Has anyone had the swine flu/H1N1 vaccine yet?

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lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 11/11/2009 3:18 AM (GMT -7)   
Despite being in remission I seem to be living at the docs at the moment!! Had a bloodtest and wound check after 3 excisional biopsies of suspect melanoma on friday today and while I was there they offered me a swine flu jab appointment for the weekend.
 
Apparently the side-effects are a bit stronger than the normal flu vaccine (which I've had every year for the last 7 years without a problem) including possibly an upset tum and fever. The nurse I saw had the jab from the same batch yesterday (they only got in 400 vaccines so I'm pretty fortunate to be offered it) and said all she's got is a dead arm, obviously they have to warn you of side-effects but I'm just wondering how many people actually got them when they had it?
 
So have any of you had had the swine flu vaccine yet and did you have any side effects? If so how long did they last and were you able to carry on as normal or did you have to have a couple of days downtime?
 
I'm definitely going to get the vaccine regardless, the risks of swine flu itself are just not worth it (my personal opinion obviously). My mum knows of a lad with Crohn's who got swine flu and had to stop his meds til he was over it and flared nastily and was poorly for quite a while with both Crohn's and the swine (can you imagine! poor guy) - it took me ages to get into remission and 8 months in I'm not about to ruin it! I just want to know what I'm letting myself in for!

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1497
   Posted 11/11/2009 5:16 AM (GMT -7)   
My daughter got the shot yesterday. It's certainly a very personal decision, but our family Dr. highly recommended it for her considering. She said she's already seen many very bad cases. Her arm is really quite sore, and I've heard this from just about everyone that's had the shot. Mind you it's only been one day, but so far no other problems.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


vadreamer1
Regular Member


Date Joined Aug 2006
Total Posts : 196
   Posted 11/11/2009 6:37 AM (GMT -7)   
I got the shot this past Friday. I had no side effects what so ever. I am also in remission. I had to wait in line at work for an hour to get it - well worth it IMHO.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/11/2009 7:16 AM (GMT -7)   
Here is a recent post we had about this very subject.

http://www.healingwell.com/community/default.aspx?f=17&m=1632839
 
I personally plan on getting the shot when it becomes available.  Right now my insurance is only giving it to children, healthcare workers, and pregnant women.  This H1N1 vaccine is made the exact same way as the seasonal flu shot, just a different strain.  I recently read that it would have been included in the seasonal vaccine if it had been discovered sooner, but was discovered after this years seasonal vaccine was already made.  Good luck!


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 11/11/2009 8:51 AM (GMT -7)   
Thanks Nanners!
 
From the research I've done it does seem like side-effects are more likely but as I'm usually one who doesn't get side-effects from the regular flu vaccine I'm hoping I'll be lucky with this one too (got lots of uni work on and can't afford to take any time off at the moment!) but even so its on a weekend I'm having it so even if I do get side-effecty hopefully it'll wear off before the week starts!
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 11/11/2009 9:55 AM (GMT -7)   
Popping in from the UC forum:
My GI approved me getting the H1N1 nasal mist because I'm in remission and not on any immunosuppressants. I chose to get it rather than waiting for the shot to be available--in my area, it's looking like the shot will only be availble to pregnant women, kids 6 mo-2 years, and health care workers with chronic health conditions for a while longer. It's been over two weeks, and I'm fine. If something bad was going to happen, it would have by now.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
Thread with links to UC resources and  information:
 


lawgman
Regular Member


Date Joined Mar 2005
Total Posts : 27
   Posted 11/11/2009 10:27 AM (GMT -7)   
I live in Canada and got my h1n1 shot last week. Because I fall in the high risk category (I have a kid under 6 months) I was able to get it. The Canadian version of the vaccine has squalene in it. Not a big deal for me but it is controversial.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/11/2009 10:29 AM (GMT -7)   
My nurse told me to get it in the but :)

Then you wont feel so bad.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/11/2009 1:02 PM (GMT -7)   
Hi i had the jab last week and everything is fine no side effects. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/11/2009 4:12 PM (GMT -7)   
Got it Saturday. No problems at all.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/11/2009 4:30 PM (GMT -7)   
Waiting for my turn...
Chronic illness is way down the list...
When its available I will get it...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


bookgal77
Regular Member


Date Joined Jul 2009
Total Posts : 83
   Posted 11/12/2009 11:38 AM (GMT -7)   
I got it yesterday (the shot) and feel very lucky to have been able to get it...since they have been few and far between in my community. Didn't have any side effects at all.
**32 year old female; Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily), Prednisone (10 mg daily...for a few more weeks), Nexium (40 mg daily)
**Previous meds: Colazal (allergic); Flagyl (off and on for rectal inflammation); Rowasa (enemas only when needed); various pain meds (but luckily none lately); iron IV infusions (when hemoglobin gets low)
**Thankfully only two major flare-ups...2001 and 2009. Hoping to have another 8 years in between the next one (sadly, I do know there will be a next one).


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 11/13/2009 7:47 AM (GMT -7)   
I had my shot yesterday. Nothing to it.

Julia

meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 11/13/2009 12:23 PM (GMT -7)   
My whole family has had the H1N1  & seasonal flu vacines with no side effects or problems.  In addition to my & my mom's CD my dad had a kidney transplant about 1 1/2 years ago, so we can't take any chances on not getting the vaccine.  My CD docs advised me to get the H1N1 shot because of being on 6MP and it lowering my immune system.

"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34


Barbz
Veteran Member


Date Joined Jun 2005
Total Posts : 848
   Posted 11/13/2009 5:40 PM (GMT -7)   
I had my shot yesterday with no problem.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 11/13/2009 6:23 PM (GMT -7)   
This stupid country and its H1N1 vaccine bogarting. It will supposedly be available to lower risk levels around the end of the month, but I'm not holding my breath.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 11/13/2009 11:40 PM (GMT -7)   
No, since here it requires going to the Health Department at 5 am, to stand in line until 7 am. Then MAYBE you'll get a braclet to come back another day, stand in line and get the shot. No thanks! I think it's terrible how it's being handled.
 
My guts are at their worst that early in the morning, and it's cold here. So the idea of standing out in the freezing cold to possibly get turned away doesn't appeal to me.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 11/13/2009 11:54 PM (GMT -7)   
Me & my daughter and my husband will not be getting the h1n1. For one, it's dispersment IS being mishandled. For two, I don't trust the research available at the moment. Yes, it's there, but in order to mass-manufacturer they have added an adjuvent in which they said they wouldn't. Given they are not finding that my Crohn's may indeed be more hereditary than "fluke" I don't trust injecting my child with something that could possibly alter her immune system. That's just my personal thoughts and I in no way would judge someone for their own feelings. As of right now I'm in remission. I do not get the seasonal flu as my doctors do not recommend it. My husband got the flu shot 2 years back when we brought our daughter home from the NICU because he was out and about far more than me and it was a means to protect her...otherwise, we use the good ole' handwashing and sanitizer method the NICU taught us..

I will say I am scared of this virus for my family, but I also realize there are SOOO many other things that could happen illness wise. My daughter is only 2 and the first year she had a small case of pneumonia and at 19 months she had RSV.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 11/14/2009 9:35 AM (GMT -7)   
I just recently was approved for Humira and the doctor wants me to get both shots. I'm kind of on the fence with this. I know my immune system will be lowered but I'm paranoid about vaccinations. I told him that I didn't want the shot. Taking on the Humira was a big enough decision and now he wants me to take the shots as well??
It sounds like most are doing it here but I'm still a bit afraid due to the stigma that vaccinations have.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 11/14/2009 10:35 AM (GMT -7)   
No, my daughter has not had it. We are not confident it won't stir up Crohn's inflammation.
 
Have always wondered whether all the shots she took, all once, for a family trip to Africa, helped to trigger Crohn's.
 
We were both very sick this summer with a flu, so I'd like to find a way to check whether it might have been a milder form of the swine flu. Not sure whether this can be done.
 
Btw, she is NOT on an immunosuppresant...if she were, she would definitely get the shot.
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. SCD multivitamin, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice. 

Post Edited (njmom) : 11/14/2009 10:42:01 AM (GMT-7)

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