What about sore tongue and leg cramps? From Crohn's?

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New Member

Date Joined Nov 2009
Total Posts : 2
   Posted 11/6/2009 7:48 PM (GMT -6)   
Hi everyone.
 I'm new to the forum and the disease (whoo-hoo!), only 3 years and they're not positive that's the correct diagnosis. Although the the blood tests came back as probable Crohn's the colonoscopy was fairly normal. I was so sick 2 years ago I hoped to die! Then I went into remission - I suppose. But now it's coming back with new symptoms in addition to the regular stomach cramps mostly on the right side and diahrea (you'd think I'd know how to spell that dirty word after reading it over and over) and losing 35 lbs. because I couldn't eat and generally feeling achy, etc., I couldn't work for a while. That's so fun when you're single and self-employed. Okay, so I'm whining...
Now in addition to all that I have a sore tongue and leg cramps, is this from Crohn's? I couldn't take supplements until I found some gelcaps so I thought it was a vitamin deficiency but I just don't know. The doc wants me to do another colonscopy however it was arduous and only 3 years ago. And I finally got the co-pay paid off too. More whining.
Do you all hate your guts?

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 11/6/2009 9:01 PM (GMT -6)   
I would get really bad cramps in my calves so my fiance recommended potassium. It worked anyway...I would ask your doctor though. Sorry I can't be of more help.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Feb 2009
Total Posts : 1810
   Posted 11/6/2009 11:01 PM (GMT -6)   
Which blood test did they do for crohn's? I was told I had a different type of colitis too. I got my PCP to order the test and it came up positive. Since diagnosis in January and on colazal, I have not been too stabile with this thing. Yep, I hate my guts too! LOL.
Anyway, this summer, I had this weird thing where my whole mouth burned like I had eaten something really hot like pizza or soup. I could see maybe 2 small ulcers. It went away after several days. I was also having other problems at the time like fissures and a fever.
Do you think you are dehydrated? Have you tried bananas or magnesium. Good luck to you.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, benicar
 50 +  female
 colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic.
Blood test positive for Crohn's via prometheus ibd serology panel

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 11/7/2009 1:48 AM (GMT -6)   
I guess that you know that B vitamin deficiencies including B2, B6 and B12 can cause sore tongue. Iron deficiency also could do that and it is very common in Crohn's. All that diarrhea and weight loss sounds a lot like you will be vitamin deficient and you should get tested for B12 and vitamin D deficiency at least. Also, regular diarrhea will result in electrolyte imbalance which might be responsible for the leg cramps. Pedialyte or an oral rehydration mix is a good plan - ask your doctor for ideas/brand names. Avoid the sugared drinks like gatorade because all that sugar can cause bacterial growth and make things worse. If you want the reasons for the sugar thing, google: SIBO Crohn's.

Iron deficiency is very hard to resolve using the usual iron supplements. They actually work to prevent their own absorption and may make the gut inflammation worse. What works is heme iron. It is absorbed via a different route and does not provoke the inflammation that regular iron does. One brand is Proferrin.

Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 11/7/2009 4:01 AM (GMT -6)   
Used to get terrible leg cramps too. Called my doctor and he said it was from my being low on Potassium. I didn't take the vitamins, as they didn't really have much in them. I could eat more items that had potassium then what those pills gave me. Once I beefed up my potassium intake the cramps went away.
As for your tongue. Not sure, but Crohn's can effect your mouth. So it's very possible.
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

New Member

Date Joined Nov 2009
Total Posts : 2
   Posted 11/7/2009 2:31 PM (GMT -6)   
Thank you all for your help.
I will go today to get some B vitamins, bananas and pedialyte. I don't know what kind of blood test they did for my crohns but I will look it up when I'm finished working today. My GI doc isn't that helpful, but I guess they are overwhelmed?
 Have any of you been to nutrionists or did you have to figure out the vitamins yourselves?
Thanks again. It's good to hear from people who have similar issues and can offer suggestions. I'm glad I found this forum. I'm sure I'll be back soon!

Regular Member

Date Joined Aug 2009
Total Posts : 90
   Posted 11/7/2009 3:28 PM (GMT -6)   
The people at GNC Nutrition and other vitamin places are amazing sources of information for helping supplement vitamins based on our disease, they really take the time to talk to you and follow-up on what works/doesnt work. They have to take nutritionist classes and all to work there so it works out really well :) Good luck to you hun
24 female, dx w/CD finally in July 2009, currently taking remicade, prednisone to counteract side-effects of remicade, pentasa, cipro, flagyl, probiotics, celexa, bentyl, and biofeedback.
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change" Charles Darwin

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