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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/29/2009 2:36 PM (GMT -7)   
Thought I'd check in and find out how everyone is. I'm still adding to my long list of ailments, and still trying to get a handle on
things (not working). I hope you are all good or at least reasonable.

Happy halloween guys LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2009 2:53 PM (GMT -7)   
Nice to see you posting dunny, it's been a while eh...speakikng for myself I'm still taking this DD one day at a time.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/29/2009 4:31 PM (GMT -7)   
How are you doing pb? What's the weather doing in Calgary, any snow yet?
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2009 4:44 PM (GMT -7)   
I'm hanging in there...yep, there's been snow in Calgary, luckily I live about 30 minutes out of Calgary and we haven't gotten as much snow as they have...Most of it's melted there though, but as we all know, tons will soon be on it's way.

How 'bout you?

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/29/2009 5:31 PM (GMT -7)   
We're having so much rain that we're on a flash flood warning, but just 300 miles up the road it's snowing!!! So I'm thanking
my lucky stars.

On the health side of things, my crohn's has been fairly good, however, my pancreas & now my gall bladder are not behaving.
It might sound crazy, but I half way hope that they decide to remove my gall bladder, because that way it might give me some
rest from the pain. Apparently, I now have billary sludge in the pancreas and my billarubin levels are a bit whacky. So I'm thinking
gall bladder removal is a easier surgery than other options, for me anyway lol x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/29/2009 5:46 PM (GMT -7)   
UGH, how depressing!!! Like you don't have enough to deal with...I'm glad your CD is behaving for the most part at least...I frequent the IBS forum here at HW since I have IBS too, and it seems alot of people tend to get IBS after gall bladder surgery, of course it's not written in stone or anything, but lets keep our fingers crossed that you won't get that issue...surgery is never an easy decision but sometimes it's the only option...wishing you the best of luck with it all and keep on posting when you can.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 10/29/2009 7:22 PM (GMT -7)   
Hello Vicky
Glad you popped in to say hi, not so glad you dont sound any better - although the CD behaving itself is a good thing :)
Sheesh - another surgery for you - although if it was me I would just want the darn thing out too - one less pain to worry about.
Keep us posted more often on how you are going.
Take care
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone
Bowel Resection Sept. 07


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/29/2009 9:05 PM (GMT -7)   
Good to see you dunny. I know how you feel with the rain. We have had weeks and weeks of the wet stuff. Hope you get to feeling better soon and maybe a little sunshine as well.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/30/2009 6:55 AM (GMT -7)   
Hey Vicky,

I was just thinking about you the other day and wondering how you were doing? Glad to hear the CD is behaving but so sorry to hear about all the other troubles.

Do keep us posted on what they say about your GB. I have had mine out and no worse for the wear from it being gone.

Don't be such a stranger, you have been missed:)

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/30/2009 7:46 AM (GMT -7)   
Thanks guys. It makes a heart feel good to know you've been missed!! As far as the rain sniper, it's still
doing it, but I guess the sun is shining somewhere LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/30/2009 10:01 AM (GMT -7)   
For all those rain soaked people like me try singing Brad Paisleys " Behind the clouds, the sun is shining".
I've got it stuck in my brain now, but I have to say, at least it's took my mind off everything else LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/30/2009 9:18 PM (GMT -7)   
Just finished our first snow storm of the year. Wasn't too bad 1-3 feet depending on where you live. I lost my gall bladder several years ago and my pancreas went bonkers early this year. That caused me to be taken off imuran. I didn't realize that Crohn's might be responsible for my gall bladder troubles?

Hope the weather clears for you soon...............
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 10/31/2009 8:46 AM (GMT -7)   
Yea, the sun is shining!! FunGuy, I think it's probably more to do with meds we take than crohns itself, but all things
are possible!! I have to say my pancreas problems tend to be more severe than crohns, at the moment. No fun!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/31/2009 9:58 PM (GMT -7)   
Crohn's certainly can have an effect on your gall bladder and pancreas. If you get bacterial overgrowth in the SI - not too uncommon - bacteria can infiltrate the duct that the gall bladder and pancreas use (this may happen more when the SI around the duct is inflamed causing swelling and leakage). Bacteria will cause gall stones and will irritate the pancreas. The pancreatic irritation will result in trypsin becoming active while it is still in the pancreas which is very damaging.

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 11/1/2009 7:43 AM (GMT -7)   
Hi Vicky. I was also wondering how you were doing and I'm glad to hear that at least your CD is OK. Please keep checking in. SB
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/1/2009 8:26 AM (GMT -7)   
You said it Dunny! When your pancreas decides to hurt, crohn's is about the farthest thing from your mind! What a beautiful day today! Bright sunshine and going to be 60 degrees. Great day to crawl under a couple of cars and get the oil changed???? Ok not fun but it won't change itself. Hope you're feeling better. Guy
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/1/2009 8:54 AM (GMT -7)   
Dunny Why did they dx you with lupus?
what symptoms did you have?

They are checking if I have Lupus also so I am curious :)
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009
And now they think I have Lupus :S

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/1/2009 6:01 PM (GMT -7)   
isergodur, gosh that's a mouthful lol, while I was taking Humira I started to get bad leg pains (mainly knee area), wrist & hand
pain & weakness and the worst kind of fatigue. So they decided to do an ANA blood test, that came back as positive. Now that alone
does not conclude that you have Lupus, but it's a strong indication. They then followed up with a DNA anti-body for lupus, that came
back as a strong positive. So that meant I had lupus for real and not the drug induced kind.
With the help of a maintainance dose of prednisone I have some relief of the leg pains. I really don't think that right now my lupus
is flaring, as I'm reasonably asymptomatic. However, when it does flare it's pretty tough going.
I hope this helps some. Why are they testing you?

Guy, yep pancreatic pain is the worst, especially in a acute attack. I had 2 attacks following 6mp treatment, they left my pancreas
scared. Recently it's gotten much worse, they are now trying to find out if I might be at end stage pancreatitis....

Keeper, thanks for that info. It is also important for people to keep an eye on their Triglyceride levels. Some of our medications
cause these fats to rise, and in turn does not do your pancreas any favors. I have a lipid panel done every 2 to 3 months....

Thanks everyone for posting, you've made me feel special LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/2/2009 3:52 AM (GMT -7)   
Thanks for the reply :)

I have positive ANA, sometimes extreme joint pain and I have had fluid in the pericardium of the heart.
My GI is really concerned about it.

I will meet him 11. November I will she what he says then.

But my list of diseases is getting rather long and I am only 25 :P
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009
And now they think I have Lupus :S

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/2/2009 8:01 AM (GMT -7)   
I'm so sorry to hear that. I wish you the best of luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/2/2009 7:23 PM (GMT -7)   
I'm late catching this thread, but I just wanted to say hi. I'm sorry the pancreas is still misbehaving so badly. I think we need further evolution of the human body until we come with snap in/snap out replaceable parts. I'm also advocating for a zipper at the side of the mouth to make dental work easier. Best wishes for better health.
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