Hi everyone, I wanted to see what everyone's symptoms have been since dealing with Crohn's. I have battled with this lovely disease for 10 years, about a week after my daughter, 2nd child, was born. I have been in the hospital 2 times and have had to have 2 blood transfusions. about a year ago I started having different type of symptoms besides the normal pain in the tummy, diarrhea and aches- as if I have the flu but no other symptom of the flu. about a year ago, I started experiencing major bloating in the upper portion of my stomach. I also had major gas, but not from releasing it, NOT being able to release it. I would be up all night sometimes and then throwing up- I was drained and had to take the day off of work. My stomach hurt but it was a different type of pain than the normal cramps (isn't it great how your stomach can hurt so many different ways?) I also get anemia several times in a year and have to be treated for that. I had a small bowel follow through x-ray a few weeks ago and it was determined that the Crohn's is severe enough that I may have to have my first surgery to take out the diseased part of the small intestine. I am on prednisone (40mg) a day for 3 weeks then will start to wean off. I am then supposed to start thinking about going on Humira. I am truly overwhelmed. I have dealt with this for a long time, but I truly thought surgery would be when I was so down and out that it was the last option. Although I am suffering with all of this I have been able to function pretty well in my work life. I get extremely tired and can not concentrate, but am pretty used to that. I did research Crohn’s right after first being diagnosed many years ago but am starting to look into this disease again. One of the things I find different than anyone else is I am not underweight but am very much overweight, going on prednisone right now is a real stress for me. I know I need to eat more healthy, but with the budge that I am living on it’s pretty hard to buy some of the healthy foods that are available. If anyone can help me out by giving me some tips, advice, similar symptoms or anything you think I would benefit from I would greatly appreciate it. Thank you for taking the time to read this.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
Post Edited (MMMNAVY) : 11/7/2009 3:11:12 AM (GMT-7)