no medication after surgery??

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CN1980
New Member


Date Joined Sep 2009
Total Posts : 10
   Posted 11/4/2009 5:47 PM (GMT -7)   
Before I was discharged from the hospital (resection surgery Oct. 13th) I spoke to the surgeon (I live in a rural area and the hospital I had my surgery does not have GI's on staff) about maintenance meds and he said that I didn't need to be taking anything as there was no research to suggest that maintenance meds actually help with preventing (or prolonging) recurrence?????
 
I've done a lot of reading of posts on this site as well as others and from what I read I really feel like I should be taking something because I certianly want remission to last as long as it possibly can. 
 
I am scheduled for an appointment with a GI in Jan. and I am hoping that he will prescribe something in terms of maintenance.   In the meantime, prior to the surgery I was taking pentasa and my prescription is good for much longer on those...I've resumed taking those even though I didn't discuss this with any doctor...bad idea?
 
 

Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/4/2009 6:01 PM (GMT -7)   
I you have Crohn's then I completely disagree with what your doctor said, but admittidely most of the maintenance meds I have tried (Asacol, Pentassa, Imuran) have been completely useless for me and have sometimes made things even worse. Some people actually do pretty well on Imuran, 6MP, and Methotrexate. If I were you I would try the SCD and combine it with LDN. Now is the perfect window of opportunity for you to ramp up on LDN because you are presumably in remission and are not taking any other meds.
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


CN1980
New Member


Date Joined Sep 2009
Total Posts : 10
   Posted 11/4/2009 6:26 PM (GMT -7)   
sorry for not being more specific :)  yes, I do have crohn's....narrowing in the portion of the bowel that was removed, was always the problem....led to frequent obstructions...
 
I have been eating...well in some respects, pretty carelessly...mostly all types of foods...   However, the last things I want is for the remission to be short lived....I have looked at the SCD, but I'm not sure I could manage or stick with a diet like that...

Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/4/2009 6:46 PM (GMT -7)   
If the diet is not an option for you I would not walk, but run, to your doctor to see about LDN.  From what I understand it has basically the same toxicity as asprin.  That is to say it is basically non-toxic and, in clinical trials, has been close to the effectiveness of prednisone.  If you are not taking anything right now as maintenance (and are not doing anything special with diet) that is sort of the equivalent to standing in the middle of an open field with your pants around you ankles -- an invitation for something to bite you in the ass!  All of this is just IMHO of course :-)
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/4/2009 9:17 PM (GMT -7)   
I just had surgery a little over a month ago. My surgeon said it was okay to stop the Humira, but that I should stay on a maintenance drug (Pentasa, in my case). He said the meds you're on after surgery have a lot to do with how your incisions heal and how the scar tissue forms. I guess doctor's tend to have differing opinions.

EDIT: SCD really isn't that hard to follow. But if you go with LDN, you'll need to at least follow an anti-candida diet. I've read that it's important for the LDN to work well.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Post Edited (spookyhurst) : 11/4/2009 9:20:31 PM (GMT-7)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 11/5/2009 6:23 AM (GMT -7)   
I was on Pentasa, 6MP and varying doses of Prednisone after my last resection, heck after all of my resections. Eventually the Pentasa stopped working for me and I added in Xifaxan instead, but this has been the magic combo that has kept me out of the operating room for the last 12 years. I am a firm believer in being on some maintenance medication or combination. What caused me to have 3 re sections in such a short period of time, no maintenance drugs, pure and simple. I believe that diet is important and can help you feel better, but it can not stop the microscopic damage that is being done. I spent 10 years unmedicated because I was undiagnosed. I at a very healthy diet and restricted my food intake to only foods that didn't bother me. I actually felt pretty good during that time, but the disease was working its magic and it took 3 re sections to get things under control.

Can you call your GI and ask for advice? I would not be going on the word of a surgeon, I would want to speak with a GI. And if I couldn't talk to my doctor, I think I would start the Pentasa on my own until my appointment. Since it isn't like Prednisone and you can just stop it, there is no harm done if the doctor wants you on something else.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/5/2009 7:23 AM (GMT -7)   
My personal opinion is go ahead and take the Pentasa, it can't hurt. I am a firm beleiver in maintainence meds, as I learned the hard way what happens when you don't use them. After my first resection, I was not put on maintainence meds and was basically told the same as you, "oh, you shouldn't need any meds now that you had surgery". WRONG!! I ended up having to have another resection 3 years later. I am only maintained on Asacol right now, and have been in remission for awhile. I will never be med free again, the consequences have been too painful for me. JMHO

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Lucillemom
Regular Member


Date Joined Apr 2005
Total Posts : 183
   Posted 11/5/2009 12:13 PM (GMT -7)   
I had a resection last feb., i was told to continue my asacol cause that will help to make sure I don't get colon cancer. I also was told to stay on remicade it would help me stay remission.





Hemi and Fissure surgery that developed 2 abcess deep in my left cheek, by my rectum...(oh how fun!) Medication: Asacol 12 pills a day, Immuran 200 mg, Welchol 4 pills a day for diarhea

Pregnant for my second baby that is due Nov. 1, 2007

Thank God for my adorable daughter, who makes me smile
<FONT color=red>everyday!


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/5/2009 12:41 PM (GMT -7)   
Hi, I was also told i wouldn't need to take anything by my GI's sidekick i had to literally demand somthing i am now on Pentasa if i was you i would continue with yours till you get to see your doc. Bev
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 11/5/2009 11:05 PM (GMT 0)   

Hi CN1980,

I recently had a small bowel resection (7/30/09) due to stricturing from Crohn's, and my GI doc said I should ABSOLUTELY resume maintenance medication.  To give my body a chance to do some healing post-surgery, he had me start up my meds again about one month post-op.  My "maintenance medication" is Humira every other week, as I'm allergic to everything else.

Good luck!

 

 


54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  

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