4 weeks post OP doing quite well

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farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/9/2009 5:57 PM (GMT -7)   
Hi All!

For those of you who have been following me I want to let you know I am doing well.

4 weeks ago I had my perianal abscess drained and a seton put in to keep my fistula open and prevent my abscess from filling up again. The incision is about 1cm wide now and about half as deep. I still see bruising and a hard ridge around the incision which is the only area I really have pain.

So I am scheduled to head back to work Wednesday after my doctor gives me the ok tomorrow to do so.

I have very little pain - some days are worse than others but usually only if I have done too much walking, sitting or lifting of stuff I shouldn't be lifting.

Now, I do have a couple concerns. I am still having problems holding my bowels. I didn't have this problem before the abscess. I have had more accidents since this thing formed and the surgery than I EVER did. Is this a normal thing as your rectum heals from the abscess and seton? Also, do they have to do any cutting to put a seton in or do they just put it directly into the fistula? I don't want to be incontinent and unable to hold my bowels for the rest of my life. If I am sitting or laying down I have more control - but as soon as I stand up it becomes an issue.

Also, I find I am very tired and weak. I know it is probably from being in bed so much and my body fighting to heal itself. Anyone have any recommendations on how to boost my energy and help this healing process even more?

I go to see my new GI at the end of the month - I'm hoping he will put me on some meds that actually work and don't make the situation worse like all of the different 5-ASA drugs they have tried me on. Salofalk and Pentasa exacerbated the diarrhea and made me puke my face off. That was after 1 year of being on them.

So now that I am a month post op does anyone have suggestions for vitamins I should be taking, supplements etc to help me gain back my strength?
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/10/2009 8:50 AM (GMT -7)   
OH - I'm also curious. Will the mucus stop when the chrons is in remission?

I never had mucus before - not until this recent abscess and fistula.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/10/2009 10:23 AM (GMT -7)   
I am glad to hear you are doing well, but.....I think maybe you ought to ask the doc for a little more time off if you can. Explain the fatigue, and the accidents. Maybe you need a little more time to heal???

As for supplements I have found helpful is a good probiotic, I take Primadolphilus Reuteri by Natures Way. And also I just recently started taking extra vitamin D (2400 units) and I have to say that has helped me alot with my fatigue and joint pain.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/10/2009 10:37 AM (GMT -7)   
Hi Gail - thanks for the reply.

Thing is, I can't afford to take any more time off. My disability is about to run out and to get it extended I have to without a doubt proof that I cannot return to work.

Physically with regards to the abscess it feels great and I know that my stamina is greatly reduced because I have not been active for so long. I know stamina only improves with introducing it more and more into your regime. I can handle the accidents - I just need to figure out the fatigue issue. Maybe it is exacerbated because of the cold I am fighting as well.

I see the doctor today - in about half an hour actually, so I will talk to her then.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/10/2009 1:41 PM (GMT -7)   
Could you possibly go back part time and work yourself back up to fulltime? I found the Vitamin D to help some with my fatigue, give it try. Big Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/10/2009 1:57 PM (GMT -7)   
Back from the doc with some good information.

I was told the incontinence is a combination of my bowels being inflamed due to the location of my crohns and the fact that the abscess was crowding the muscle which may have caused it to become a little weak. She said once the crohns is under control the urgency and incontinence will go away. She also stated that because my body is producing so much mucus it could also be contributing to the lack of bowel control as it kind of makes things more lubricated.

She said the abscess is healing well, however; I am back on flagyl to help get rid of the small hard spots of infection that still exist. Considering what she told me I'm very surprised at how well I have healed. Apparently, the abscess was about 10cm in length and 7cm deep. She said the pocket has healed to no depth and the pocket is approx 5cm now with about 3cm of infection left.

The fatigue she said is normal given I have been doing nothing for 2 months. She said going back to work will help me build the stamina and will also prevent me from losing my job. She said in the event I can't do it, it leaves things open for me to go back on short term leave rather than being on a chronic leave of absence. Unfortunately, I can't work part time - the position is a full time position and the salary I am entitled to cannot be adjusted without causing the company grief. I am fortunate that the only issue I may have with my job is the sitting. I don't do anything physical - I have a desk job. I will be able to get up from my desk though and walk around if need be. It will be a challenge thats for sure. But I just have to trudge through it and deal with the pain.

I will take some extra vitamin D and see how that goes.

I will keep you all posted.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/10/2009 2:52 PM (GMT -7)   
Good Luck sweetie!! This doesn't sound too wonderful, but can you wear pads or something to help with the leaks? Hope all goes well for you!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 11/10/2009 6:59 PM (GMT -7)   
I have done that when I am out in public - it seems to really only be a problem in the morning.

So I neglected to state that the flagyl is only to be used if I can't manually push on the spots while in my sitz baths to loosen up the stuff in there. She really reefed on me this afternoon and to be honest, the hard spots are almost gone!

I sat in the bath tonight and it was pretty soft again.

I will keep everyone posted - next appointment is November 30th with my new GI.
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: None as of yet

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