Severe Pain and lonely

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Regular Member

Date Joined Aug 2009
Total Posts : 90
   Posted 11/7/2009 2:39 PM (GMT -6)   
The joint pain in my hips and back seem to get worse everyday, so in order to try to be an amazing date for my BF yesterday, I took an extra pain pill and drank some wine.  cool

Unfortunately its been a loooooonnggg time since I had alcohol so Instead of this helping, my pain just kept getting worse as dinner at Red Lobster progressed and we started fighting. The fight progressed to him dropping me off at my apartment and I call my friend hysterically with pain and emotions raring. What a mess.

So I go to the ER, drunk and in so much pain, they had their hands full. They said they'd finally get my pain under control and one of the shooting pains would come and I'd sit straight up and scream. I dont remember much and am still in pain and so tired. Ugh. And my BF "needs space". What guy can deal with all this, idk I'm so lost and guess I am relieved he might be finally giving up on me.

I have great friends tho. And I'm seriously thinking this tylenol with codeine is pretty much worthless.  sad I've never done illegal drugs before because I'm such a goodytooshoes but Im seriously considering an alternative today, this is just so exhausting. What would you do?
24 female, dx w/CD finally in July 2009, currently taking remicade, prednisone to counteract side-effects of remicade, pentasa, cipro, flagyl, probiotics, celexa, bentyl, and biofeedback.
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change" Charles Darwin

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 11/7/2009 4:07 PM (GMT -6)   
The remicade might help your back pain. It may take 10 weeks or so to have its effect - have you been on it for that long yet? I also don't see any sign that you are seeing a rheumatologist and that might be your next step. They are more likely to actually treat your pain. Your GI basically has the attitude that your back problem is just a side effect of your gut problem and treating the gut will treat the back. That's fine, but in the meantime, you suffer. Get a rheumy on board - maybe they'll actually give you something useful.

Regular Member

Date Joined Oct 2009
Total Posts : 43
   Posted 11/9/2009 11:45 AM (GMT -6)   
Hi. I'm Marcie and my husband Tony is the one with Crohns (hvaccrohnie). Just lookin back over the posts and your subject title broke my heart. I don't have any pain advice seeing as Tony deals with hip,back,joint pain also and getting a Percocet refill is like pulling teeth!! They treat him like drug seeker and I tell him "Well you are! You're seeking drugs to alleviate your LEGITIMATELY DIAGNOSED PAIN mad  !! Sorry, that subject gets me going! Wish all Primary care docs could experience chronic pain for 1 year and their docs would tell them to manage it with Advil or Tylenol and heating pads! Just know that everyone gets lonely sometimes and you are lucky to have found a forum like this one to talk to others going through similar issues. Keep in mind that you never know what's just around the corner maybe something wonderful! In the mean time, seek support, pamper yourself if you can and pester the crap out of your primary care doc until he/she gives you something that WORKS! Tony takes 3 Ultrams per night every night and this seems to be helping. Hang in there girl! 

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/9/2009 12:46 PM (GMT -6)   
Have you thought about getting your ANA tested? I took remi and got the lupus like syndrome. Sometimes it would migrate from joint to joint or feel like my feet had been beaten. Just as someone who has been through alot of pain it is so very difficult not to be witchy when I am in pain. So take it easy on yourself and your man.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/9/2009 4:34 PM (GMT -6)   
Hi,sorry you are having alot of pain. You should talk to you doctor about humira or remicade.
I am on humira which has me in remission.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,,Celebrex and Humira. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 11/9/2009 8:11 PM (GMT -6)   
Hi Bella,
I think you should be seeing a Rheumy about your hip and back pain, you could have some form of arthritis, seems having one auto-immune disease can lead to having another. Please dont just let this be and put up with the pain - no-one needs to suffer so.
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07

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