Has Anyone Taken Imodium So They can Leave The House

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Mrs_Mitchell
Regular Member


Date Joined Nov 2009
Total Posts : 26
   Posted 11/11/2009 12:58 PM (GMT -7)   
Hello,
I really need to go food shopping but because I am always runing to the bathroom it is making it so hard. I really have to go food shopping Today and since 6 a.m. have ran to the bathroom 5 times already. I am also nervous about leaving the house because I don't want any accidents. I hate this so much. I was told by my last GI doctor that I could take Imodium but the new GI doctor said they really don't like to tell you to take it in case the diareah is caused from an infection. The medications I am currently on is Entocort EC, Asacol, xanax (for very bad anxiety), Augmentin (antibiotic, not sure if it was given to me for a anorectal abscess/fistula I have or if he put me on it for the crohn's. I was on flagyl for a long time and he said I needed to come off and I am allergic to cipro). I am also taken a multivitamin and will start calcium next week. Anyway, with everything that I am taking does anyone know if I will be ok if I take a Imodium so I can go food shopping? Thank you in advance for your reply.

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/11/2009 1:21 PM (GMT -7)   
Hi, i live on loperamide (same thing as immodium) although before my op i was on lomotil which i think is far better as it starts working when gets to the colon i would take two tablets at 7am and not need to go to the loo till late in the afternoon you can take up to 8 of these a day but i never needed more than two. before lomotil i knew where every toilet was in our town!!!!!! i will go back on these as soon as i get rid of this stoma good luck Bev yeah
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Hayleyeliz
Regular Member


Date Joined Feb 2004
Total Posts : 214
   Posted 11/11/2009 1:24 PM (GMT -7)   
Hi Mrs Mitchell,

I have taken Imodium to allow me to leave the house in the past. It isn't advisable to do it often but it probably wont be a problem if you just do it occasionally. Your GI made a good point about infection but to my mind the biggest problem with doing it is that is can cause a partial obstruction if you do it too often. I had a situation at one point where I had taken Immodium over the course of several days and I ended up getting one solid and immovable stool lodged somewhere in my small bowel. The pressure buildup and pain from the diahorrea behind the blockage was unbelievable and it still managed to force it's way past that one lump making for just as frequent but significantly more painful bowel movements. I now have a one dose a day, no more than twice a week rule. I haven't had to use it for quite some time now as I have had great sucess on Remicade but that rule did hold me in good stead while the disease was still active. Choose your time and get as much done in the time the dose is effective as you can, it's really not worth the risk to do it too often.
Best of Luck
Hayley


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 11/11/2009 5:19 PM (GMT -7)   
Augmentin caused severe diarrhea for me. I wonder if you have any other options for antibiotics?
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 11/11/2009 6:05 PM (GMT -7)   
I take Imodium ALL THE TIME!! Like probably once or twice a week. I've never had a doctor tell me not to take it and have only heard people be hesitant about it on this site. If you have Crohn's, your diarrhea PROBABLY is not caused by an infection. Yes, you shouldn't live on Imodium, but seriously, if you're like me and diarrhea is your number one symptom, you can't live without it and the risks are worth it.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
 
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
 
Currently on: 40mg Prednisone, 100mg Imuran, Align, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention). 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/11/2009 6:25 PM (GMT -7)   
I have quite often. I would take it up to 2-3 weeks every day so I could get up and out. It really helps.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/11/2009 6:56 PM (GMT -7)   
Ditto others. Always take it when I'm not going to be around a restroom.
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Jamaican Pirate
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/11/2009 6:57 PM (GMT -7)   
Imodium oh yes,Carried it with me all the time.I have U/C but couldn't pass this one up.I take nothing now,since 2 back surgeries and failed back surgery syndrome I have been on low dose percocet and this past March pain management specialist switched me to MS Contin its a slow release pain med.I have not had any problems in over 3 years with U/C not sure if this might help with Crohns.I have always thought they have cures out here but if they cured us they would lose their incomes.I have not seen my GI Doctor in over 3 1/2 yrs.

Mrs_Mitchell
Regular Member


Date Joined Nov 2009
Total Posts : 26
   Posted 11/11/2009 7:17 PM (GMT -7)   
Hello, I want to thank everyone so much for thier response to my question. I had to leave before anyone answerd so I just took 1/2 a pill and I was able to do ALL my food shopping. My husband doesn't drive so I have no choice but to go. We had two FULL shopping carts so I hope that will last a while even though we have 5 kids. I was scared to take it but I guess it actually helped because we have been gone for hours and I haven't had to go to the bathroom. My Biggest problem with crohn's and the only way I found out I had it is because I always have diareah. I haven't had a formed stool since I had my son 3 years ago and found out I had crohn's about 2 years ago. I am so glad I made it out because I am always so scared to leave the house because of having to use the bathroom. I am glad to know that other people have had to use imodium when needed and are ok. Thank you all so much. I won't use it a lot but if I have to go out I will try it again, maybe I will feel a little normal again.

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 11/12/2009 1:38 AM (GMT -7)   
I was on loparamide [imodium] for like almost 8 yrs. i took 3 or sometimes 4 pills every time i ate.
that's A LOT of pills. Eventually it stopped working for me because I had to take it so much.
Now that i am on Remicade, I am not taking it anymore - not reccomended by Dr.
but i am still going about 10 to 15 times a day.

Don't stop living your life just because you go to the bathroom lots.

I know its tuff... trust me i know. Just watch yourself, hopefully it will work for you and that will be the only thing
you will have to take.

To me Crohns is like a ticking time bomb. You just never know when its going to go off and what will happen
when it does.
wishing u happiness & good health!
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 11/12/2009 1:47 AM (GMT -7)   
oh hey and I too am allergic to Cipro. My feet swelled up like balloons for about 2 wks .... it was soo painful.
I thought I was going to die. I remember i had to crawl around the house, i could barely walk.
It was scary!!
that was in Feb. of this year.
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/12/2009 4:46 AM (GMT -7)   
My GI has no problem with me taking 10 a day,15 on a bad day.
Thats with me having 3-6 bm's a day.(last 4 years)
I feel the busier I am,the less bm's I have.(that works for me)
Hopefully you figure out what is best for you...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/12/2009 8:41 AM (GMT -7)   
yes if I have bad D I take Imodium.
My doc says it is ok
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


calace
New Member


Date Joined Nov 2009
Total Posts : 10
   Posted 11/12/2009 11:41 AM (GMT -7)   
Ask your doctor about Questran - it saved my life and allowed me to go everywhere without worrying about bathrooms. Took Immodium for years with no real benefits until I found Questran. It is amazing. It's a powder that you mix with orange juice.

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 11/12/2009 11:50 AM (GMT -7)   
Unfortunately I can't tolerate immodium but I take codeine every day for bowel control. Even though I'm in remission there some damage or something somewhere in my system that means that if I didn't take it I'd be glued to the toilet most of the day - I've had "accidents" before in public and hell no am I going through that again!
My doctors are fine with me taking it, my disease activity is monitored monthly in bloodtests and if I was to flare theres other ways I'd notice I was such as pain and vomitting etc so they're not worried about it hiding something nastier, the way they see it is that the main thing is that I can lead my life as normally as possible and if that means taking a few more pills so be it!
 
 


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 11/13/2009 7:44 AM (GMT -7)   
I take 2 imodium every morning and have for years. I also take 3 buscopan/day to enable me to leave the house.

Julia

Mrs_Mitchell
Regular Member


Date Joined Nov 2009
Total Posts : 26
   Posted 11/13/2009 4:31 PM (GMT -7)   
Thank You so much everyone. I am the type of person who is so scared to take any type of medication and the one's I am taking now took me months to finally take. As I mentioned I did take 1/2 a pill to make it to the super market and do my food shopping. I don't know why I have to feel so nervous to take medication. I've been suffering for so long scared to leave the house because of having an accident but I hope to be able to leave more now and enjoy my life a little. I spent the WHOLE summer in the house because I was so scared to leave. The couple of times i had no choice but to leave I found myself running to a bathroom and almost not making it. Thank God the store's I was in had a bathroom. Well, that just made me have such bad anxiety about leaving the house. I'm going to try not to be so scared about taking some medication so i can try and live a normal life. I know my GI is about to start me on the bigger medications that I am really freaking out about.

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/13/2009 6:02 PM (GMT -7)   
I try not to use too much. I will take a half or if I must a whole pill. Seems to me like I get a backlash of D if I use a lot.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


vanna
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 12/16/2009 1:42 AM (GMT -7)   
mrs. mitchell
 
ask your doctor about cholestyramine. it is a powder that you can use that you mix with water or orange juice, I prefer the o/j
as you don't taste it so much..one small packet gets me thru a  day or two , but ppl are different and you have to adjust to your needs. i work outside where there are usually no bathrooms, so I always make sure I carry it with me or take first thing in morning if i know it is going to be a bad D day....  I have had surgery in 2000 had and ileum re-sect, docs figure that I had crohn's for about 14 yrs before that tho.. am experiencing alot of different pain right now , have had 8 different diagnosis and 5 different prescriptions, 2 ultrasounds, one ct going for another test next week.. pretty sure it's the crohns again but not positive, so good luck to you and hope it works for you as it did for me

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 12/16/2009 2:46 PM (GMT -7)   
If I know I'm going to be somewhere where a lack of bathrooms may be an issue, I always take an Immodium before I leave the house. I also have Lomotil on hand for the REALLY bad days.
30/f
chronic active colitis/possible Crohn's - unspecified IBD
Lialda 2x/day
Entocort 9mg 1x/day
Darvocet or Tramadol as needed


camjames
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 12/16/2009 4:14 PM (GMT -7)   
Immodium is pretty safe from the small amount of research I did when i looked into it. I rarely take it, but if i had to, I would.
 
Also, most antibiotics will worsen diarrhea. You might want to consider taking probiotics if not already, such as acidophilus. Make sure you space out your probiotic doses from your antibiotic doses as the antibiotics will kill both the good bacteria (probiotics) and the bad bacteria causing infection.
 
Thirdly, if you think you might be able to tolerate psyllium husk (ie. Metamucil supplements), or another water soluble fiber, this may also increase the bulk of your stools. Only do so if you are pretty sure you can handle fibrous food items...ie. can you eat at least some cooked veggies? Start on a low dose of it and see what happens maybe?
 
Exercise may help as mentioned previously...
 
God Bless

B&K'smom
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 12/16/2009 4:25 PM (GMT -7)   
I would have to say I live off of it too :) My friends, co-workers, and family all know this too. If i choose to eat at work, I will take two. If i got out to eat I will take them. Basically if I am eating anywhere besides my home, I take it. I carry a ziplock bag in my purse that has Imodium in it. LOL. Since my resection I have been this way. I freak out if I leave the house without it. That's why I came up with the ziplock bag idea. :) And I can take 2 a day, all week and still I never get backed up. Crazyness.
21 years old.
Symptoms since: 2005
Dx: 2007
Had one resection: Feb 09
Currently on Imuran.


BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 12/16/2009 5:27 PM (GMT -7)   
This may be weird, I usually have the big D, but i can only take 1/2 of an Imodium, if I take more than that I won't go at all. My doctor doesn't want me taking it because of the narrowing. I haven't in a long time and it's really just when the D is so bad I'm having a hard time making it to the bathroom. The last remicade infusion I had has helped with the d :) Yay!

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/16/2009 6:00 PM (GMT -7)   
I try to take a half or one only when I must.  I find I have a rebound effect after the drug is done.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 12/16/2009 7:26 PM (GMT -7)   
Two immodium is part of my daily regimen. I have done so for years and years, with my doctors approval. I also take Questran, and that has been a life saver. Before the questran I was taking 5 immodium a day, and even then I'd have problems. So with the Questran and the 2 Immodium I'm perfectly fine most days. Able to eat out, and go places. Really an improvement in life!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

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