Has anyone tried my Blue dye idea?

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FunGuy
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   Posted 11/8/2009 8:49 PM (GMT -7)   
Has anyone tried my blue dye #1 idea or even talked to their doctor about it?  If not I would ask you why not?  Your frank response would be appreciated but try not to be cruel, I'm sensitive. wink
 
At this point I have stopped all my crohn's meds and use the blue dye only.  I don't think this is a good thing to do because if I am correct the blue dye surpresses the ulcerations but probably does nothing to stop whatever the actual cause of the disease is.  The reasons that I stopped the meds are 1- to really see if the blue dye is working and 2- I think the meds cause me to have other problems.  I don't think anyone should stop their meds if they try this.  Someone who is having a little blood and mucas and their meds aren't working would be the best to try this blue dye but don't stop your meds!!
 
I still have a bit of urgency but no blood, no mucas and I am often having nicely formed stools. blush
 
My crohn's is not as severe as that of many of you and I don't think anyone with severe disease should try it.  Get your doctor's permission and then try it.  Same stuff that is in gatorade, blue M/Ms, any blue food.  Difference is taking enough throughout the day to discolor the stool.   Initially I think that enough time is needed to allow the ulcerations to heal.  This took me around ten days I think.  I do also take probiotics, vitamin D, fish oil occasionaly and have just started taking Turmeric.
 
Geez do I sound so lame?  Please tell me your reservations about this.  There is no way to make money here so I am not trying to sell anything. 


I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 11/8/2009 9:04 PM (GMT -7)   
There's blue dye in my Pentasa pills :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


FunGuy
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Date Joined Oct 2009
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   Posted 11/8/2009 9:10 PM (GMT -7)   
That is spooky!!! It is also spooky that I have had ibd as long as you've been alive. :)
Maybe we can do a study and see if blue pentassa tabs work better than other colors?

I think I used pentasa a long time ago. What do you think about Blue1?
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


GDen
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Date Joined May 2009
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   Posted 11/8/2009 9:53 PM (GMT -7)   
Got any credible web links?

FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/8/2009 10:13 PM (GMT -7)   
Yes.  Blue dye was used to help rats that had their spinal cords deliberately injured.  The blue dye rats did better than those that did not receive blue dye.  The dye stops ATP from binding to the receptor molecule P2X7.  This binding of ATP to P2X7 causes cell deaths.   Key here is that P2X7 is what causes the inflammation in Crohn's disease and ATP is what turns on P2X7 if I understand correctly. 
 
I don't turn blue because I take the blue dye orally, that rats get it in a vein.  Here is the spinal study    http://www.wired.com/wiredscience/2009/07/bluerats/
 
I originally noticed that eating a lot of blue ice pops in a hot warehouse 20 years ago seemed to make me feel better.  I thought it was silly and forgot all about it over the years.  Then I read this study in September and thought holy cow!!!  I did more research and found a link to P2x7 and crohn's inflamation.  I happened to be flaring so I bought BLUE1 food dye at the supermarket and began to use it to a level to make the stool turn slightly blue/green.  My bleeding stopped quickly, my symptoms more slowly.   Then I quit the blue dye and started to bleed again.  Upped the dose and stopped bleeding.
 
The problem with my "experiment" is I was on other meds at the time and the sample was too small.  I need other people to try this with doctors approval. 
 
What do you think?
 
 
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


GDen
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Date Joined May 2009
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   Posted 11/8/2009 10:45 PM (GMT -7)   
Got any links that mention blue dye being used to treat Crohn's?

FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/8/2009 10:58 PM (GMT -7)   
Nope. This is all me. My observations and my idea. I am not sure that the typical white coat folks would get involved. There would be no money for the pharma companies if this works
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


Keeper
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Date Joined Jun 2008
Total Posts : 1058
   Posted 11/9/2009 12:03 AM (GMT -7)   
It's interesting, but I would not like to try this without more confirming information. There is information that the P2X7 receptor is involved in some destructive processes, but inhibiting it may have unforeseen consequences. There are patents online that talk about helping a wide variety of conditions - including Crohn's - based on inhibition of P2X7 receptors using different agents like pyridoxyl-5-phosphate (vitamin B6) - see: http://www.freepatentsonline.com/y2009/0215727.html - so the idea is not so strange. But there is not a lot of detail known about P2X7 and its function. If you have a PhD in biochemistry, you might have a look at the following link and you can see that there are large holes in the picture as of 2007: http://ajpgi.physiology.org/cgi/content/abstract/294/2/G401

MMMNAVY
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Date Joined Jul 2006
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   Posted 11/9/2009 2:07 AM (GMT -7)   
Too severe of disease.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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medchrt1
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Date Joined Sep 2005
Total Posts : 517
   Posted 11/9/2009 6:58 AM (GMT -7)   
hey is it working, lol, i tried some of the fruit type roll ups, forget the brand, anyways they have alot blue dye. salts are typical intermediates in the larger scheme of things (the P5P,above, as well). proteomics is a big field. i looked at the dye structure again, as it has alot of so3 (sulfur trioxide) groups. I recall sulfur discussion when discussing amino acids (as sulfur was moreso found deep in the protein especially hair protein). mabe next time i will try it straight, lol.

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/9/2009 7:18 AM (GMT -7)   
blue poop is exciting!
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 11/9/2009 1:42 PM (GMT -7)   
That little blue mouse is adorable :-). Except for the fact that he's paralyzed :-(.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


GDen
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Date Joined May 2009
Total Posts : 703
   Posted 11/9/2009 5:17 PM (GMT -7)   
I drink tons of blue and grape Powerade Zero. I don't know if either has this blue dye--will have to check. Maybe I'll have to take it intravenously--blue skin would be interesting...

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/9/2009 6:05 PM (GMT -7)   
I don't like having green poop. It bothers me. :)

I drank a tonne of that blue raspberry kool aid jammers and it just gave me green poop. It didn't help me at all.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/9/2009 6:09 PM (GMT -7)   
I was thinking that it would be a lot easier to tell the boss I was sick if I made myself turn blue. You know the old "you don't look sick"....... lol lol lol

GDen, I think the stuff you are drinking does have blue1 in it. If it isn't turning your poop greenish blue than you need more dye I THINK.? I also think that the high fructose corn syrup is counter productive. That is why I add the dye to water myself. Please don't turn yourself blue. If you do that you'll have to change your name to Smurf GDen lol....

I'm sorry Navy that your are still so sick. I look forward to you being well enough to have a blue margarita with me one day.


Medchrt- You are still over my head with your science knowledge. As far as fruit roll-ups though I have to say again that if you don't see blue/green poop you may not be using enough dye.

aoccc - I am a little concerned about you. Just kidding. Blue poop will be all the rage in hollywood next year.

Spooky that blue rat is cuter than blue poop but it really disturbed me the way they injure them like that. That is cold blooded!

Keeper- I can't argue against your point. It is valid. My only counter point might be that this is approved food dye and is ingested by anyone eating blue or green colored foods. I would think that harmful effects would be documented by this point. Frankly the amount of dye, 7 drops, that I use is more than most people would eat on a regular basis so there is a possibility of side effects of some sort. To answer med chart though, I am doing pretty well. I had a rough night last night. I am blaming it on my daughters 21st birthday party. I had a half glass of wine and I ate a small serving of hot chicken curry. I took my Asacol this morning because my gut was hurting most of the night. I will keep you all posted.
I intend to continue taking my ASACOL now for the reasons stated in my first post in this string. I will take three in the morning and three at night, half my normal dose.
Thank you all for responding. I no longer feel so dejected. :)
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 11/9/2009 6:22 PM (GMT -7)   
I have been drinking about 2-3 bottles of blue powerade a day for a few weeks now and realised my poop was green because of it - so it does have enough blue dye in it. Not sure if it is doing anything as I have just started Humira too.
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07


GDen
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Date Joined May 2009
Total Posts : 703
   Posted 11/9/2009 6:25 PM (GMT -7)   
Powerade Zero doesn't have any HFCS, or any calories.

FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 11/9/2009 7:19 PM (GMT -7)   
My reservation comes from what other harmful junk is in foods loaded w/ dye. I don't like fake sugars so I avoid the "diet" drinks. Also, I am allergic to Red Dye Number 40 and that has made me skeptical of all dyes.

I know the Pentasas have a decent amount of dye. I threw up right after taking them once and my vomit was blue.
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/10/2009 5:46 PM (GMT -7)   
SydneyJo if you aren't seeing any improvement and you've passed blue for 2-3 weeks then I am going to have to say Strike one against me.

GDen thanks for the setting me straight on HFCS in powerade. I hate HFCS.

Fitzy you clearly need to stay away from this if you don't agree with food color ie allergy. SydneyJo has said that it isn't working for her. Only thing is even with green poop I wonder if there was enough, throughout the day?/ Every poo was green for 3 weeks? In any event I am coming down to earth.........but haven't crashed yet. :)

Far From Normal. If your monikor is true then green poo should be perfect for you! :0 lol
How long have you been trying this. I think 10 days at least. It isn't clear to me how much dye you get in kool aid but I agree that green poop should be enough. Morning, sip all day and last thing before bed.? I think you need to maintain some level of the dye at all times. If you have done this for at least several days and seen no diminishment of blood or mucas then you are gonna be my Strike two... :(
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


SydneyJo
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Date Joined Mar 2006
Total Posts : 1354
   Posted 11/10/2009 6:36 PM (GMT -7)   
Please dont make me your 1st strike Funguy - i was more commenting on the fact that my poop was green from the blue powerade and that there must be an adequate amount of blue dye in the powerade :)
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/11/2009 7:32 AM (GMT -7)   
No worries Jo.  nono
I greatly appreciate your feedback. It is nice of you to take the time to share your observations. 
If you have been drinking that level of blue powerade with no improvement then I have to be straight and say strike one.  Not a perfect test but it's all I have at this point.  We need to know the truth so this is certainly a good thing, although making you feel better would be a much "gooder" thing.
Be well. Guy
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