It has been almost two years since my son started Remicade. He had no reactions and responded really well to the treatment, but he was never able to go more then six weeks between infusions. He always started flaring around week 4, we would get by for the next two weeks, then start the cycle again.
Finally this summer his GI took him off of Pentasa (he was not absorbing it), and switched him to Apriso. The results were amazing, and he went into a full remission. It has been a dream come true!!!!!!! I was a super proud mommy watching him get to play football this fall... one of his dreams come true!
Then he got his last Remicade... about four hours after the treatment he began to complain that his arm was hurting and I noticed it was slightly swollen... the pain kept increasing and when I called the dr. he said to give him benadryl... helped a little.... got worse... dr. said to up the dose of benadryl... helped for awhile, but still got worse... Dr. put him on Tylenol with codeine.... this went on for almost ten days. The Dr. thinks that he might be developing antibodies to the Remicade, but still wants to proceed with the next treatment.
I am not sure what to think... seems like it could be a big risk.
So I guess I am searching for help with what is next.... any input would be greatly appreciated