Hi all -
Just wanted to get some perspective on symptoms I've been having recently. Severe flare earlier this year that brought with it extreme joint pain. Been doing better...though not fully in remission (latest scope revealed moderate inflammation).
Problem is...last few weeks I've been having what seems to be a combination of joint pain, muscle pain, and nerve pain. I am just so achy all over. My hands hurt from my fingers to my wrist, my feet hurt (hard to walk at times), my neck is sore, my shoulder is sore, and I am having problems with my elbow. Great to be me right now. Went to my rheumy and he upped my prednisone (been on it for 8 months now) and sent me for a bone density scan. Find out the results next week when I go back to see him, but what can I do in between then? It is worst at night and in the morning. Can't take NSAIDs so the doc gave me a gel (voltaren) that doesn't seem to be working much.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (10 mg daily...for a few more weeks), Nexium (40 mg daily)
**Previous meds: Colazal (allergic); Flagyl (off and on for rectal inflammation); Rowasa (enemas only when needed); various pain meds (but luckily none lately); iron IV infusions (when hemoglobin gets low)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).