Went to the HOSPTIAL! That was ROUGH!

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Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/7/2009 7:13 AM (GMT -7)   
Hey all,
 
Just a little update. I went to the hosp. thur from work. I ate something got sick and hadnt eatin in 2 days and my stomach and left side pain was so bad. They still couldnt figure out what was  wrong. A admitting nurse had chrons and she says I fit it to a T and not to give up. Since I see GI dr. on 19th. Needles to say I was triaged for pain. I was given zofran and diluadid. Which at first going in made my stomach cramp so bad I started crying till it passed and has now made me constipated. UGH. They did a CT with IV contrast and my heart flipped out from the contrast. Gave the a big scare. It finally calmed down but they said I need to tell anyone who wants to do CT what happend with my heart. SCARY.
Then they did trans-vag ultrasound because CT showed to much fluid in pelvic area(NOT WHERE PAIN WAS)!!!!!! And said I had cyst rupture and I have engorved veins on my pelvic floor. Needles to say 9 hrs later, I was triaged for pain and Discharging ER DR. said she thinks I have chrons to but GI dr, will need to do another colonoscopy(been 3yrs) and new biopsies ect and probably endoscopy again. She thinks from my symptoms I probably have it too. But I tell you most Dr.'s dont believe in the blood work that shows if your more prone for chrons/UC.
 
But know 1 will give me a answer why my IGG's and IGA's are through the roof for the last year. Anyways, Im just praying this new dr. will be senstive and understanding and push things and listen. Im so dang aggervated. I just wanted to up date you all and hope you have a good weekend. THANK YOU!!!!! smhair

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/7/2009 9:20 AM (GMT -7)   
Good luck, God bless and lots of (((hugs)))
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/7/2009 9:44 AM (GMT -7)   
Geez sounds like what it was like for me when I was being diagnosed except, obviously, for the cyst. Some doctors can be real pricks and lack understanding, especially with something like Crohn's where you might not necessarily look that sick. Sometimes you have to burn through the loser doctors to find a good one :-)
34 year old male
Crohn's Disease for 12 years
Current Medications: 9mg entocort
Finatical SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 11/7/2009 11:44 AM (GMT -7)   
IGA and IGG could be up for any number of reasons, including gluten sensitivity:
 
 
"Both IgA and IgG anti-gliadin antibodies (AGA) are detected in sera of patients with gluten sensitive enteropathy (celiac disease)."
 

Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/7/2009 12:40 PM (GMT -7)   
Thank you guys for you caring. Its nice to talk to people who understand. Im 5'2 and 111pds. My healthy (before sick) I always weighed around 135, now it s been a year and cant gain more then 4 pds and keep it on.
I have had celiacs full panel test already because my aunt had it and recently died of pancretic cancer. Neg. for that and Candidia. Only thing that stays super High is IGA and IGG's?
 
Thank you all.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/7/2009 12:59 PM (GMT -7)   
You should get an endoscope so they can biopsy. That's much more accurate then blood tests for finding out if you're celiac.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


bella_sky
Regular Member


Date Joined Aug 2009
Total Posts : 90
   Posted 11/7/2009 1:03 PM (GMT -7)   
Goodness girl you are getting the run around!! Hope you have some definitive answers soon, its so hard to get the right people listening but once they do we can just hope and pray they move fast :)
24 female, dx w/CD finally in July 2009, currently taking remicade, prednisone to counteract side-effects of remicade, pentasa, cipro, flagyl, probiotics, celexa, bentyl, and biofeedback.
 
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change" Charles Darwin


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 11/7/2009 1:23 PM (GMT -7)   
The tests for IBD and celiac are quite different. Both test IgG and IgA antibodies, but different types of IgG and IgA. Sounds like some folks have those confused. Just wanted to clarify.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, benicar
 50 +  female
 colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic.
Blood test positive for Crohn's via prometheus ibd serology panel
 


Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/7/2009 5:12 PM (GMT -7)   
I know all this stuff is confusing? LOL All I know is I had a celiac's panel that was normal and then blood work for(saccromycess cervasie)? dont know how to spell I guess something to do with brewers yeast. I have had it done twice in 6months apart and they were out the roof but the first test they did include something for U/C that 1st one was elevated then when we repeated again in 6 months the U/C blood work was normal but (sacc.....ect)test was still super high just like the first.
I tell you this crohns mystery is the hardest thing I've seen to be diagnosed and so many dr.s are so willing to say no to it? I dont understand that. It's so aggaervating for me to work in the health field and get blown off so much.
 
That's why when I work with my patients, no matter what I think or can see I believe people suffer even if we cant see it or understand them. Look at what we go through....
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