Do people with Severe IBS have it worse than people with IBD?

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UC21
Regular Member


Date Joined Oct 2009
Total Posts : 68
   Posted 11/2/2009 2:55 PM (GMT -7)   
Sorry, but I didn't know how to word this question.

I was curious. My doctor said that while the medical field knows a lot about IBD and its causes, it knows nothing about IBS, and it's cause...

How can you effectively treat something without knowing what causes it... At least they know that IBD is autoimmune.....

bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 11/2/2009 5:00 PM (GMT -7)   
Not sure what your question is? Is it "Is IBD worse than IBS?" I think most would say yes to that...IBD is a chronic disease while IBD is not considered a disease, but rather a syndrome. There is some good info about this on the CCFA website: http://www.ccfa.org/about/news/ibsoribd.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (10 mg daily...for a few more weeks), Nexium (40 mg daily)
**Previous meds: Colazal (allergic); Flagyl (off and on for rectal inflammation); Rowasa (enemas only when needed); various pain meds (but luckily none lately); iron IV infusions (when hemoglobin gets low)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/2/2009 5:18 PM (GMT -7)   
I wouldn't say they know alot about IBD, they certainly don't know near enough about it to cure it anytime soon...many IBDers suffer with IBS as well...you could take a mild IBDer and put them up against a severe IBSer and definitely say the IBSer is having a worse go at it.

IBD is chronic but many if not most IBSers are chronic too, although the medical field may not lable them that way, that doesn't mean they aren't.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 11/2/2009 6:15 PM (GMT -7)   
One word: perspective.

I have both- I would rather have only the IBS with constipation than all the bull that goes with my crohn's. Including the external manifestations, the fistulas, the abscesses, and the endless cycle of pain...


Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Three abscesses that are now fistulas.
On: 6MP, 20mg Prednisone, Zoloft, Cimzia (working so well, I'm on Miralax too!)
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction


bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 11/2/2009 6:35 PM (GMT -7)   
Agree with "not creative" - while the physical symptoms may be the same (cramping, diarrhea, etc.) it is much "easier" (loose quotation marks there) on your body to have IBS because it doesn't have the long-term implications IBD does...inflammation, intestinal scarring, increased risk of colon cancer, likely surgeries. I wonder if anyone with IBS has ever had to have their colon removed...I'm guessing no.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (10 mg daily...for a few more weeks), Nexium (40 mg daily)
**Previous meds: Colazal (allergic); Flagyl (off and on for rectal inflammation); Rowasa (enemas only when needed); various pain meds (but luckily none lately); iron IV infusions (when hemoglobin gets low)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/2/2009 6:37 PM (GMT -7)   
I agree with perspective playing a big role in both. The extra-intestinal manifestations of Crohns are really terrible to deal with! Either way thanks for the interesting post I think I'll do some research on the differences
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


farcry
Regular Member


Date Joined Oct 2009
Total Posts : 25
   Posted 11/2/2009 8:24 PM (GMT -7)   
I've been diagnosed with IBS and I would say IBD is worse for the same reason bookgal77 mentioned. However, there are a very select few that usually have very intense IBS-C that have had their colon removed. There are some people who have IBS-C so bad that they have like 1-2 bowel movements per month. My personal worst was a 10 days and that felt horrible. I can't imagine a whole month.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/2/2009 9:15 PM (GMT -7)   
I watched a health show with a guest that had severe IBS-C who claimed she had gone through many times where she didn't have a BM for over a month....I would not trade with her...although I have both IBD and IBS I don't have IBS-C, my IBS increases my frequency and at times mucous.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

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