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ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/6/2009 5:14 PM (GMT -7)   
Hello everyone,
I'm glad I came across this messageboard. I have been dealing with Crohn's for 16 years. My recent remission was  for 20 months. I recently had 3 episodes since Memorial Day, It seems they come every 2 months now!
I take 6 MP and Pentasa. My crohns deals with bowel obstructions only.  I asked my specialist if there was anything I could take when I know its going to start to help ward it off, he thinks preinsone. Does anyone else take this is or anything else if they feel the bowel obstuction coming on??
 
I also have a hard time the last three times with cramping of my legs when I am vomiting and getting dehydrated.  I have my stomach to worry about and then the cramps in the legs start, they are so painful. I'm hoping that someone can help me with this that maybe has dealt with the same experiece.
 
Thanks Bunches!

sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 11/6/2009 5:43 PM (GMT -7)   
Entocort is much safer than prednisone. Try asking for that. That could be a coarse of treatment for a while and then slowly weaned off.
 
You are more prone to bowel obstructions if you have strictures.  It may be time for your GI to take a look around.
 
I'm surprised your GI hasn't ordered tests for you yet like a colonoscopy of Small Bowel Follow Thru. It can become serious, especially since you are having obstructions every two months.
 
Are you on a Low Residue Diet while you are flaring?
~sukay~
 Bipolar - 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
 
Leo Buscaglia


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/6/2009 11:16 PM (GMT -7)   
The leg cramps are probably due to electrolyte imbalance if they happen following vomiting and dehydration. Pedialyte or soda water would be useful for both hydrating and adding some electrolytes. Pedialyte is preferred, but soda water is better than nothing - and better than gatorade or similar sugared sports drinks. The sugar can cause problems like gas and bacterial growth in the small intestines. BTW, sukay's comments are spot on.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/6/2009 11:50 PM (GMT -7)   
Last time I heard a crohnie complain about sever leg cramps that ended up leading to them not even being able to walk was due to lack of potassium, start eating some bananas and see if it makes any difference (that's what the other crohnie I know did).

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/7/2009 3:56 AM (GMT -7)   
Thanks for your quick responses!
 
I have a Colonoscopy scheduled for January. I should have had it done earlier in the year, but I was waiting on a call from the doctors office after they needed to get information from my surgery for appendix last year from the hospital first. It was my fault I didn't call them back and get it scheduled earlier.  I hate the thoughts of drinking the Go Lightly! But, I figured I have to put that behind me and move forward because I have Crohns and need to deal with it.
Yes, When I am in a flare, or I should say after the flare up, all I want is water, I have no appetite until a day passes and then I move on to soup broth which makes me feel better, I stay on the liquid diet until everything opens up again and then I start adding foods in and my appetite is back to normal. All this usually takes about 3 days for me after the flare to get back.
 
I will get some Pedialyte and keep it here when I need it. I will try drinking it before the vomiting starts in hopes it stays in my system during it all.
 
As for Banana's I do eat them and try to eat them more.
 
I will asked the GI about the Entocort.. I need something to help me through this and hopefully hit it before it strikes.
 
I'm guessing because of my GI's I have had in the past I am in no better place then when I started 16 years ago.
 
First GI started me on Asacol took that for a year and had bowel obstructions everyother week. He first told me when he met me in the hospital that they way I had crohns he didn't see me getting any surgery in the future. Then a year later he tells me, maybe its time to think about it. It because he had me on the WRONG meds. I have it in the Illiem not after which is where Asacol helps the most. I switched Gi's and really like the doctor. But I went once a year and when you tried to call to talk with him, his assistant would speak with you and I felt like I was getting no where. So I left him last year and found a new GI, someone closer to home and  more personal.

ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/7/2009 4:06 AM (GMT -7)   
One other thing I would like to know is. Is there "warning signs" that the obstruction is coming? What I mean by that is.. do you feel severly tired say a week before it comes? A burst of energy? I never can put anything togethere to help me figure out it coming until the pain starts in the lower right and then the fun begins a couple hours after.

Thanks bunches! I really do appreciate comunicating with people that are in same situation as I am.

ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/7/2009 6:03 AM (GMT -7)   
Small Update... I looked up all the Potassium Foods. I have been eating alot of the Potassium foods all along. I have an appointment with my regular doctor today. I will asked him and see what he thinks I should do. I will let you know.
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/7/2009 8:22 AM (GMT -7)   
ApolloGirl, I would highly suggest you ask your doctor for a small bowel follow thru to see what is causing your obstructions. If its from inflammation then meds like Pred or Entocort will help. If its from scar tissue then your only option is surgery as no medications will help that. I highly suggest you get on a low residue diet and stay on it until these obstructive episodes are dealt with. I found red meat killed me the most, so I have stopped eating it completely. Stay with foods easy to chew, easy to digest. Obstructions are nothing to mess with, it not treated quickly you could perforate and that could be extremely serious.

I did well with my Crohns for the first 20 years then it all ended abruptly with an emergency resection. Not a pleasant experience, believe me. Hope they get you figured out soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/7/2009 4:50 PM (GMT -7)   
Well, I went to my PCP today to follow up on some blood work he had me do. He is a new doctor to me, I wanted someone closer to home and I think I will be very happy with him. It turns out for some strange reason I have a urinary tract infection, which I have never had before. I'm on antibotics for it right now. No signs or symtoms to let me know I had this, just the urine test found it. Anyway, I'm wondering if perhaps that since the infection is something our bodies would try and kill off and since having crohns, my body decided to get rid of the invader but of course attacked my small intestiine instead since it is the weakest part of my body??? And perhaps I have been dealing with this for a couple of months. I will look into it.

Meanwhile for the Crohns Specialist, I see him in Feb. I know it is a long time off, but where I work at we are allowed so many days a year and if you take "unpaid" days off, you can be out the door. I have used 9 days this year alone (vacation days) for Crohns days and then 2 days to see the specialist this year. I have no more days left until January starts again. I got on the Family Leave Act at work after the first episode this year in late May, since the days were unscheduled, so they don't hold that against me. But what I am going to do is call the Specialist and asked him if perhaps the tract infection could have played havoc with me.

My regular new doctor knows about Crohns, but not enough and I guess he wouldn't want to step on the Specialist
I will keep you posted

Thanks so much!

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/7/2009 5:18 PM (GMT -7)   
I do agree with Nanners, try to figure out if your intestines are inflamed or strictured. Prednisolon or prednisone would be the best option if you have an inflammation. I do have the same problem as you, my Crohns is more related to obstructions and less diarrhea. I have Crohns in the small intestines but a bit away from the terminal ileum. This part of the intestines is called the distal jejunum, it's just before you come to the terminal ileum. this part tends to get obstructions, when in a flare, and of course a lot of vomiting and abdominal pain.

I do also have a lot of muscle cramps. I am using magnesium and calcium, and that helps a lot. My muscle cramps were so severe, had them all over my body, even in my face and my fingers was cramping. Even if I am much better now, and don't have any cramps, I still use the calcium magnesium mix./Bee

ApolloGirl
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/7/2009 5:34 PM (GMT -7)   
BeeSting, Do you take the calcium magnesium mix everyday? How much? I'm also wondering if you "stay home" through the bowel obstructions or do you go to the hospital? And what meds are you on?
It has been awhile but I believe I do have strictures, if I remember the doctor correctly from the past. I'm sorry I feel so uninformed, but it is because my specialist would ask how I was doing.. I was only having 1 obstruction a year, they would just give me the precriptions and send me on the way. I will be more informed with my New GI, once he gets all the facts in.

Thanks again

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/8/2009 7:28 AM (GMT -7)   
Hey Apollogirl,

Whenever I had an obstruction, it always sent me to the ER, and I have a strong pain tolerance. The pain was just too unbearable. If you get where you can't move air out in either direction, feel like you need to poop but can't, pain that comes in waves much like labor pains, then eventually start throwing up, you best head to the ER. Obstructions can be dangerous and if not treated promptly, you could perforate your bowel.

Good luck!
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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