Remicade advice please?!?!?!?

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Regular Member

Date Joined Nov 2009
Total Posts : 37
   Posted 11/13/2009 11:27 PM (GMT -6)   
Hello ALL!
I just discovered this site and can't log off!  Great forum!  I was diagnosed with Crohns just this January and have not been having any luck so far.  I have already had one surgery and might need a second after 6mp failing to work for me.  I start Remicade infusions soon and want some adive from anyone who has been through it already.  I read some people have no problems and others describe it as hell!  Please let me know what I can expect.  Thank you people, LOVE THE SITE!

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 11/14/2009 1:27 AM (GMT -6)   
Sounds like you have some idea. I would say exactly what you said, "some it works for some (like me)it was not good.

Hope it works for you.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 11/14/2009 6:48 AM (GMT -6)   
Nearly 7 years ago my doctors were considering giving me an operation which would have left me with an ostomy, on the day I went in to discuss the surgery they'd literally just been given a budget for remicade, they tried it as an eleventh hour sort of thing, within a a week or so my inflammation had pretty much disappeared and I was in remission for two years. Since then I get one dose with each flare up, each infusion keeps me in remission anywhere from 6 months - 3 years. It really was a lifesaver for me and I am so so lucky it came available just in time for me! I think if your facing surgery its definitely worth a shot, sure it works differently for different people but you could be one of the people it works great for, theres always that chance too!

Regular Member

Date Joined Nov 2009
Total Posts : 37
   Posted 11/17/2009 11:59 PM (GMT -6)   
Thank you for the information people! Appreciate it!
28 year old husband and father of 1 (soon to be 2!!), Diagnosed with Crohns and resection surgery in Jan '09 (same ER trip), currently not winning the battle with pain, taking: 6mp, Pentasa, Prednisone and every vitamin possible! 

What lies behind us and what lies before us are tiny matters compared to what lies within us." -- Ralph Waldo Emerson

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 11/18/2009 1:34 AM (GMT -6)   
Welcome BWS27!!

Remicade has given me my life back! Prior to getting on Remicade my body was steroid dependent. 6-MP didn't work for me either.

Remicade did not work for me the first year I was on it. My doc decided to double my dosage and that seemed to do the trick! I have now been in remission for almost a year (next week)! I was so sick that I never thought I would reach full remission, let alone almost a year. There was a time in life where I thought my dog was going to out live me!

Hang in there!! Good luck on your Remicade Infusion and please let us know how it goes!!

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/18/2009 4:00 AM (GMT -6)   
Hi and Welcome,
I was on remicade for 5 yrs. . I had to switch to humira remicade got to expensive for me.
I hope the remicade works good for you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,,Celebrex and Humira. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Regular Member

Date Joined May 2009
Total Posts : 173
   Posted 11/18/2009 10:17 AM (GMT -6)   
Just had my second dose yesterday. Night and day difference from the days before the first dose. It's only been two weeks but I'm closer to remission than ever before.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/18/2009 2:40 PM (GMT -6)   
Welcome BWS27!
I have been on Remicade for almost a year now and I LOVE it!  It has helped with both my intestinal and extraintestinal symptoms.  I sincerely hope it works for you.  Be sure to let us know.

Regular Member

Date Joined Jan 2006
Total Posts : 29
   Posted 11/19/2009 9:42 PM (GMT -6)   
I've been on Remicade for over 6 years. It has allowed me to live a great life. I have been able to have 2 kids and am still feeling great. I just hope I can still feel this great for a lot scared it will stop.
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