482 calprotectin value for my 15 year old

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55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/11/2009 3:26 PM (GMT -7)   
Hi again!!  I have been away from teh site for a while as my daughter has actually been healthy.  Last week she got the flu and it sent her into a flare. (no diarrhea, jsut wt loss)   Her doc will most likely be adjusting her meds.  He changed hospitals so currently I am technically without a gastro doc!!!
 
I feel blessed, though because I called him to (long story short) come to his new practice and told him of her symptoms.  He asked me to call her ped. adn order a calprotectin stool sample.  the results took several days to come back, but normal range is under 120 and hers is 482.  It is a marker for intestinal inflammation.  Could mean her meds aren't working or a new flare.  she lost 5 # in a couple days.  I am feeding her a lot of boost plus and trying to get her to eat more protein and veggies.  The problem is that she doesn't want to eat anything!  Today her vision was impaired.  (?)  Any advice from anyone out there?
Thanks  in advance!!

Jen
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/11/2009 3:51 PM (GMT -7)   
Back off on the veggies. They can be difficult for a sick intestine to digest. Eggs and cheese are sources of protein. Milk. Ice cream. Peanut butter.

Call your local hospital's nutritionist and ask for help or have your gastro handle a referral for you to the nutritionist.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/11/2009 4:58 PM (GMT -7)   
great advice, thanks.
Oh, and I like your signature :)
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 11/11/2009 5:03 PM (GMT -7)   
Hi Jen,

What exactly do you mean when you say her vision was impaired?

I agree with CrohnieToo about the veggies. You may want to try feeding her small amounts of what she can tolerate every couple of hours if she's home.

Hope she improves soon.
AzJohnny
 
I feel a whole lot more the way I do now than I did a little while ago.


55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/11/2009 5:24 PM (GMT -7)   
She woke up this morning saying she saw shadows where her periphial vision would be.  I thought it was the onset of  a migraine, but she never developed a headache worth noting.  A couple hours into the morning the shadows disappeared and she saw just fine
 
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 11/11/2009 5:40 PM (GMT -7)   
Hi Jen,
 
Hope you remember me from some of our previous posts back and forth. I'm sorry to hear that you're having difficulty right now. Just wondering if you ever had a metabolite test to see if the 6mp is at the best clinical level, could be the dosage needs to be higher. A liquid diet for a few days might help calm things down abit.
Hope she feels better soon. Please keep posting her progress.
 
Tom.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/11/2009 7:33 PM (GMT -7)   
I don't really have any advice, but I just wanted to say that I learn more from this forum than anywhere else. I'd never heard of calprotectin before - I will have to ask my husband's GI if they now do this test. It would be so nice to know whether it's IBS or IBD causing your symptoms, so you know if you need to treat, or just watch your diet.

I hope your daughter finds some relief with eating foods that are easier on the bowels. Maybe a short course of pred or entocort will help. I've also heard good things about enteral/elemental nutrition and that it is nearly as effective as steroids in inducing remission especially in children.

I hope your daughter gets out of this flare quick.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/11/2009 7:57 PM (GMT -7)   
Thank you so much. I am guessing a course of prednisone will be in order. Poor girl had so many ups and downs with her last treatment.
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 

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