Infection after fistulotomy..another abscess why?

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frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/31/2009 2:39 PM (GMT -7)   
Hi,
Only a very short time..after..my surgery on Oct 20th..i am almost healed ..and now i have another abscess..and i don't understand why..i did everything i was supposed to do..but i can see next to where its coming together..a small probally dime size in total..abscess..and its very tender in that spot..and has been since the surgery..which i thought was weird..and tried to think to myself oh maybe its normal..till i saw the pus in the tissue..mind you its healing tissue..and my doctor emailed me back and says it needs to be drained..so that means more surgery..but surgery on healing tissue? I can't believe this..and now i am so sad..i thought i was fistula free..i was so happy..smiling everywhere i went..does this mean i have another fistula? I feel this disease is winning..and no matter how agressive i am..taking Remicade..allowing someone to cut a huge chunk out of my body..still..i get another infection..a never ending cycle..i can't not believe i have to go back for surgery..this is going to be my fourth time since August....what do you think went wrong..i feel so hopeless

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 10/31/2009 2:43 PM (GMT -7)   
Unfortunately this happens sometimes. Plus there can be satilite infection sites. But it really sucks and I am sorry you have to go thru this.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/31/2009 6:42 PM (GMT -7)   
thank you..for replying..whate are satilite infection sites? It does really suck..i am wondering just how much is it going to hurt..to cut..newly healed tissue..probally quite a bit

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 10/31/2009 6:46 PM (GMT -7)   
Hello,

Oh you didn't do anything wrong. I had this happen too. It is fairly common, unfortunately. You story sounds just like mine -- A couple of weeks after Dr. O. drained a small abscess, I got another one in the same spot. I too spotted it early and called Dr. O immediately. He took me in the OR the next day! He really is a caring doc! I too thought I had done something wrong and he said no -- sometimes the incision heals unevenly. It just happens.

For my first two abscesses, Dr. O opened them up and they healed just fine. It was my third one that healed unevenly. I am so srry it happened to you. But aren't you glad you can now spot an abscess when it is small? And that you have a very responsive and excellent Doc!!!!! I can now spot an abscess in the dark from a mile away. I am like an abscess hound dog. Not something I can put on my resume, but a very handy skill indeed! Never again will I let one go untreated!!

So let Dr. O take care of it for you and I bet you will be done with it.  Take care!


Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/31/2009 6:53 PM (GMT -7)   
aww Fallcolors..you are so funny..you are making me laugh.."abscess hound dog"...ha ha..at least now i am smiling..he was really nice..i emailed him and he wrote back in like five minutes..and told me since i am seeing him on Monday that we will drain it very soon...we should both put it on a resume..thats hilairious..how about this..the ability..to stand on one foot..with a hand mirror and a flashlight..as we inspect our bottoms..for signs of infections! lol..when you think about it..its kind of funny :)
I love Dr. Orkin....though..he is great!

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/31/2009 6:54 PM (GMT -7)   
Actually it sometime is easier because the hide has not regrown the nerves, but I do not know if you had any nerve cuts.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/31/2009 6:57 PM (GMT -7)   
I think i must have had some nerves cut..because i have had some nerve pain..plus the wound..was like a few inches wide..by a few inches deep..it was huge..and very weird..to see that on myself....i even saw what looked like blood vessel that seemed to have been cut..that dried up..at least that is what i thought it was..and the packing..sort of pulled it out one time..ouch!

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 10/31/2009 7:00 PM (GMT -7)   
Mine didn't really hurt. Maybe the nerve thing MMMNavy mentioned.

It is all disheartening, but you just have to remember that your tissue was all damaged down there by the abscess and it will take some time to completely heal. It is two steps forward and one step back -- but you are still making progress! I used to lay on my back in bed by a lamp and look with a mirror. Not real attractive!!!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 10/31/2009 7:08 PM (GMT -7)   
ha ha..hard to picture that one..i guess we have all been there..its so unfair..mind hurts in a sore spot kind of way..this is the one spot....that hurt all along..and i couldn't really understand why that was...its just that one area..that never got better..

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 10/31/2009 11:46 PM (GMT -7)   

Hi Frogelita, I am so sorry this is happening to you. The same thing happened to me - after my first abscess surgery, there was sepsis which would not drain from the wound, and it got more and more painful, and I knew something was up, so I saw a surgeon as soon as I could and had to have tge mushroom inserted. I have only just had my mushroom removed, so it was in for about 4 months. The 2nd surgery was much less traumatic, and less painful for healing because I caught it 'quick smart' before it got huge (like the first one). Hopefully your experience is the same. Did he say if he is putting a seton in? Or a mushroom? Or just laying it open?

 

Let us know how it goes, thinking of you....... I know how hard it is, when I heard the news that I would have to have a 2nd surgery only weeks after my first, i broke down. But it is for the best and it will clear....

 

 

xx


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 11/1/2009 12:01 AM (GMT -7)   
Hey Phoebe...whats up? How are you feeling these days? Good to hear from you:)..actually on Oct 20th..he removed the fistula..layed it open and removed all surrounding tissue..and i was healing..and happier than ever..to only get an infection as it healed..now i am not sure why..i am nervous that i might have another fistula..and i have a feeling..that he might put a drain in me..a mushroom drain like you had..because maybe..i am healing..faster than this stuff can drain..and i need the help to drain it all out...i will find out on monday and be back to post..i am trying to keep my head up..but i broke down earlier and cried..when then had my daughter crying too..and i felt bad..like i was ruining Halloween for her..so i sucked it up and went trick or treating anyway..even in the rain..i feel the same way you felt..its like i just had surgery..and i had a huge chunk taken out of me..how painful will this be? Hope all is well with you and you are responding well to the Remicade :)

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 11/1/2009 12:13 AM (GMT -7)   
I'm doing pretty well Frogelita, responding well to the remi but I have had some strange side-effects recently and had a blood test yesterday so they can check and make sure everything is ok....... I had the same thing happen, the doctors said the infection wasn't draining 'fast enough' and there was too much infection and it was closing up again and containing the infection to the side of the wound. So my 2nd abscess was really a 'branch' of the first one (which was deep) and it wasn't draining properly. The Mushroom ended up being quite comfortable at the end, but there were a good few months of pain and discomfort from it, especially when it 'grew' longer and pulled this way and that, but I learnt to snip it carefully shorter..... in the end it came out very easily, they just popped the air at the top of the mushroom and it slid out painlessly. But I had to sit on one but cheek for a few months. Sitting to the side.....
 
Hopefully they can do something easy for you, I know the mushroom is difficult to live with, but you will be prepared for that (unlike me, i didn't know anything about the mushroom drain when I had it put in!) and it is definitely well worth it, because it works and it heals the infection and the pus can drain easily once the drain is in, and dries up gradually. Nothing is worse than the feeling of an abscess, so it will be a relief for you to have the sepsis removed. I hope it all goes well for you, please do keep us posted :)

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 11/2/2009 7:52 PM (GMT -7)   
smurf  Hi Phoebe..i am so glad you are on Remicade..i have some weird side effects..but the way it helps me..its worth it..at least to me...guess..what..i went to the doctor..no abscess! I was wrong...and i am happy to be wrong..he told..me green stuff..its normal..when you have a wound so deep..plus he said i am just seeing drainage..and i need to keep packing it..and he told me..he was really impressed..that i have healed..about maybe 60 to 70% and its just two weeks now. So i am happy..he assured me again lol..yes the fistula is really gone and i am healed on the inside..i guess i let my anxiety get the best of me..its hard with this disease..and tomorrow is my third treatment of Remicade! :)

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/2/2009 8:10 PM (GMT -7)   
Yay!! I have my 3rd treatment on the 16th of November! i had every 2 weeks, then every 4 weeks, then 6 weeks and eventually it will be every 8 weeks!!

What kind of side-effects did you get Frogelita?

I am sooooooo so glad for you that you are healing up and it’s not another dreaded abscess!! Yay!

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 11/2/2009 10:21 PM (GMT -7)   
Thanks Phoebe..guess what the 16th is my bday! I turn 33! lol...well at first I had sweating..extreme sweating..and i did notice..that i was having chest pain..but i have Lupus..and i might have pleurisy..which is not serious..in fact..i do nothing..unless it bothers me...but that went away..but then i had bloating..really bad...and i gained weight..probally cause i wasn't sick all the time...and i get these pin point red dots...that don't hurt..but they turn into a blister and go away..and i still have joint pain..that doesn't really go away..except i am no longer limping in the morning..thats about it for me lol..i am so happy to not have another abscess

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/2/2009 10:38 PM (GMT -7)   

Was the Lupus induced by the remicade or did you have it before the remi? Do you think the weight gain could be partly due to the thyroid problems too? Did you gain a lot? That’s no good that you’ve had side-effects…… I’ve had some weird ones too but I am going to wait and see what the Dr says before I start freaking out. The good news is I’m feeling good and my surgeon was so impressed with things ‘down there’ and I finally had my mushroom drain removed! Yay! I am sooo glad you don’t have another abscess! These things just take a very long time to heal, don’t they?


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 11/3/2009 2:48 PM (GMT -7)   
no the Lupus..was diagnosed..before i even went on Remicade..the weight gain..is because i am having formed stools..and not going as much to the bathroom...my thyroid..is hyperactive..which is from my Lupus..which actually would make me lose weight...but its only slightly hyperactive...i am so glad you are finally mushroom free! Do you still have your seton? These things do take time to heal..but each dose of Remicade..you should notice an improvement somewhere..my fistula did shrink down inflammation wise..which made it easy for my surgeon to surgically remove it...thanks all to Remicade for making that possible...

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula removed..skin tag removed!

 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/3/2009 3:54 PM (GMT -7)   
Yeah my surgeon decided to leave the seton in because the area where the fistula was laid open is still healing, it was quite a deep wound and is taking its time but all is going well (touch wood). And I am more than happy to leave it in for a bit longer, setons are a breeze compared to mushrooms! So it is coming out in December, yay!! I don’t even know its there most of the time….. quite happy to leave it in!

I’m just curious Frogelita – is your Crohn’s in the small bowel, large bowel/rectum, or both? I don’t usually lose a lot of weight when I’m in a flare as my crohn’s is mostly in the large bowel and peri-anal/rectal area (as far as I can tell), not so much in the small bowel where a lot of nutrients are absorbed. Though I do know I also have a stricture higher up. Having formed stools is sooo good though and not having to get up in the middle of the night, yay!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 11/4/2009 5:39 AM (GMT -7)   
Hello! I am so happy it wasn't another abscess!!! Yeah!!!!!!!!!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

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