Hemp Oil, Wild Oregano Oil, Colloidal Silver

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jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 10/27/2009 4:28 PM (GMT -6)   
Anyone try Hemp Oil, Wild Oregano Oil or Colloidal Silver????? Any success?
Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus
Remission


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 10/27/2009 5:29 PM (GMT -6)   
Tried wild oregano oil (too much bleeding), and am unlikely to try the rest.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/27/2009 5:35 PM (GMT -6)   
I am not and expert but I believe colloidol Silver is dangerous!!!

Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 10/27/2009 5:55 PM (GMT -6)   
Colloidal silver in and of itself is not dangerous. People get into trouble, however, when they mix it with a salt solution before drinking. There is a whole "blue man" discussion somewhere on youtube about this.

I tried large amounts of colloidal silver and got some relief, however, it helped me to combine it with a healthy diet. Colloidal silver by itself -- while eating whatever I wanted -- did not work for me.
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries
 


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/27/2009 9:43 PM (GMT -6)   
•Over-the-counter colloidal silver products are not considered by the U.S. Food and Drug Administration (FDA) to be generally recognized as safe and effective for diseases and conditions.


•The FDA has taken action against a number of colloidal silver companies (such as Web sites) for making drug-like claims about their products.


•Colloidal silver can cause serious side effects. One is argyria, a bluish-gray discoloration of the body. Argyria is not treatable or reversible.


•If you are considering using a colloidal silver product, talk with all your health care providers. Discussing its use with your health care team is important for your safety and helps each provider make sure that all aspects of your health care are working together.

The above is from about.com. More at http://www.quackwatch.com/01QuackeryRelatedTopics/PhonyAds/silverad.html

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 10/27/2009 10:19 PM (GMT -6)   
Eating silver???
Wow, and some people think medications are dangerous!
I guess it's 'natural' though. lol
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/27/2009 10:49 PM (GMT -6)   
jp, I have Wild Oregano Oil and colloidal silver in my cabinet. I use them in place of antibiotics--primarily for sinus and ear infections. I cannot attest to either of them with respect to using them for Crohn's, although I know Jini Patel Thompson recommends WOO on her website. Sorry, I know nothing about hemp oil...except what I just read on Wiki... smilewinkgrin
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 10/28/2009 12:36 AM (GMT -6)   
 I know there are a lot of questionable people selling colloidal silver, but apparently you can buy a machine to make your own. That guy ... makes his own colloidal silver and has had big time success with it. He also took a couple vials of hemp oil and it did wonders for him. I know there are these concerns with agyria, and that's pretty scary considering it's irreversible.

Post Edited By Moderator (MMMNAVY) : 10/28/2009 4:50:26 PM (GMT-6)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/28/2009 8:37 AM (GMT -6)   
How do I know a , wild oregano from a tame one ? And hemp oil, what do they do, squeeze rope ?
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 10/28/2009 12:19 PM (GMT -6)   
and I know i'm going to get the response that a certain regimen doesn't work for everyone, but that doesn't mean it's not worth a try

______________________________________

Rule 4/11. Flaming/Advocating

Please understand there are parts of that link that is not supportive and this is a support forum.  It is one thing to share your story, it is another thing to tell people to try this...if you have questions please email me at MMMNAVY@healingwell.com.

Post Edited By Moderator (MMMNAVY) : 10/28/2009 11:49:56 AM (GMT-6)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/28/2009 4:35 PM (GMT -6)   
jpnut.... I would probable try eye of newt, and bats tongue if there was a chance of feeling better but I would check with my doc before brewing up a batch..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 10/28/2009 4:49 PM (GMT -6)   
lol!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/28/2009 6:21 PM (GMT -6)   
I know it's really tempting - especially in the first few years after diagnosis - to look for obvious causes and cures for this illness, but I have been a moderator for a few years now, jp, and I have seen many people do themselves a great deal of damage by looking "outside the box" for solutions.

I think we always need to remember that Crohn's has been baffling scientists and doctors for a good many years, and that, if there were an obvious cause and cure, it would have been discovered by now.

I know you won't want to hear this. I know it's preferable to feel that you have some sort of control over your illness. Sadly, I am a fair bit further down the road in my journey with this disease, and have a very different outlook...

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 10/28/2009 7:29 PM (GMT -6)   
all right i'm done with this forum, don't need this negativity, PEACE OUT
Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus
Remission


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 10/28/2009 8:01 PM (GMT -6)   
I don't think it's fair how everyone is flaming jp and pouring scorn on the information presented. If you look at jp's signature, you see the words "remission" in it. Yes, like anything, there could be coincidence; however, it could also be possible that jp is doing something that works in his / her particular case. I think if you limit yourself to only what the medical community offers then you will end up getting what the medical community tells most people they will get: a lifetime of suffering and surgeries with interspersed periods of remission (and that's if you are lucky.) Folks, if you don't 100% agree with someone's ideas, it's fine to disagree and debate, but your flaming of others doesn't contribute anything useful and, quite frankly, makes you look bad.
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries
 


PV
Veteran Member


Date Joined May 2006
Total Posts : 1135
   Posted 10/28/2009 8:14 PM (GMT -6)   
Gosh, we certainly seem to have our share of hot tempers in this forum :-)

This is a discussion forum after all, and we are here because we want other people's input. We can't expect everyone else to agree with us, or have the same point of view. So, if someone has an opinion or perspective contrary to your own, you can choose your reaction.

You can choose to either by offended by another person's opinion or belief and flame them, or leave the forum in a huff OR you can be a little more rational and understand that not everyone is going to reflect the same opinions as you. After all, that's why you're here - not just for emotional support, but to get opinions from other people on treatment options, natural remedies etc.

So, I think it's only fair that everyone on this forum has to deal with each others' opinions, and realize that we all can't agree on everything. Also, jp, please do realize that folks on this forum have a vast amount of experience with this disease - you, like my husband was diagnosed last year - not very long at all. I have to agree with ivy, that it is possible to do a vast amount of damage by trying everything and anything that _may_ help with the disease. So, just be careful, and make sure you discuss with your doctor the things you are trying to ensure that your doctor knows what you're doing, and can help you should problems arise.

One of the things I realized very early on in my husband's hospitalization last year, is that your medical team is very important in dealing with this illness. If you don't give them all the facts, they can't help you as well as they otherwise possibly can. My husband's GI knows everything that my husband is taking, including all the supplements and vitamins etc. So, please talk to your doctor about the supplements you are interested in, if only to ensure that there will be no bad interactions etc.

I have visited this forum practically every day since my husband was admitted to the hospital last year - and honestly, I am just so grateful to all the folks in this forum, for helping me learn more about this disease, the treatment options, and for providing me _positive_ support when I absolutely need it.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 10/28/2009 8:16 PM (GMT -6)   
jp,
If you had emailed me I would have done this privately.
It is not negativity it is just years more of life experience and about having compassion for people who are different then you are. I realize that you do not understand how insulting this advocating this is to those of us who have tried that route and not had success (especially the comments in the link you provided earlier today).
I hope this route you have choosen works for you. I hope you figure out compassion for those who are different then you are.
The stuff you posted today and previously really should have been researched better. You would have found the protocols you mentioned in other posts, so consider yourself lucky that you had your posts adjusted instead of deleted outright for being duplicate posts. 
Do you really think that those of us who are really seriously ill on here, would not have tried a voodoo witch doctor if it would have made us feel better? Forgive us if we are very jaded, because we have had negative experiences and do not like to see anyone else go through that.
I hope your adaptive changes have positive results.
Take Care,
Navy
P.S. You actually might want to really read the rules if you come back in the future.  I would help me alot!


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 10/28/2009 7:38:33 PM (GMT-6)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 10/28/2009 9:03 PM (GMT -6)   
Great post Navy.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 10/28/2009 9:08 PM (GMT -6)   
Carnival Huckster said...
I think if you limit yourself to only what the medical community offers then you will end up getting what the medical community tells most people they will get: a lifetime of suffering and surgeries with interspersed periods of remission (and that's if you are lucky.)
Carnival, where did you get that information from?  I've never heard any doctor say that, and for MOST people it's not true.  How discouraging it would be for someone who was just diagnosed to come here and read that.
 
Keep in mind that most people who post here do so becuase they aren't feeling well.  People who are in remission don't tend to spend time here.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 10/28/2009 9:21 PM (GMT -6)   
That is what my doctor told me back in 1997 when I was diagnosed -- and I had, at the time, one of the best doctors in the country at the university I was attending. Note: at that time the only serious medical treatment option for flares of small bowel was Prednisone and resection. I tried imuran, pentasa, asacol, methotrexate, sulfa, etc, etc, etc, and none could prevent me from flaring. Once remicade and the other anti-TNF drugs came out there were more options and the outlook for someone like me (with moderate to severe Crohn's) may have become a bit less grim. As mentioned in my sig, I also got relief from SCD, which is definitely not endorsed by the medical mainstream. I am sorry to hear it didn't work for you.
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 10/28/2009 9:32 PM (GMT -6)   
I believe there is hope for a cure.
I believe in doing your own research and in your own experience.
I believe that we need to be gentle and take care of one another here.
We are all sick, and we all want to get better.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/28/2009 11:36 PM (GMT -6)   
I surely didn't think I was flaming anyone...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


yori
Regular Member


Date Joined Jan 2006
Total Posts : 56
   Posted 10/29/2009 12:45 PM (GMT -6)   
I enjoy reading about alternative remedies. I believe doctors don't know everything. I have tried many prescribed drugs and alternative remedies over the years for my crohn's. I believe alternative remedies with lifestyle changes can have a huge effect for the better on our disease and they usually are healthier for us than prescriptions. We should respect all forms of treatment even alternative. Everyone should have a choice. I believe in being open minded and willing to learn about things that may take the AMA, FDA, or drug companies years of study and approval to find a cure. It all has to do with money. They make a lot of money on us. I was just reading that the drug companies just recently made a deal with the government to give biologics 12 years of market protection from generic competitors. In the article I read it said biologics accounted for 40 Billion in sales just in the US or 1 of every 7 dollars spent on prescription medicines. Do you think the drug companies are going to find a cure? What would be the motivation? Doctors write prescriptions that's what they do primarily right. I really wish doctors would push lifestyle choices and diet and some alternative remedies. I think we all would be a lot better off. Here is the link about biologics if anyone is interested.
 
 

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/29/2009 2:39 PM (GMT -6)   
I think the one thing to remember is we are all different and so is the disease we are suffering from. Yes, we all may have crohns BUT each individuals case is different. I was once told that there are no two people alike (even twins) so my best guess would be that the same goes for the way each of us suffers from our disease.

I agree that we should all support one another in our journey to feeling better and for those who are newly diagnosed it is hard hearing negative outlooks from those who have been dealing with this disease for a long period of time. Perhaps I am lucky in that I am young and there is a lifetime (my lifetime) of research being performed as we speak and perhaps they may just find a cure. Even if they don't I can't let the "What if's" change my outlook on not letting this disease "beat" me. Yes it is a personal decision to try alternative methods - but I think expressing ones negative outlook towards the disease is what puts a damper on ones emotional state. Frankly, I don't want to know that someone thinks that having this disease is ultimate doom.

I have a disease, the disease doesn't have me. Medications, natural remedies, alternative medicine and a positive outlook on life does help many cope and provides them with relief. Some may find relief from anything in their life and it doesn't have to be something a doctor agrees with. I am a firm believer that positive thought along with acceptance and proper guidance from both the medical community and friends and family you can still lead a fulfilling life.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 10/29/2009 2:45 PM (GMT -6)   
Farfrmnormal that was beautiful and very well said. Thanks for sharing your wonderful thoughts!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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