Hmm, I think you need a new doctor, if he's not really caring about your quality of life. Did you get a pathology report from the intestines they removed? Can they say conclusively that it is Crohn's? I've read that Ankylosing Spondylitis an also affect other organs, so be sure to discuss your pathology report with your doc. Also, while you were in the hospital, when they thought it was an infection, did they do any stool tests to figure out what you were infected with?
Also, I think they removed quite a bit of intestines. It not only takes a while to heal, it also takes a while for your intestines to learn to function again given that part of it was removed. It will take a while for it to figure to have normal stools again. Also, I've heard that when you remove the terminal ileum (and it sounds like this is the case with you), you can have diarrhea, I think because you lose the ability to absorb bile acids. I think doctors generally prescribe a cholesterol medication called Colestipol (or questran) to bind the bile acids and thicken up the stool. In addition, you need to probably start slow on food - I'd recommend a liquid diet for a while, and when you're able to tolerate that, go on to a low residue soft diet that is easy to digest - like white rice with chicken, jello, crackers, chicken noodle soup, white bread etc. And you need to learn what your body can tolerate - so start keeping a log of what you ate, and how you feel, the quality of your stool etc.
Also, another thing I've heard is that if you don't have the terminal ileum, you lose the ability to absorb B-12, which is very essential to the body. So, they will probably tell you to get B-12 injections on a regular interval.
Remember your body has been through major surgery, your recovery is going to take a while. Remember to keep yourself hydrated, and take it slow on the foods. If you are losing too much weight, they can feed you with peripheral parental nutrition until you are able to take in enough calories by mouth. Also, talk to your doc about the biopsy results, and also about Colestipol and B-12 injections. Also, probiotics (good bacteria) can probably help with the diarrhea - but initially they may give you gas. My husband takes VSL#3, but there are others on the boards who take Culterelle, Align, etc.
Hope you start feeling better really soon.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life