Upper GI Pain?

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j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/13/2009 10:29 PM (GMT -7)   
Hi all
 
Just wondering if anyone else knows what this is.  For the past few weeks I've been having some intermittent pain in my upper GI, feels like it's an inch or two above my naval, mostly central.  It feels a lot like gas pains.  It can be a dull acidy ache that lingers for an hour, or sometimes a more intense spasm-like pain that lasts about 20 seconds.  Sometimes it's not there at all.  Tylenol helps a lot.  Pain seems worse shortly after eating but is not limited to only after eating.  Sometimes when I shift positions it brings it on.  My tummy is a bit tender in that area.  I called the GI's nurse about it a while back and they called in some Levsin for me which doesn't really seem to fix it (I prefer the Tylenol).
 
I should add that all of my disease in prior scopes has been in the large intestine.  I have been in a state of bad inflammation since diagnosis, haven't found any meds that help yet.  I go through phases of flare symptoms, lots of bathroom trips, urgency, blood - but have not experienced pain before.
 
Any ideas what this could be?
 
Thanks
CD since July 2007
DM T1 since January 2008


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2009 7:37 AM (GMT -7)   
Many people with Crohns also can develop Acid Reflux/Gerd. Have you had an upper scope done to check for that? Just a thought!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 11/14/2009 12:07 PM (GMT -7)   
It could be reflux, cramping of the diseased part of your bowel, a stricture, or diverticulitis. Left unchecked, the stricture or diverticulitis could end up requiring surgery.

+ 34 year old male
+ Crohn's Disease DX in 1997, doc said it was "moderate to severe"
+ Currently taking 9mg entocort and 40mg prozac
+ SCD for past 10 years
+ 4,000 mg MSM, Calcium, Vitamin D, Multivitamin, S. boulardii, Acidophilus
+ Section in lower jejunum is badly strictured (5mm wide opening continues for 10cm!) but otherwise no other problems in bowel
+ No surgeries so far


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 11/14/2009 8:10 PM (GMT -7)   
Definitely have it checked out but I get something similar sometimes and I had it really bad when I first got diagnosed. They said it was GERD but no medicine ever helped it. Mine seems to only be a problem when I'm flaring and eating/drinking things I shouldn't. I don't really eat anything acidic anymore though so that may be why it hasn't been a problem. Maybe try cutting out really acidic foods if you haven't already. I stay away from anything tomato, orange, lemon, sodas, etc.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 11/14/2009 11:39 PM (GMT -7)   
If the pain is only an inch or two above the navel, I would not think it is from reflux. It may be an adhesion, diverticulitis, or possibly intestinal endometriosis. The adhesions and endometriosis would be hard to spot with the usual c'scope, but it would show up a diverticulitis pouching. Hernia is another possibility, but they are usually felt lower down than where yours is. It may also be something completely unrelated, like an ovarian cyst, since the GI tract, urinary tract and reproductive system all interact. That is, inflammation in one will possibly cause inflammation in the others. Definitely you should get some workup of your symptoms.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/15/2009 9:21 AM (GMT -7)   
With all due respect Keeper, thats is exactly where my pain was at when they diagnosed my GERD. Put me on Prilosec and its gone. But I do agree it could be a stricture causing backwash too. But I kinda lean at GERD for now. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/15/2009 9:41 AM (GMT -7)   
I have been having the same sypmtom recently. My thought has been diverticulitis. I also consider a small intestine overgrowth of some sort to be a possibility. I find a heating bag, the type that has the grain or pasta in it which you heat in the microwave, to be very soothing. It does seem to make a difference how I position my body for comfort also.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/15/2009 10:07 AM (GMT -7)   
Thanks everyone for the replies. I hadn't thought it could be gerd because it is definitely not in my chest at all, but I've never really had heartburn before, so maybe I just don't know what that feels like. I've never had an upper scope done before, so maybe I'm due one of those. I will call the doc Monday.
CD since July 2007
DM T1 since January 2008


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/15/2009 11:09 AM (GMT -7)   
I've never had an upper GI either. Please let us know what you find out. Your discomfort sounds just like mine so it would help me to know what is causing your pain.

Luck.

Oh, I do have gerd and this doesn't feel the same but it certainly could be a new symptom of the gerd. I've been on prilosec for years.


kandc88
Regular Member


Date Joined Sep 2008
Total Posts : 65
   Posted 11/15/2009 7:47 PM (GMT -7)   
I had upper GI pain that to me seemed unrelated to my CD at the time.  So much so that I was convinced it was Gallbladder and my primary and GI both suggested an ultrasound to check on it.  As it turned out it was my Crohn's flaring and food probably backing causing new pains in new places.  I had lived with a 4 mm stricture for years, but it finally got too bad to live with and surgery "cured" my upper and lower GI problems...
 
I also considered an esophageal problem too, IE heartburn and thought I saw some improvment with antacids and with ginger cause I also had a nauseous feeling along with the pain.  Pain timing was usually awhile after eating, often most problematic in the afternoons...
 
Hope this helps.
 

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 11/15/2009 8:06 PM (GMT -7)   
I've had the exact same thing since I first got sick - never knew what it was (still don't), and it's actually what prompted me to go to the doctor in the first place, my other pains are more tolerable to me. My upper GI pain to me is the worst and hardest to deal with. I've got a gallbladder ultrasound and SBFT scheduled for within the next month or so, so it'll be interesting to see what it was. I've suspected I may have gallstones for a while, but at the same time, I've always wondered if I have a stricture because I have narrow stools a lot, tend to get really constipated, and I've had what I'm almost positive was a partial obstruction before (that I was stupid enough to not go to the ER for, go me!) Let me know if you find out what's causing your pain, I'd be curious to know.
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