Blood in stool question, please help with your thoughts & recommendations

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Regular Member

Date Joined Aug 2006
Total Posts : 64
   Posted 10/19/2009 9:26 AM (GMT -6)   
Hi, so I am on entocort and pentasa and colestipol, all long term so far. Now and then, maybe once every three months or so I have maroon stools. My doctor usually freaks out about it, but it's always the same cycle, I have it, and I get better in two days. He does all the bloodwork and it shows no signs of inflamation, loss of blood, no signs of low iron or anything. And he's always surprised to see everything okay.
My question is
1) Does anybody just "live" with this and accept it as a course of having crohn's?
2) My doctor wants to do remicade. Do I really need to go that crazy?

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 10/19/2009 6:23 PM (GMT -6)   
well briny, i alomost bled to death a couple time with "maroon" blood in the toilet. so i can see your drs apprehension. once you have the first heavy bout of blood, thats just what worked down, you may have been bleeding for a long time. it may stop on its own like your apparently did, but it can go on for hours.. both of mine must have started in the night while sleeping. as the first BM in the morning was full of maroon blood in the toilet. then the next and the next and so on. so i would say if its just once and then nothing, metion it to the dr. if its more than one in a row, get to the dr.

Regular Member

Date Joined Nov 2008
Total Posts : 351
   Posted 10/19/2009 6:40 PM (GMT -6)   
Blood loss is serious. I was bleeding for about 15 months just about everyday. I am now weak and sleepy all day. Get the better meds and get healthy. You do not want to be like me sleeping all day and light headed when you first stand up or stand too long.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3

Regular Member

Date Joined Oct 2009
Total Posts : 32
   Posted 10/19/2009 7:06 PM (GMT -6)   
My daughter had to get multiple blood transfusion because she bled everyday for months.  I remember how weak she was from it. The blood loss even affected her breathing because she didn't have enough oxygen carrying blood cells to maintain oxygen in her body.
Even though your tests come back ok I would ask for some more exploratory tests. Try to find where and why it is happening. You don't want it to become an everyday thing. Maybe Remicade would help to prevent it. Good luck and hope all goes well for you.
Mom to 5 special children
 14yr old- GAD, PTSD, ODD, LD
 12 yr old- Crohn's Disease-total Colectomy Feb 09, PTSD, Dystymia, JRA, Asthma
 11 yr old- Globally Developmentally Delayed, Low Cognitive Functioning, PTSD
 10 yr old(almost)- Epilepsy, Unspecified Social/Emotional Disorder, PTSD, LD
 32mth old-Bright and Happy

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