you're not alone at all. Exact same thing happened to me. Started I swear on the same day I had my 2nd treatment of remicade. (sept 1st). It got worse as the days went by. Both feet, toes, hands and fingers are now all numb and tingly. They also Hurt like heck!!! I now have a dropped right foot. Which means that I basically have no control over my right foot. I have to drag it.
I didn't make any connection as i was told that I have Crohns in Aug of 2009. So I am new to all of this, I had my 3rd and last treatment of Remicade Sept 30th.
I maybe starting Cimzia, ( Side effects are the same if not worse then Remicade) that is if my insurance gets straightened out somehow. As of now no insurance at all. So no meds for crohns or my Fibromyalgia that I was told I have last friday.
Just waiting to see how long I can go with out meds etc, before I end up in the hospital.
PLEASE tell your Dr. and do not give up until they listen to you. Don't let it go to far. Mine is now reverseable.
Sally from Milton NH.
Prevcid DR (1) 30mg every morning
Oxycodone (1) 30mg every 4-6 hrs Dicyclomine (2) 20 mg 4X's a day
Vicodone APAP (2-3) 7.5-750 At bed time
Potassium CL ER (2) 20mg 3 times a day
Ascecol EC (4) 40mg 3 X a day, Dicyclomine (2) 20mg 4X's a day
Pomrthazine (1) 12.5 mg 2-3 X's a day
Remicade doesn't like me anymore. Onto Humira
RICE chex's and I have become really really good friends!!!!!!