Choosing an Enteral Nutrition Product

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Alford
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/5/2009 10:23 AM (GMT -7)   
I'm going to go on enteral nutrition for a while.

How do I choose a product?

Is there anything that is SCD compliant?

Nutren? Peptamen? Vivonex? Elemental? Semi-Elemental? Polymeric?

:::::::::::

Alford
30 y/o. Crohn's Disease 10+ years. Large Intestine, and part of the Valve.
Only thing that has worked over the years has been Remicade.
This time it's not kicking in like it has in the past.
Blood every time. Urgency.

Alford
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/5/2009 12:26 PM (GMT -7)   
Doing my homework out loud here...

The Three Types of Enteral Nutrion Formulas:

polymeric formulas contain whole proteins
Products: ensure, boost, nutren

elemental formulas lack whole or partial proteins
composed of amino acids, fats, sugars, vitamins, and minerals
Products: Vivonex

semi-elemental formulas contain either peptides or a mixture of peptides and amino acids
Products: peptamen

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/5/2009 12:37 PM (GMT -7)   
Hi Alford!

Here's a new book out on the subject. It has everything you'd ever want to know and is extremely well researched!!! Personally, I would stay away from the Boost and Ensure type products. jmo.

http://www.amazon.com/Crohns-Getting-Remission-Enteral-Nutrition/dp/0982123442/ref=sr_1_1?ie=UTF8&s=books&qid=1257449629&sr=1-1
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/5/2009 12:46 PM (GMT -7)   
None, I'm afraid, is SCD-compliant. Part of the purpose of these formulas is to give you a pre-digested product to make absorption easier, so the carbohydrates that are included are necessarily simple sugars or simple starches. Try to think of this as a different dietary protocol, with its own rules that have been tested and work for this particular treatment. As far as choosing among them, they are all good options, none has been proven better than another, so I would focus more on what tastes best to you (unless you have other medical conditions that could affect the choice, such as type 1 diabetes). The companies will often provide samples.

Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/8/2009 7:05 AM (GMT -7)   
Good for you! It's great! It's doing wonders for my daughter.
I agree with Writer that the taste is very important. After trying many different ones, my daughter has settled on the ones made by Nutricia. They are the only ones we found that don't create a build up on your tongue, and that have good juice like fruit flavors. It was also much cheaper than the Nestle and Abott products.
For free samples, email Christine.Graham-Garo@shsna.com
This person was extremely helpful and sent me samples in all their available flavors.

The books recommended by Emom has been my source. Read it! It is great, and gives you a lot of info that you will use.

My daughter is on her 4th. week, only 2 to go. The question now is what's next. I'm seriously considering SCD.

Keep posting, I'd like to know how it went.
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Peptamen Jr and Vital Jr.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/8/2009 4:49 PM (GMT -7)   
Catasmom,

I'm glad that your daughter found a product she likes. Since she's doing so well with enteral nutrition, have you considered using that rather than the SCD for her maintenance therapy? It would mean she could go back to her normal diet, and just drink a couple cans per day of the formula alongside.

Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/8/2009 5:11 PM (GMT -7)   
Hi Writer,
yes, I have considered enteral as supplemental. I am not sure what is better. I am very attracted by the possibility of a 2 year diet that will give her the results I read SCD brings about.
At the moment I don't have Cata's cooperation for SCD.
What is on your mind? any feedback is soooo welcome!!!
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Peptamen Jr and Vital Jr.


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 11/8/2009 5:42 PM (GMT -7)   
here in Croatia we use Modulen .. I like it more than ensure (the only other product I've tried)
Modulen is made special for people with Crohns
 

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/8/2009 5:43 PM (GMT -7)   
I was just thinking that a regular diet plus a couple of cans of formula could be easier for her than a diet that would affect the whole family. There aren't a whole lot of studies of supplementing, but those that exist show strong results.

Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/8/2009 8:45 PM (GMT -7)   
Writer -- I don't know a lot about enteral nutrition other than a few things I've read on the internet. It sounds like you are suggesting the people get results when the eat a normal diet and supplement it with the enteral nutrition products. I thought the patient had to be on nothing but the enteral nutrition to get results. Do you have any further info?
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/9/2009 5:18 AM (GMT -7)   
To induce remission, most people need to be on enteral nutrition exclusively for several weeks, but then switching to use it as a supplement can help maintain remission. It seems that for most people, supplementing only is not enough to get into remission rather than maintain it. That said, some people do reach remission without exclusive use, just by supplementing, but it is much less common and, when it works, seems to require taking large quantities of the supplement.

Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/9/2009 5:44 AM (GMT -7)   
Writer, thanks, this is what I was thinking too.

Escalador, I did want to try Modulen, but it is not available in the US. It did strike me as interesting to read it was made for Crohn's specifically.
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Peptamen Jr and Vital Jr.


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 11/9/2009 6:08 AM (GMT -7)   
you lost me on that...modulen is the nestle product ..you saying its not made in us?

anyways i dont recommend casein products because of the similarity to gluten and so forth. How to choose a product I suppose if your belief in that crohns is malfunctioning in the protein digestion, fat or carb...same as a diet how to choose that...since we dont know for sure. I suppose that would be trial and error. protein will be mucuosy. fats may be problematic from malabsorption. so that leaves carbs. and thats not going to be approved by the second part of the question for SCD. Post again with your choice. rolleyes

Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/9/2009 2:26 PM (GMT -7)   
medchrt1,

Modulen is a Nestle product but it is NOT available in the US. If you go to the Nestle site, you will see you need to choose your country, and then you can see what is available.
The Nestle product availale in the US that was recommended to us is Peptamen (my daughter grades it really low in the taste level)
We are using Splash E028 from Nutricia (best rated flavors according to my daughter: orange pinapple and Tropical fruits.) .....Maybe that's because we live in Miami! turn
This formula is very similar to the one used in medical trails mentioned in the Oppenhimer book "Beat Crohn's...."
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Peptamen Jr and Vital Jr.

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