Endometriosis and crohn's,one the same or different?

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Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 11/8/2009 3:30 PM (GMT -7)   
Hi,
So I finally had my appointment with the GI after my scopes. She didn't take biopsies.. saying she didn't feel the need since there was no crohn's showing, not even scare tissue. (But she believes I have crohn's just the humira has put it into remission)
She can't tell me if i have endo or not, I still have to see the gyno about that. But she wrote a note to the gyno (I must bring) saying to check me for endo and that I have crohn's.
She stated, if it isn't endo, it's my crohn's flaring up when I get my periods.. saying I may just have way to much hormones. I obviously can't tell right now.. the difference if it's endo or crohn's. I have no issues with my stomach for the rest of the month. I can even eat corn!!!
But when I do have my period, full blown flare (or feels like it anyways) My question is for people who do have endo.. Do you get arthritis while you get your period? Because I do, would endo cause arthritis, or is it just CD that would cause arthritis when your in a flare?
The GI also said if it's not the endo, it's clearly my crohn's and regardless I have to stop my period. If Depro isn't an option for me, and neither is birth control pills. What is left for me to take to stop my period?!
(Depro flared my crohn's. I suffer from migraines, if I ever want a kid, I can't take the pills.. something to do with taking both together can make you infertile)

Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD, Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc, Predizone, tapered down from 10 pills 8 different times.(horrible side effects),Lots more,list is way to long.
Unable to work last 2 years and counting.Scope says I'm clear of CD,waiting for biopsie. May have Endometrioses, again waiting for another apt.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 11/8/2009 5:28 PM (GMT -7)   
If you have endo, you need to have it surgically removed by a specialist. Do a lot of research about endo before deciding on a treatment plan. I like the information on the Endometiosis Research Center site, erc.activeboard.com (I think), they have a lot of good information and can help you find a great surgeon. Many docs claim to be endo specialists and probably help some women but go to the best you can. Rectal bleeding and Crohn's-like symptoms are common in women with endo on the intestines.

Stopping your period may or may not help you, it works for some women but everyone is different. Hysterectomies do not cure endo, especially if it is on your intestines. It needs to be removed.

Many gyns will recommend Lupron. Do a lot of research before you agree to try it. It has terrible side affects that don't always go away when you stop the drug. It has helped some women but has ruined the lives of many others. My doc told me the only side affect was hot flashes, I nearly fell off the table laughing. That is NOT true.

The only way to tell if you have endo is with surgery. Since you may have endo on your intestines, you'll need a specialist on hand to do a bowel resection if necessary. You can have it all done with one surgery if you can get into a good specialist.

Good Luck!

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 11/8/2009 6:25 PM (GMT -7)   
Thanks so much for the great info.. i will for sure do research on the things you have mention as long as that site. Thank you so so much again!!!
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD, Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc, Predizone, tapered down from 10 pills 8 different times.(horrible side effects),Lots more,list is way to long.
Unable to work last 2 years and counting.Scope says I'm clear of CD,waiting for biopsie. May have Endometrioses, again waiting for another apt.

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