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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/10/2009 6:01 PM (GMT -7)   
Oh my, I'm so tired and sleep is not making it go away. Now I know with crohns and lupus fatigue is an issue.
But I don't think I've ever felt this tired...
My lower back and both my legs are aching badly too, strangely more so when I rest. They say there's none as
**** as folk LOL x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 11/10/2009 7:06 PM (GMT -7)   
Call your doc if you haven't already done so. Maybe there is something that can be identified, (anemia, B-12, medication reactions, etc.) and you can get some help. Sorry you feel so bad!
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/10/2009 8:29 PM (GMT -7)   
Thank you gumby. I give myself weekly b12 shots, and I'm not on any new meds. I think it's the time of year.
I always gone downhill in the fall, especially with crohn's. I also should remember that I'm getting older (58) and
probably can't fight things like I could 10 years ago. Oh well LOL.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 11/11/2009 4:40 AM (GMT -7)   
Fall is always a bad time for me . The fatigue is the worst part of this disease. My mind says go go go and my body wants to take a nap and watch from the sidelines. It is very frustrating.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/11/2009 7:23 AM (GMT -7)   
Hey Vicky,

I am currently in remission, but ever since the time change happened I have been exhausted. Its like I can never get enough sleep. I would get your bloods tested just to make sure nothing else is going on, but am wondering if you are being affected by the time change and season like I am. I have a doctor appt next week, so will be getting a blood test done this week to check my levels. Good luck!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/11/2009 12:12 PM (GMT -7)   
Hi Gail, my blood work shows elevated CRP which means I have inflammation somewhere, my B12 still remains in
the low range, even though I do weekly shots, low billarubin (not sure what that means), triglycerides have gone up
to the 850 mark, which is an indicator (for me at least) that my pancreas is still suffering. All in all though, I still think
like you, I feel worse come Autumn!!

I'm seeing the specialist Dec. 3rd, for consult & ultra sound of my gall bladder. I guess it's another organ I can add to my
list of failing bits (smile).

Hope your blood work come back Ok. Keep smiling my friend. x
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 11/11/2009 12:56 PM (GMT -7)   

Hello Vicky,

I hate the fatigue!  How is your vitamin D level?  I remember weird muscle aches and huge fatigue when I was low on D.


Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/11/2009 5:10 PM (GMT -7)   
Hummm, they never seem to check for that. It might be worth me asking...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 11/11/2009 5:39 PM (GMT -7)   
I am on 2,000 iu a day, which I have learned isn't that high at all. Evidently, you can get 10,000 if you go out in sunlight in the summer. I started feeling slowly better over several weeks -- it just takes time. I suggest you call your doctor (or nurse) and ask whether it would hurt to start taking some now.

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/11/2009 6:51 PM (GMT -7)   
I had a problem with fatigue as well. I think inflammation caused it. After I started Humira, it went away, as well as the diarrhea.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 11/12/2009 1:15 AM (GMT -7)   
I agree... I do believe that it has a lot to do with the time of year [season].
For me as well my health seems to go 'down hill' in the fall & winter mths. with CD.
Even my GI says they are more busy during these times.
I think it is vit. D. In the summer we get more from the sun and people are generally more happy with sunshine & nice warm weather.
I always take my vit. D regular as clock work. [pill form 3000 UI]

It is important for us to get out of that 'slump' we always seem to fall into when the colder weather comes.
Keeping active & getting outdoors [fresh air] is important for your over all heath.
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/12/2009 7:29 AM (GMT -7)   
Vicky,

I second getting your Vitamin D levels checked. I did and found it was low, I am now taking 2400 units a day, and I can tell you it has helped immensley with my Fibro and joint pain, and a little with the fatigue. Give it a shot, it can't hurt.

Good luck!
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/12/2009 8:45 AM (GMT -7)   
Thanks guys. xx
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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