New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 11/11/2009 7:07 AM (GMT -7)   
I just had my first treatment of Remicade on Friday.  Today I woke up and I am have really bad pain in both my shoulders.  My arms are feeling very heavy and is making it very hard to do my job today.
 
Question - Could this be a result of the Remicade or possibly just the lovely joint pains we get with CD?  I had some Arthritis Tylanol about a half an hour ago and it is doing nothing.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/11/2009 7:10 AM (GMT -7)   
Well it is very common for us to have joint issues, but I would watch for awhile and if it seems to be getting worse, then do bring it to your doctors attention. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Izzygirl
New Member


Date Joined Dec 2008
Total Posts : 7
   Posted 11/14/2009 9:42 AM (GMT -7)   
I just recently had infusion and then reaction to it 7 days later with joint pain. My left shoulder pain is what is lngering the longest. So far i was on prednisone and have just tapered off as of yesterday. Pain is worse now with out it but I think it's not really a long term option. Even with the pain meds I recently had in the hospital for 4 days, I really think the only thing that seemed to make it go away was the prednisone. I don't even bother with the Tylenol anymore. Something my Rhematologist had me take for was meloxicam during flare ups. I may have to talk with them to c bout it again. Good luck!
Izzy


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 11/14/2009 3:09 PM (GMT -7)   
Hi JavaJay,

I don't have any experience with Remicade but I thought I should point out that Tylenol, or any other NSAID, is not a good idea for people with Crohn's. You might want to talk to your GI about them.

I hope you improve real soon.
AzJohnny
 
I feel a whole lot more the way I do now than I did a little while ago.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/14/2009 4:07 PM (GMT -7)   
Tylenol is acetaminophen, no? Therefore, it is not a NSAID.... One of the very few that might be safe to use that are non-narcotic.

I don't know if you have diarrhea, but if you don't, turmeric extract (90-95% curcmin compounds) is what helps my miscellaneous pains. It is a great anti-inflammatory, but if you have D, it can cause the "ring of fire" effect on exit. Some here use it to control their Crohn's symptoms too. I recently stopped using it for two days and the result was a nasty return of aches and fatigue, so I restarted it again and am feeling better.

JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 11/16/2009 5:44 AM (GMT -7)   
AzJohnny said...
Hi JavaJay,

I don't have any experience with Remicade but I thought I should point out that Tylenol, or any other NSAID, is not a good idea for people with Crohn's. You might want to talk to your GI about them.

I hope you improve real soon.

Just an FYI...Tylenol is not an NSAID and is in fact one of the few pain medicines that someone with CD can take.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 5:47 AM (GMT -7)
There are a total of 2,735,803 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151439 registered members. Please welcome our newest member, owillie.
192 Guest(s), 11 Registered Member(s) are currently online.  Details
Psilociraptor, summer16, Loutucky, mrs. george, reminder, Ineedhelp, U B Tough, Scarecrow, ChickenArise, Not-there-yet, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer