SCDers Frontline Against Crohn's Disease

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Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/4/2009 7:47 PM (GMT -7)   
Hey everyone,
 
I took some of your advice and ordered a bunch of SCD-legal probiotics and vitamins.  I haven't been taking my vitamins recently because they have SCD-forbidden ingredients, which probably hasn't helped things.  Anyhow, here is my "frontline" strategy against Crohn's in addition to doing the SCD.  Hopefully this will allow me to finally taper off the steroids:
 
SCDophilus from GI ProHealth -- 3 Billion CFUs of Acidophilus / day
Saccharomyces Boulardii from GI ProHealth -- 3 Billion CFUs / day
Freeda Vitamin D -- 3000IU / day
Freeda SCD Calcium Complete
Freeda SCD Multivitamin
 
Any thoughts or feedback?  Maybe some extra Vitamin B?  I left that out because I have not run into major Vitamin B problems, but have been low on D on one blood test.  Someone also mentioned bee propolis helping them so I am ordering that with a credit I have at another store.

Best,
CH
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/4/2009 9:26 PM (GMT -7)   
Just a FYI, I think bee propolis is illegal on SCD.

Personally, I wasn't a fan of the Freeda vitamins because they were so dang hard to swallow! I've since replaced them with other vitamins. Elaine helped them develop the calcium, multi (and the b-complex) though, which is a plus in my book.

I wouldn't start the acidophilus and s. boulardii at the same time, just in case you have a reaction or have die off. Start with a small amount of one, and increase it as tolerated.

Good luck!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/5/2009 3:44 PM (GMT -7)   
Hey man I hope you are doing better. Just wondering if you have the SCD yogurt going? That is about the only pro-bio that I could ever tolerate but my body loves the crap lol.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/5/2009 4:35 PM (GMT -7)   
I love the yogurt too! I started making it with organic milk, and it tasted even better!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/5/2009 9:22 PM (GMT -7)   
I haven't been able to handle the yogurt yet. One kind of funny mistake I made: Elaine says to start with 1 teaspoon per day. I made my first batch and used the entire liter to make a big-gulp sized smoothie that I then drank in one sitting .... BIG mistake on my part! Once I feel able to tolerate it again, I was going to make the goat's milk version of it. Supposedly trader joe's is carrying organic goat's milk these days.
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/5/2009 9:38 PM (GMT -7)   
I think the 1 tsp thing is mostly for ASD kids. Personally, I started out with 1/2 cup.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/6/2009 7:45 AM (GMT -7)   
Yeah i had to wait along time to tolerate yogurt. I could have probably got sick on a teaspoon to at that time so maybe it works for grown people too lol.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/6/2009 2:33 PM (GMT -7)   
I don't get why you can' t tolerate yogurt, is it lactose intolerance? Why is Elaine G suggestioning just one teaspoon of it?

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/6/2009 3:41 PM (GMT -7)   
Most lactose will be gone if it is SCD yogurt. Other milk proteins some people can be sensitive to.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/6/2009 4:09 PM (GMT -7)   
BeeSting said...
I don't get why you can' t tolerate yogurt, is it lactose intolerance? Why is Elaine G suggestioning just one teaspoon of it?


Hi Bee! The main reason she suggests this is because introducing so many beneficial bacteria at one time can cause a die-off of bad bacteria, especially when on the SCD. This die-off is a good thing, but it can make you feel lousy for a few days and cause extra gas and bloating. Many people perceive this to be an inability to tolerate the yogurt, when this really is not the case. If introduced very, very slowly, a person is less likely to feel or notice this adjustment period.

Lactose intolerance should not be a problem with the home made yogurt, but as aoccc said, sometimes people are sensitive to the protein, casein, in cow's milk.

Carnival Huckster, you might be interested in getting your hands on a cook book (which really is waaaayy more than a cook book--it's fascinating!) called "Nourishing Traditions" by Sally Fallon. It's one of my all-time favorite books! It has an entire section devoted to fermented foods you can make. Who knew that home made fruit chutney had beneficial bacteria in it? Certainly not me! shakehead Also sauerkraut, the way our great-grandmothers would have made it; loaded with beneficial bacteria! More possibilities for consuming the good guys to crowd out the bad guys! yeah
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/8/2009 8:32 PM (GMT -7)   
Thanks for the tip on the fermented foods -- I am going to try this as a tactic for easing myself into the yogurt. I have not been able to confirm that die-off happens (at least not for me) with probiotics. A few years ago I tried that Primal Defense stuff that Jordan Rubin makes and it did nothing for me :-(
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries

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