake, I feel drowsy...almost like I'm on cold medicine or newly pregnant (and NO...I'm not pregnant. :))
 
Just wondering if anyone else experiences this level of fatigue with mini-flares. Many thanks to you all.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/17/2009 4:58 PM (GMT -7)   
I do. I'm going through the same thing right now actually. Part of it has to do with the days being darker for me. Honestly, when it rains I have the most difficult time staying awake.

I can't really think of much that helps ease the fatigue except any exercise you can manage and protein.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 10/17/2009 5:39 PM (GMT -7)   
Yep, I sure had that level of fatigue, but it was more of a full-on flare. Eight hours of sleep seemed like a hard minimum--anything less and I was really tired. Many times when I had to go out on errands I felt like I was drugged-out on cold medicine. Napped a lot, and just laid and sat around. Really couldn't do much physically. Every time I got up and did something, felt like sitting down again after 5 minutes.

MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 10/17/2009 7:36 PM (GMT -7)   
I have the same thing when I'm starting to flare. I can't stay awake to save my life. Unfortunately I haven't found a way around it but it usually only lasts a few weeks to a month or so for me. You aren't alone :) Hope you start feeling better soon.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


ms.atitude
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/17/2009 8:27 PM (GMT -7)   
I have the same fatigue issues as well.  Even when I get a good nights rest days in a row I always feel like i didn't sleep enough.  I get headaches with it.

xandersnana
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 10/19/2009 6:48 PM (GMT -7)   
I am in the middle of a flare right now and have zero energy. 8 or 9 hours of sleep plus a nap in the afternoon and I still feel like poo. (no pun intended)
Even on 40mg pred daily I am not feeling more energy. I am taking some time off of work in order to try and get back on track with Remicade. It is depressing sometimes to be 41 years old and feel like I am 81.

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 10/20/2009 6:15 AM (GMT -7)   
Yes, I know what you mean.
I am tired most of the time too. But only because I can't sleep at nite cause I'm always getting up to use the toilet. Or its the butt pain I get sort of like I got a splinter up there. Its annoying as hell and keeps me up most of the nite.

Suggestion: you may be low on iron...get your blood work done if you haven't as tiredness is one good indication of lack of iron.
I know I have had to have iron infusions in the past because I am anemic. [SP?]
I think crohns people have a hard time digesting protiens. I know I usually stay away from red meat - only if it is very lean and not fatty then I may try it.

Good Luck! :O [yawn]
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/20/2009 6:22 AM (GMT -7)   
Get your B12 levels checked too. I also recently started taking Vitamin D (2000 units) and have found that to be helpful for my fatigue too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/20/2009 9:00 PM (GMT -7)   
I have been so incredibly tired as well. I keep boiling mine down to having had 3 surgeries this year alone but last surgery was july 30 so I would have thought I would be past that by now lol. I sleep in most days and then when i get up I need to lay down on the lounge again. I feel so lazy but I am just exhausted all the time., I can relate so much
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