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CN1980
New Member


Date Joined Sep 2009
Total Posts : 10
   Posted 10/21/2009 5:39 AM (GMT -7)   
I had my resection surgery (open) on October 13th and got home from the hospital yesterday.  The surgery site itself is doing very well and causing me little discomfort, however I am still feeling pretty crappy with zero energy (lost 13 pounds while I was in hospital for the surgery), still having some stomach cramping and lots of nausea.  In terms of foods,  I am finding I can only eat very small amounts, and am sticking to the "low risk" types of foods that I ate before the surgery.  I know this would be different for everyone...but I'm just wondering at what point I can expect to start feeling somewhat "normal" or good again after the surgery?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/21/2009 6:00 AM (GMT -7)   
I have had 2 open resections. It can take awhile to get your strength back. I think it was about 4 weeks after the surgery before I started feeling a little stronger. Remember you just had major surgery, and it does take the intestines a bit to adapt to the changes. Hang in there better days are ahead. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CN1980
New Member


Date Joined Sep 2009
Total Posts : 10
   Posted 10/21/2009 12:43 PM (GMT -7)   
thanks for the reply :)   Even though I had read others postings of their experiences with surgery I don't think I had any idea of what to expect in terms of the toll that this takes both physically and emotionally....I know that I need to take it day by day and just be hopeful for a long remission but sometimes thats easier said than done :)  
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/21/2009 12:58 PM (GMT -7)   
Yeah my sister had to remind me that I had just had major surgery and to remember that they had taken my intestines out, cut them, sewed them back up and put them back in. So everything was traumatized and that it would take awhile to get back to normal. I remember at first wondering how I was ever going to be able to go back to work in 6 weeks. But little by little, you will begin feeling better everyday. Try to walk a little everyday, that will help to build your strength back up. Also, don't go too crazy with your diet right away. Slowly add things back into your diet. I would stay on a easy to chew, easy to digest for a bit until you feel stronger. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 10/21/2009 3:57 PM (GMT -7)   
I totally agree with Gail. Take it easy and baby yourself a little. I wish I would have because now I have a hernia I need to have surgery to fix. I stressed myself out to get better fast and it was definitely not necessary. Just be good to yourself and take it easy.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/21/2009 6:34 PM (GMT -7)   
It's been 4 weeks since my surgery, and I'm still sticking to soft foods. I figure there's no rush. Hopefully I can enjoy next summer's bounty of fresh fruits and veggies (rather than cooked to mush).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


CN1980
New Member


Date Joined Sep 2009
Total Posts : 10
   Posted 10/22/2009 5:56 AM (GMT -7)   
Spookyhurst how do you feel 4 weeks post op?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/22/2009 1:27 PM (GMT -7)   
Pretty normal, but I had my surgery by laproscopy. I'm starting to have little twinges at the main incision, which I think is probably nerves regrowing. The pain in my left side (where two incision were) is nearly gone. It was never horrible to begin with, but has taken a long time to completely go away. I had fatigue pre-surgery, and unfortunately, still have it. It hasn't gotten worse, just not better. BMs are still a bit wacky. One day normal, the next D. No urgency, and usually just once a day, so it's no biggie. I think it's just my body adjusting to the lack of an ileocecal valve.

Hang in there! You'll start improving soon :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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