What exactly is SCD????

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Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 10/23/2009 6:29 PM (GMT -7)   
Hi there, newby again, i have been reading alot of peoples posts and one thanks for the encouragement i am suppose to be starting remicade in the next couple of weeks (as soon as the insurance approval comes in!) and i wasn't really excited about it cause i haven't had much success with other drugs but im now encouraged that maybe there is hope to return to "normal".
 
Anyway, i keep seeing people referring to SCD and i just wondered what exactly that is?????

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/23/2009 6:52 PM (GMT -7)   
Check out the diets link in my sig :-)

Welcome!

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/23/2009 7:20 PM (GMT -7)   
.....and the links in my signature! smilewinkgrin ......and welcome to the forum!
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 10/23/2009 7:25 PM (GMT -7)   
SCD = "Specific Carbohydrate Diet", there are many links to information such as the link in her "sig" = signature, so you can click that link, highlited in blue, for diet information directly from her reply post, rather than searching or googling for diet information. The diet is generally a high protein diet alot of fish, meat and poultry is ok,,,but when you get to carbohydrates, the diet, generally, does not permit higher chain sugars such as starches, but allows some shorter chain carbs such as low-sugar fruits. There is more detail, and if you want to know if a specific food is permitted, you can check. Generally the theory is, less sugar, less problems. Whether it is helpful or not, seems dependent on each individual... and also perhaps because each person has different diseased area of bowel, one food might be tolerated in one person and not in another person, so you end up keeping a journal anyways, to be sure a particular food is ok for you. So it is ..exactly.. a diet that somebody designed, that restricts/eliminates some specific carbohydrates from the menu to avoid bowel problems that these sugary type food can cause.

Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 10/23/2009 7:36 PM (GMT -7)   
thanks alot everyone, i have read the makers diet, it was given to me by a co-worker she actually met him. I did well on a low carb diet and was feeling better i guess the key is to stick to it i am definately a carb junkie. I know i cannot tolerate dairy....during a flare none when not i can usually handle a glass of milk a day any more and im sick. But i also cannot tolerate veggies, salad comes out the same way it went in most times, sometimes im fine with it. I guess im going to have to bite the bullet and start a food diary and keep track of everything closly. Im definately going to look into the other books as well im desperate to get my life back!

Thanks again for your help

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/23/2009 8:38 PM (GMT -7)   
medchrt1 said...
SCD = "Specific Carbohydrate Diet", there are many links to information such as the link in her "sig" = signature, so you can click that link, highlited in blue, for diet information directly from her reply post, rather than searching or googling for diet information. The diet is generally a high protein diet alot of fish, meat and poultry is ok,,,but when you get to carbohydrates, the diet, generally, does not permit higher chain sugars such as starches, but allows some shorter chain carbs such as low-sugar fruits. There is more detail, and if you want to know if a specific food is permitted, you can check. Generally the theory is, less sugar, less problems. Whether it is helpful or not, seems dependent on each individual... and also perhaps because each person has different diseased area of bowel, one food might be tolerated in one person and not in another person, so you end up keeping a journal anyways, to be sure a particular food is ok for you. So it is ..exactly.. a diet that somebody designed, that restricts/eliminates some specific carbohydrates from the menu to avoid bowel problems that these sugary type food can cause.


At http://www.breakingtheviciouscycle.info/knowledge_base/kb/protein_requirements.htm Elaine says, "Remember: SCD™ is not a low carb, high protein diet and those trying to make it one are perverting it." It's the type of carb (complex) that is limited, not the amount of carbs.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Post Edited (spookyhurst) : 10/24/2009 4:22:33 PM (GMT-6)


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/23/2009 8:47 PM (GMT -7)   
The best source of SCD info is the book, "Breaking the Vicious Cycle." The website dedicated to SCD, www.breakingtheviciouscycle.info, is also good.  

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/23/2009 8:56 PM (GMT -7)   
Do you have active disease right now? I really think that blue dye helps me. Two drops in a 6 ounce glass of water in the morning. Three drops in a 20 ounce bottle of water I sip all day. Finally two drops in a 6 ounce glass of water before bed. This way it is running through me all day. This is Blue #1 food color. It makes the stool look a little greenish when I do it right. I've read that Blue1 may cause bladder cancer.................so who knows what the risks are but it is the same stuff in gatorade and ice pops and most foods that are colored blue or green for that matter.

There is some science behind this which I will share with you if you like. I am not a dr or scientist though so you must do your own due dilligence.

You should ask your doctor if this would be safe for you with your medications that you are on. Do that for two weeks until your new meds come????? I had blue jello after dinner tonight.

Post Edited (FunGuy) : 10/24/2009 5:29:09 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/24/2009 7:57 AM (GMT -7)   
Just make sure that whatever diet you decide upon that you continue taking your maintainence meds. I believe that diet and medications should be considered as complimentary of eachother. Also, remember that you should be doing this in conjuction with discussing all with your doctor. We are not doctors here and can share what works well for us. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 10/24/2009 9:47 AM (GMT -7)   
I don't agree that drugs and diet are always complementary technically. For example, Asacol has a lactose base to it so it would be forbidden on SCD. I think the TNF blockers would be complementary as they don't travel into the gut (thought curiously Remicade uses a sucrose base).
Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus
Remission


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/24/2009 10:53 AM (GMT -7)   

True, in some ways diet and meds are not complementary. Sugar is not allowed on SCD but my daughter's Entocort has a tiny amount - because after all it is a tiny pill - of sucrose in it.  

HOWEVER, my daughter has remained symptom-free for nearly three years on Entocort and all clinical trials indicate she should have flared several times within the past few years. Especially since she has been on only one pill Entocort, daily, for two years...that one little pill is supposed to be about as effective as a placebo.

So how do I think she defied the odds? I strongly suspect it was her the impact of her uber-healthy diet, complementing the help provided by Entocort.


Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. On Entocort since April 06. Never had D. Now using LDN to taper off Entocort. SCD multivitamin, homemade yogurt, 2000IU vitamin D3, 900+ mg calcium, 25 mg iron, monthly B12 shots, Krill capsules, occasional zinc. SCD diet modified to include potatoes and rice. 


Terry73
Regular Member


Date Joined Oct 2009
Total Posts : 57
   Posted 10/24/2009 1:15 PM (GMT -7)   
i had a bad reaction to Asacol, pentasa did not work nor did entocourt or imuran (however i am still taking imuran right now) Unfortunately the only thing that works is prednisone at high doses as soon as i get down to 20-30 everything starts again. I haven't really been in remission for the past 2 years. I unfortunately did not get the weight loss side effect thanks to prenisone on and off for past 2 years i have gained over 70 lbs funny cause i barely eat and what i do eat comes out within the hour so not sure how i managed it lol. I am definately talking to the GI on monday i need to get control of this and lose this weight ive gained. Thanks again for all the advice

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/24/2009 1:36 PM (GMT -7)   
The weight gain might in part be your body's response to the "dumping" stuff you have going on. My GI calls it the hoarder metabolism, basically your body is hoarding any calories you take in.

Just in case you might want to think about getting your thyriod checked.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 10/24/2009 3:08 PM (GMT -7)   
The diet lets you use meds even with forbiddens in it and here is why....The thing that I have learned about SCD over the years is it isn't the tiny little forbiddens that makes me sick. But they are forbidden so you get into the habit of thinking you can break the rules with tiny bits of everything. Over the years I can slip things in small amounts in with no problem but when I think I can do it with everything, I start to notice issues.It is all about habits with the diet.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.

Post Edited (aoccc) : 10/24/2009 4:11:13 PM (GMT-6)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/24/2009 3:26 PM (GMT -7)   
Elaine says take your meds, even if there are illegals in them. It's the non-necessary things, like supplements, that you need to look for legal versions of.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 10/24/2009 7:17 PM (GMT -7)   
I agree. If you eat 100% SCD foods all day and then take your meds which contain a tiny bit of sugar or starch it is not going to be a big deal. The thing that gets you is that you start feeling better, so your appetite returns, and you want to go back to eating starchy and sugary foods. This happens to me after being on the SCD for about 3 weeks and has caused me to "fall off the wagon" on many occasions.
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries
 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/24/2009 7:51 PM (GMT -7)   
I haven't fallen off the SCD wagon, but I do still crave sweets A LOT. I love honey and fruit/fruit juice, but try not to overdo it.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 10/25/2009 4:21 PM (GMT -7)   
I usually just indulge my sweet tooth with one of these recipes:

http://www.scdrecipe.com/recipes-candy/peanut-butter-caramels-recipe/
http://www.scdrecipe.com/recipes-candy/uncle-billys-toffee/

You can also use a similar recipe to make an energy bar / nut brittle. Just add nuts and you have an energy bar to use in the afternoons before a workout or just when you get hungry!
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries
 

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