Crohn's Disease

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pr glo
Regular Member

Date Joined May 2008
Total Posts : 78
   Posted 10/19/2009 2:16 PM (GMT -6)   
I just had a Catscan and it stated I have Crohns I have a colonoscopy in order to see how advanced it is. I need someone to explain to me what crohns disease is all i know is I have pain on my right side abdomen lower and middle also excriciating pain where i'm hunched over when I have to have a bowel movement and everything i eat goes right through i'm in the toilet after. Need any one's info. Thanks PR Glo.

Regular Member

Date Joined Mar 2009
Total Posts : 452
   Posted 10/19/2009 2:29 PM (GMT -6)   
Simply put, Crohn's Disease (CD) is an inflammation of the intestines. Best way to describe it is that it is like a sunburn on the insides of your intestines. There is a lot of information out there and I know a lot of people here are going to give you a lot more and a lot of advice.

One website that is great and you should check out is .

Good luck with the colonoscopy and feel better. If you ever feel like you need to talk, come here to the board. Everyone here is willing to help.
Crohn's Disease since '88

Regular Member

Date Joined May 2009
Total Posts : 173
   Posted 10/19/2009 2:29 PM (GMT -6)   
pr glo - curious as to how the diagnosis could be made solely from a CAT scan. Essentially, Crohn's is chronic inflammation of the digestive tract anywhere from mouth to anus. There may be healthy tissue in between inflamed tissue. Crohn's has no known cause and no cure, but there are medications that many find to reduce symptoms and experience long periods of remission. Surgery is generally the last option due to the high recurrence of disease at the site of resection.

Browse around for lots of helpful information on this site and good luck!
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2009 2:30 PM (GMT -6)   
Well I think these sites are a good start. Plus check out the books at your library for crohns.

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

New Member

Date Joined Oct 2009
Total Posts : 1
   Posted 10/19/2009 3:31 PM (GMT -6)   
I have lived with rohn's Disease for over 35 years. The best thing I can tell you is it's like a thousand pins sticking you in the stomach daily all day and on a bad day it's like a million pins sticking you in the stomach I have had to have two surgeries over the years and found that the best thing to do is stop smoking and drinking. If you take the prenisone if you are told to take 40 Miligrams take 40 for three days then drop to thirty. If the symptoms ease then stay at that level until your dr tells you to decrease it then do it in incraments of 5mg weekly. If you try and come down to fast you will flair up.

I am now on a maintenance level of 5mg daily and have been at this level for the past three years I now have a medical alert bracelet that states that I am steroid dependant and wear it constantly. what ever you do donot just quit taking the prednisone that is the worse thing you can do.

also you have to be the judge of how much prednisone you can take without any complications you body will let you know.

Good Luck
and God Bless

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 10/19/2009 3:31 PM (GMT -6)   
You are doing the best thing you can do which is gathering information. I too am a little confused as to how they could diagnose you just on a CT, that is a little unusual. But the main thing I want you to understand is that while a lot of the information you find can be scary, most of it will never happen to you. Most people with Crohn's disease are out in the world living their lives and have the occasional flare. They take their maintenance medication and that is all they do as far as thinking about CD on a regular basis. Some people are not as lucky and they have trouble finding the right combination of drugs to bring their disease into remission, or they have complications. They are the ones who are on here. Or the ones like you who have just been diagnosed and are looking for information. There are some people like me, who have been there, done that, and want others to know that you CAN have a normal life after diagnosis, so we hang around to answer questions.

Basically ask all the questions you want, we aren't shy, we can't be simply because of the nature of our disease. smilewinkgrin But also realize that while all the things you read about might happen, most won't.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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