fears come true

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Regular Member

Date Joined Nov 2005
Total Posts : 93
   Posted 11/12/2009 3:13 AM (GMT -6)   
went last week for c scope and at the time the doc says i dont have crohns ugh i was afraid this would happen cause it took so long for a dignose and a speical trip to a big wig hospital he said that we have to wait for biospy to come back to be sure but he dosnt think so he just dosnt know what is wrong again here we go with we dont know what it is i mean im not saying i want this disease but it was better than we dont know what is wrong it must be in ur head and on top of that the meds didnt work again and i was mostly awake and i told the doc to stop and he didnt i hate doctors i really do i have just been in shock since the test i dont know what to do i mean if i go to another doctor c scope again would be what they would want to do and i cant go though it again so soon i have been depressed since the test i just feel like giving up i mean i cant go though this we dont know whats wrong again i really cant i cant go though well there is really no reason for u to be in pain no reason why u have blood in ur stool no reason for ur dirharia with the dignose it least i had something to go on u know i could go to the hospital when i had bad pain i give them a reason for it not they have no idea i am sorry so long just needed to vent but i guess i dont belong here i dont have it even though i was told in 05 i had it and in may i was told by a ct scan there was inflamation and it was my crohns flaring i have also done my own research and this disease fits everything that i have been going though for many years 31 now and this disease fits things dating as far back as my teen years at least if not before anyway i just dont know what to do now or even can anyway sorry so long talk later

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 11/12/2009 3:54 AM (GMT -6)   

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 11/12/2009 5:09 AM (GMT -6)   
Please don't stop looking for the right answer. We know our bodies. We know when something is wrong. Certainly the symptoms you are having indicate that something is going on that is not normal. IBS doesn't not have blood as one of its symptoms, so don't let them tell you that is your issue. It seems to be their blanket diagnosis when they can't pin down IBD, but the treatments are different. Don't give up, keep looking. You deserve to live a good life with no pain and with treatment from a doctor who cares enough to get to the bottom of what is truly wrong. Keep searching for that doctor.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/12/2009 9:22 AM (GMT -6)   
Also, lets wait until the biopsies are back. That should give more answers. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Nov 2005
Total Posts : 93
   Posted 11/12/2009 12:13 PM (GMT -6)   
Thanks for all the surport i feeling like pulling my hair out though it has been a rough time and since this recent doctor told me this i have just been so depressed and feel so hopeless i have kept this to my self till last night i cant talk to my family there not big on doctors and my mom dosnt think i have it she just always disgrees with doctors i just didnt want to hear from her i told u so my boyfriend was the only one that knew i was going though this part of it and we arent getting along well right now either probally mainly me but he has just been on my nerves lately i know its me i hate this i hate my life ugh ok ill stop for now ill check back later

Regular Member

Date Joined May 2009
Total Posts : 201
   Posted 11/12/2009 10:16 PM (GMT -6)   
Hang in there doormouse...I'm sorry you had pain with the scope. I can't imagine.....From what I've read on here and other places, it is often difficult for some people to get a definite diagnosis. The biopsies should confirm. I have found that this place gives support, not my family or friends,sometimes too reactive or not enough concern, and I'd rather not complain and bother them. I'd rather talk with those who understand. So thanks to all here!!
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
I live by faith and not by sight....

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 11/13/2009 8:40 AM (GMT -6)   
Next time you wake up during a scope and the doc wont stop, reach out and grab hold of his privates and say, " now,,we arn't going to hurt each other are we doc ." Should get his attention dont you think? But dont give up trying. You need to know whats wrong before you can get the right meds. Hang in there...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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