Yet another colonoscopy?

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 10/27/2009 3:20 PM (GMT -7)   
How often do people get colonoscopies? I had one in January of this year and because I am not responding well to the colazal and cortifoam, have a positive prometheus test for crohn's and symptoms of crohn's , they want another colonoscopy. God, what a year. I also had a polyp removed from my uterus barely 8 weeks ago. So, has anyone else had a similar experience having to get a colonoscopy again so soon? Thanks in advance!
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's
 


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 10/27/2009 3:26 PM (GMT -7)   
Last year, my husband had 2 sigmoidoscopes, and 3 colonoscopies, between March and September. Since then, he's had none.

I think doctors need more information such as location and severity of inflammation and more pathology information (from biopsies) etc. to both diagnose and figure out the best medication options for you. So until you have a good firm diagnosis, and a treatment plan that seems to be working, they will put you through a few colonoscopies.

But once they get you into feeling better - maintaining weight, and able to manage your symptoms etc. they back off, and only do it again either every 5 years, or if you start showing symptoms again. In the meantime, they just make sure your blood work looks fine, your weight is good, etc.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/27/2009 4:35 PM (GMT -7)   
A few years ago I was having multiple bouts of gastritis. My doctors couldn't find out why and so I ended up having repeated tests. I had about 8 colonoscopies, most with an endoscopy thrown in for good measure. It is just the nature of the beast that the doctors can't see if the treatment is working or what is going on, so they need to do testing. It stinks but it is just what we have to go through. Once things calm down, you shouldn't have to go through multiple colonoscopies in a year.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 10/27/2009 4:43 PM (GMT -7)   
Wow, 8 colonoscopies in what period of time?? That's a lot! Was that before you got diagnosed with crohn's or after you had it? What a hassle!! That's a lot of anesthesia and prepping!
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's
 


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 10/28/2009 3:43 AM (GMT -7)   
That's what I said,wow.
8 days of prepping....
You by far are the strongest person I know.
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole(yummy).More over the counter vitamin-D
Remission since surgery and 8-week Remicade.A real freakin medicine cabinet...
.


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 10/28/2009 5:15 AM (GMT -7)   
I don't know how it is for women, but for guys, it is recommended to get a colonoscopy once a year (even healthy people).  This way they can screen for Colon Cancer.  I guess with CD or UC we may get more per year for different reasons, but if all is going well, I would think the once a year is enough.
Crohn's Disease since '88
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/28/2009 6:33 AM (GMT -7)   
Yep,,been there done that. Thought about putting a sign on my butt that said ,,Exit Only...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 10/28/2009 7:04 AM (GMT -7)   
I was told a colonoscopy just to check for colon cancer was not any more necessary for crohnies w/just small bowel involvement than for the general population UNTIL you have had Crohn's for 10 years, then annual colonoscopies are warranted. In our area not too many SBFTs are done anymore either since the advent of CT Enterography.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 10/28/2009 9:31 AM (GMT -7)   
Well, the colonoscopies are how the GI's make money. They don't make any money ordering CT scans~! yeah
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/28/2009 10:23 AM (GMT -7)   
Yes it was well after I was diagnosed. I was having some major issues and being admitted to the hospital on a regular basis. I was not happy about all the prepping, but I also wasn't able to eat anything. I lost about 60 to 70lbs in a few months and no one could figure out what was going on, so I was willing to do just about anything. Eventually, the gastritis and duodenitis just went away. Still don't know what the cause was. The gastritis still comes back, but now I know the signs and can stop eating in time to stop it before it gets bad enough to require hospitalization like before.

Sometimes, visualization of the area is the only way for the doctors to know what is going on. Then again, sometimes its just a shot in the dark. Only you can decide if you want to put yourself through it. I also was only willing to do the pill preps, which are no longer available. If it was golytly, it would have been a no-go.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 10/28/2009 4:18 PM (GMT -7)   
Zanne, they have new preps with Miralax that are way better than the go lightly. Yea, I have to weight out my options here. I am better than I was back in January, but not as well as I would like to be. I keep having flare ups that have made me use 82 hours of sick leave since January. I feel it is too soon for another colonoscopy. My doc is at a major medical center and they only want to see you once a year! Isn't that some s--t? In between, you call in. IF they think you are sick enough, you get an appointment. Otherwise, no. So, I tried another doctor and they immediately wanted to do another scope since my prometheus test said I had crohn's. I mean, can' t they just change my meds based on that? I've heard they decided whether or not to do surgeries based on the prometheus results. This is just a hassle, what else can I say? LOL....
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 10/28/2009 7:54 PM (GMT -7)   
I haven't had one since 2006. I'll only agree to another if it's been several several years, or there is a need to that would effect my treatment. Just being in a flare for me is not good enough reason to go through that. Treat the flare and I'll be good, no need to have a look see! To me it seems to be a money maker. My primary will treat my flare up, without the need of all these invasive tests. Especially since they can't view our entire bowel, and we could very well have inflammation going on up higher in the small intestine. I don't like that they put so much on this one test.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 10/28/2009 8:03 PM (GMT -7)   
Wow, your primary care provider will treat your crohn's?? That seems rare. I agree that a flare isn't a reason to have to undergo another colonoscopy. However with my prometheus test and some crohn's symptoms (fissures) my diagnosis seems in question.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's
 

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